Has anyone had problems with their av fistula? I was dialysing very well unti last friday when after dialysis my blood presure dropped and the next day i couldn't feel the "thrill" on my fistula it just stopped working allofthe sudden..i have it on my forearm and now i sort of fell a small "thrill" on the side of my arm...i don't know if it moved or it just stopped working
No "thrill": Has anyone had problems with... - Dialysis Support
My son has a fistula in his upper left arm. Yes, it can & does move-but by mere millimeters not inches. At times I do have trouble with accessing (I am his "tech",) he's going to have an ultrasound on it on 8/1, which is what they may have you do. I too am new to this, both home hemodialysis & this site so I'm very interested in hearing results of what happens with you & peoples responses! Thank you for speaking up about this & I'm hoping things go very well for you! Oh, do you have a stethoscope? Have you tried listening for it? I've heard that sometimes even though you may not feel it, it will sound (& work) just fine!
Going on my 7thmonth...i was diagnosed this year..i live in a 3rd world country so their is no hope for a transplant list...i have to find a doner and pay$ 30,000. For the transplant..i'm dialysing 2 times a week..paying $120...it's expensive my monthly wage is $320. So i don't have the money for the transplant...so as long as i can dialyse i hope to live alittle longer...i just hope the problem with my fistula is not serious.. Don't worry about getting to personal..as long as you can give me insight on how to feel better. Thanks
Are you on any food or fluid restrictions? Do you have a renal doctor & dietitian? I'm sorry about the area you are in, any chance of going to US or England? I dont know where you're at so I'm not sure of the possibilities of leaving are. How are you getting dialysis now? Do they have some financial aid for you? Sorry for all the questions, just trying to figure out where/how to start helping you is all!
Well they say all food is bad...i try too keep the water to 1.5 liters daily..i don't want to deal with cramps...but this last time i think they took too much fluid out...i have a doctor and dietitian that check up on me while i'm dialysing.no finacial aid i'ts a in center treatment so i pay everytime..no way of traveling..although England would be nice..
Certain foods are restricted; high potassium & phosphorous (like potatoes, bananas, dairy products.) It depends on your levels. How often do you do labs? Do they tell you what your levels are? Your dietitian should help you by going over your lab results & coming up with a diet plan. All foods are not bad, some are really good for you! How often do you see your doctor & your dietitian? You get cramps if you drink too much? I'm not familiar with that, my son will cramp but only if/when I take off too much fluid. Are you on medications? I'm really hoping you start feeling better! I think once you talk to the dietitian & begin eating right you will feel better! (I dont think I'm much help to you but I am trying though!)
I have labs this month to check.. last time i checked my potassium and phosphorus were high...so they have been cranking up the dialyser to 400..no meds..just a shot for more blood production...when i started my blood count was to 6 now i got it up to 11..i was dying if it wasn't for dialysis i wouldn't be writing asking for advice and help..thank you
Have you checked online? National Kidney Foundation has a food section with recipes too! It's kidney.org - I just went & searched "acceptable foods" & "recipes" real quick & they have great topics & recipes! Also try Googling.
Oh, also when you go to dialysis next time, see if they have any extra stethoscopes you can have. Sometimes they do.
Can I ask where you're at? No exact address or anything like that, just something like England or Brazil. I'm in Washington State, USA, so currently right now it's 8pm.
Great job getting that up! My son has a shot for that also, it's called Mircera here & he gets it every 2 weeks. He too has trouble keeping it up so I know how hard that is-congratulations to you! Yes, dialysis helps prolong your life, I'm glad your on it & still here fighting! As I advised, get with your dietitian & work out a meal plan-food is not bad! It's just what you eat & how much you eat. Besides your fistula, are you having any other problems? My son has the "normal" problems associated with dialysis such as trouble sleeping, itching, low hemoglobin, etc. I really feel like I havent been much help but I am here to talk to if you want.
I didnt help much lol. As I said, I was looking forward to seeing everyone's replies because I havent dealt with this yet. They have some very good advice & I'm glad you got their advice/opinions. I just googled some stuff for you lol I didnt mind, I wasnt doing anything at that moment
Hope today (Tuesday) goes well for you & everything works out! Good luck & keep us updated ok?! Take care Newatdis!!
Well, let's just pray that you dont need a new fistula ok?! 1st things 1st ok?! My son had to squeeze a ball to build his up too. It worked! So please dont give up hope ok!! Do that ball! It may seem "stupid" but it's worth it if it works right!!! Keep up the hope & positive attitude-that will/does help!
Thank you...well i went to dialysis friday and the tech found a new vein..close to where my insision was made for the av fistula...it worked well the only problem is that it takes along time to stop bleeding cause it's close to where the pulse is...but as long as it works for a while..i'm ok with it..more work for the tech though...
I think I told you that I home hemodialyze my son, sometimes I have a very hard time stopping the bleeding on one or both of his sites also! I'm to do an Arterial (below, where it takes out the blood & it goes thru the machine) and a Venus (above, where the blood goes back in) into the fistula. I've even had to call the 24hr nurse line because it was going on 45 minutes of bleeding! So I can see how that can happen to anyone! I'm glad tho that they were able to find a way to dialyze you without having to do a new fistula or graft! That's great news isnt it?! & dont worry about the tech, that's what they are there for!! I loved our tech's when my son went to the center! It didnt matter what, they just did it! Is it like that for you?
You should regularly check the thrill/bruit is there.
If not contact your renal nurse.
I have been on home had for 12 months and develop stenosis often.
I have had 4 fistula-grams, last one last Thursday. Got to know the surgeons now!!!
Procedure takes about an hour , fistula working good again.
Hi , as Margaret says you should contact your renal unit when you suspect your fistula is not working.
Ask to to go to the unit to have it checked, first time happened to me I was in surgery within a few hours to have it fixed. If it does fail you may need to have a catheter in your neck as a temporary “fix” while while you have a new fistula formed.