Posts - DC Action | HealthUnlocked

DC Action

Sort posts by:

Research funding

Are you a patient or have a family member affected by dyskeratosis congenita or ...

Camp Sunshine- World Dyskeratosis Congenita/Telomere Biology Disorders meeting.

Travel grants for world Dyskeratosis Congenita meeting at Camp Sunshine, Maine, ...

The NHS is listening- time to have your say about specialist care for DC

Join the CONCORD study survey of patients and families’ experience of rare disea...

Family Day April 27th

Hi all, Hoping to see as many people as possible at the Gary Woodward DC Family ...

DC Event

Hi, Is there a DC event happening this month in London? Thanks

Dyskeratosis Congentia

Hi Everyone, I am so pleased there is a link to connect all families who are su...

Just checking inn.

I there all! Im just checking everyone is ok. Also a belated Happy New year. Xx...

Wish list?

Cambridge doctors (multi speciality) are meeting tomorrow to discuss getting bet...

The Road to Diagnosis

Tell us how it was for you! Can diagnosis be improved? How long did your diagno...

Hello other members 👋

Hello I have dc, me and my sister were first diagnosed around 13 years ago, I ha...

Introduction

I would like to introduce myself to this amazing group. Me and My Wife, are car...

Just want to say hi!

Hi, im Jayne nice to be added to this group. I have DC alongside my son. We wh...

DC Action Community Guidelines

The aim of this community is to provide a supportive, informative and friendly c...

Introduce yourself!

Why not leave a short comment below and introduce yourselves. Give as much or as...

Welcome!

If you’ve just arrived as a Pioneer member this is where it all begins. HealthUn...
Write a post or ask a question

Search posts

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Archive