Hi all.
We are involved in a group discussing support for patients (or carers) with cystinuria and rare stones. We would be interesting to hear from you about experiences and opinions on this. Specifically:
1) Where you turned to previously and now when you have questions and how easy it is to find what you are looking for.
2) Have you encountered lots of misinformation or conflicting advice?
Thanks and look forward to hearing your views.
Matthew Bultitude / Kay Thomas