Otosclerosis: I have had this condition since my... - deafPLUS

deafPLUS

669 members194 posts

Otosclerosis

dms116 profile image
4 Replies

I have had this condition since my 2nd pregnancy at age 22yrs. I am now 65 yrs old and whilst the disease is degenerative, following two operations and the use of hearing aids I still have some hearing in one ear. However, as it has got worse I am now struggling profoundly with all the symptoms ie tinnitus, vertigo and ear infections. Any advice to help me cope with all this would be welcome. Thanks

Written by
dms116 profile image
dms116
To view profiles and participate in discussions please or .
Read more about...
4 Replies
MickeyJoints profile image
MickeyJoints

Hi DMS,

I've not got the conditions you mention, just normal age related deafness. I think this forum is a bit quiet, at the moment.

I hope you get some relief.

jayfer profile image
jayfer

Hi, sorry I can't help with any coping ideas but my gp put me on medication for dizziness which also helps with vertigo and tinnitus, so maybe ask them for help. Audiology also gave me a 'sound box' to try for tinnitus at night, wearing hearing aid is also supposed to help with the tinnitus too. Hope you find some relief

GRboyRiches profile image
GRboyRiches

It would seem your best option now, would be to consider BAHA (bone anchored Hearing Aid), the moulds may be the reason you have repeated infections, ask you GP or on your next ENT appointment mention it... beat wishes.

Nie3000 profile image
Nie3000

Hi Dms,

I've heard there is an option of a BAHA implant. Having Otosclerosis myself means I'm considering this option too and it sounds positive and is reversible if need be. Maybe you could ask your audiologist?

If you're struggling with hearing loss in general, I found it knocked my confidence and I worried how I'd cope socially and in work, I strongly believe learning sign language is a great way to cope and is a fun skill to learn even if its more a hobby than a communication necessity. I've met so many people who have hearing difficulties of all kinds who go to BSL classes and its very rewarding in itself.

:) x

You may also like...

Still Positive After All These Years

Phil. I have total loss of hearing in right ear with tinnitus in that ear (constant white noise). I...

Can anyone give advice on one sided deafness and a BiCROS hearing aid?

need a BiCros hearing aid (hearing in good ear is now getting worse since last hearing test). I will

Hearing aid for both ears or one?

have to wear hearing aids in both her ears or will it be enough to wear only on the weaker ear? 2....

Challenging Hearing loss!

NHS. All the practitioners have said that my hearing loss has advanced considerably and is now...

What is your best tech for hearing loss?

built into your hearing aids). It turns my aids into wireless headphones so I can hear most of that...