Join the CONCORD study survey of patients and families’ experience of rare disease NHS care.
Do you wish you attended a specialist clinic? Would you like a care co-ordinator to help you organise your appointments? Make your views heard by completing the short Genetic Alliance survey available at:
geneticalliance.org.uk/our-...
I've filled this in and it's quite quick- important that we all fill this in to tell the NHS what we need.
