Follow-up

[Advice1]

Hi could anyone explain please. what is the usuall follow-up period

after seeing a Stroke assesment

consultant after stroke to discuss any issues.

[Jillypops2]

Ive been told I wont be seen until six months after

[Advice1 in reply to Jillypops2]

Hi jillypops2

thanks

[moo196]

HI

I wouldn't wait to find out but ask them directly..... In the meantime do use your GP to best advantage and perhaps ask for referral to Community Neuro rehab team ( never knew they existed until I pressed for more help ) . Also the Stroke association may be of help - and Headway were great. Remploy good for employment issues ....

Good luck !

K

[Advice1 in reply to moo196]

Thanks for your kind advice will look into it too.

[moo196 in reply to Advice1]

No problem....I know I had to push to get info/help all the time. I live alone so I needed carers for a while......good luck

[Advice1 in reply to moo196]

hi moo196

this seem to be a

pattern

with the NHS now

having to fight for most things and unfortunately

there are those

out there that dont always have the energy especially after a stroke to push more to get the help needed.

Your advice is very good and hope it also helps others too on the forum

Its great to have such a kind community here that have given their

time to reply thanks all.

[Franny7]

I Had a follow up after 3 months- but you could ask you GP if there is a community stroke nurse you could speak to

[Advice1 in reply to Franny7]

Thanks for your advice

franny7

much appreciated.

Good luck

[Marinamac]

I was seen about 4/5 months after I was discharged. I had community stroke team which was physio and speech and language (i was unable to swallow for 5 weeks ). I also have a very good GP who I see regularly. Hope this helps.

[Advice1 in reply to Marinamac]

hi marinamac

thanks for your kind reply

good luck for the future.

[Brenda1946]

Like most of the messages i waited 3 mths before i got any help. They were quick to call when i came out of hospital to fill in the forms as to what services i required but then it was 3 mths before the help came and that was only after my husband kept ringing to find out what was happening. Good luck but keep ringing up every few weeks to make sure

[Advice1 in reply to Brenda1946]

hi brenda1946,

thanks for the advice

good your husband kept

pushing thing for you

to get seen

good luck and good health

[Brenda1946 in reply to Advice1]

Thanks for the reply. Although i still have problems with my left side(i fell while recovering) broke my hip and dislocated my shoulder all on the same side as my stroke, so this is the problem with my left shoulder, Mind you i still knit takes me longer go to a craft club and art/colouring club all with the view of trying to make my left hand and shoulder work. So to anyone who reads this just keep trying. My next 2 challanges are to go to the cycle club at Longford Park where they have all kinds of bikes so my husband can help and try my hand at swimming even if i have to wear a ring or bands to help me swim again

[Advice1 in reply to Brenda1946]

Hi Brenda1946

Thats some bad luck,

But i see you are very positive and focused too.

thanks for sharing your inspiring story much appreciated.

Good Luck good health too.

[elizabethfleming]

i find it normally takes about 3 weeks

[Advice1 in reply to elizabethfleming]

thanks for you reply

elizabethfleming

good luck

[elizabethfleming in reply to Advice1]

hope u here soon a hate the costant waiting.everything just seams to rake forever good luck and a really really mean it

[Advice1]

hi dobiedogz thanks for your input.much apprecited too.

[SICAD36]

Hi, I was told after 6 months to take paracetamol for pain and to just get on with my aphasia. I had my own business at the time so had to just get on with it. Please please push for everything you need because 6 years down the line I have had no help dealing with aphasia, memory impairment, poor concentration, fatigue and pain which my husband had to Google amitriptyline to help with the pain from the nerve damage. I am 42 now and have broken down at work because I can't go on trying to be strong, I am exhausted and feel so alone. Please don't let this happen to you! X

[Advice1 in reply to SICAD36]

hi SICAD36

Thank-you for your kind reply and sharing your

experience much apprecited i do hope you

you eventually get all the support that you rightly

deserve looks like your husband is very supportive too.

Good luck .

Best wishes.

[elizabethfleming in reply to SICAD36]

I NO I WENT BACK TO WORK AND COULDNT COPE SO HAD TO GO BACK ON THE SICK MY DOC JUST SAYS STROKE PAIN AND GAVE ME 3 DIFFRENT PAIN KI;;ERS WHICH HELP A LITTLE STILL NEVER PAIN FREE BUT ENOUGH TO GET THROUGH THE DAY IT IS JUST SO FLUSTRATING AND ANY HELP SEAMS TO BE HARD TO FIND JUST FOUND OUT AFTER A YEAR THAT I CAN GET A BUS PASS THAT GETS YOU FREE BUS TRAVEL FATIGUE IS HARD TO DEAL WITH AS I USED TO WORK 10 HOURS A Day split shift i feel like ive failed for no coping at work

[Maylin]

The lady from the stroke association said shecwould return in threevmonths butbhas not come. Nomdoubt incould contact herbif i needed to.