TIAs and vascular dementia: Hi, I'm John... - Different Strokes

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TIAs and vascular dementia

Ovingite profile image
7 Replies

Hi,

I'm John and I am new to this forum. I have a rare blood cancer (essential thrombocythemia) which causes elevated platelet levels and increased risk of thrombosis. Last year I had a suspected TIA (no evidence of residual brain damage on MRI scans).

I am following a BHF course on FutureLearn called "IT STARTS WITH YOUR HEART: UNDERSTANDING HEART AND CIRCULATORY DISEASES BRITISH HEART FOUNDATION" and was alarmed to see the statement that-

1 in 3 of all stroke victims go on to develop dementia within 5 years

which scared the living daylights out of me! Can anyone add anything to this statement? Is it applicable to all types of stroke / TIAs?

I would really appreciate some guidance on this

Thanks

John

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Ovingite profile image
Ovingite
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7 Replies
Tucson profile image
Tucson

I don't think that's true tbh, I had my first stroke in 2012 and have had two more since that I'm aware of. Apparently my Mri's show over 30 strokes that I've no knowledge of and also read that my condition would lead to dementia, so had a conversation with my GP about it. He thinks there is no way to tell if someone will develop dementia until they develop it. I certainly have no memory issues at all so I'm certainly not going to worry about things that are unlikely to happen.

Although as we all live longer then more of the aging population are likely to go on to develop dementia so the figures would be skewed by old people having strokes and developing dementia.

Ovingite profile image
Ovingite in reply to Tucson

Thanks Tucson. That's really helpful and much appreciated

John

Vennie profile image
Vennie in reply to Ovingite

Hi, I have Et (Jak2+) too, and have also had two CVA's, and I worried about vascular dementia. My memory is not so good nowadays but I put it down to age (69), previous episodes , the chemo drug I am on, all of which have an impact. The thing is, we actually can't do much about it all except to get the body in peak a condition as we can through quality nutrition, exercise to keep the blood flowing and oxygenating the body ( I live in a highly polluted area), good sleep pattern, and remove stress ( I practice mindfulness and meditate, and get out of the rat-race as often as I can! I'm hoping the old bod does the rest and keeps any demons at bay, it's the best I can hope for.

Wish you well. V

Wittycjt profile image
Wittycjt

I agree with Tucson. Ive had several strokes too...do not worry about things out of your control and try to keep your mind active doing brain involved things at least daily: crosswords, seek and find, etc. Be well, hugs, Cindy

Ovingite profile image
Ovingite in reply to Wittycjt

Thanks Cindy. It's reassuring to hear different perspectives.

John

Wittycjt profile image
Wittycjt in reply to Ovingite

Apologies, ive had TIAs and strokes in the past, last stroke in 2015 at 53 years of age. I believe ive still got all my faculties and i would venture to say my husband agrees with me. Youre life will be what you make it. If you tap on my picture it will lead you to my story. be well and try not to fret about it🥴 Cindy

Philip profile image
Philip

Hi, My Consultant said to me that I have Vascular Dementia and that it was caused by 100s of T I As, he showed me the scan and explained the about the dark shaded areas and they cannot stop them and lacuna strokes along with them lol,We keep on marching on.

Philip

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