Are You Happy?: - Cure Parkinson's

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Are You Happy?

Joealt profile image
32 Replies
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Joealt profile image
Joealt
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32 Replies
FifteenyearsPD profile image
FifteenyearsPD

Happy about what. It seems to me that you must be unhappy to ask the question

So why are you not happy?

Joealt profile image
Joealt in reply toFifteenyearsPD

My therapist and I were just talking about this. It seems that I'm unhappy because I have Parkinson's. Go figure.

Anemone profile image
Anemone in reply toJoealt

duh

Suezqmsa profile image
Suezqmsa in reply toAnemone

Yes, I think the real question is do you think you suffer depression as part of PD?

Gansbru profile image
Gansbru in reply toJoealt

I was recently sent for what must be my 20th psychiatrist/therapist/psychologist, and because they can’t consistently figure out what is causing my Dystonia-PD. I also was a member of the recovery team in NYC when I was heading to the WTC on 9/11. Yes, I witnessed both planes enter the building. Yes, I was there when the Towers fell. Yes, I lost coworkers and friends. My partner was at the dentist and his offices were the beautiful building on 90 West. Everyone from that office made it out, but the offices were a charred mess. After the collapses and my visibility returned I found a Japanese man that was injured. I escorted him to Brooklyn and returned to assist. It was intense, but the company I worked for were gracious and provided therapy to assure we were treated for PTSD. Now they are attempting annually to link that day, and not any possibility of the WTC dust that is affecting many of us. The results of their examinations are that I am coping as well as one could be, given the fact that losing all of my abilities, one at a time. I have grieved and come through all of the stages. I’m a strong person. Do I like being chronically disabled? No, but I would not want to see anyone to go through the pain/loss of sensation, spastic rigidity, unable to speak or sing, or perform the activities I used to. I feel that they ask you this because 80% exhibit signs of depression in the course of our disabilities. But I was taught excellent coping techniques.

dubdiva profile image
dubdiva in reply toGansbru

RE: WTC I was a volunteer down there for 9 months -dont know about exposure as many of my symptoms I had before, except for insane fatigue which started 4 years back, But why I mentioning it was that Ive been getting EMDR therapy for PTSD as are quite a few of the volunteers and first responders, Helps alot, Deallt w/ alot of the 9/11 stuff and loss of late,My PD diagnosis is new and not concrete-on 2nd month of Levadopa/Carbidopa,- Im in the observation stage,but I wanted to reach out to you as as fellow member of the WTC family, and just know that though we may have never met, who knows, maybe we diid, regardless you are and have been in my prayers the last 10 odd yearsxx

in reply todubdiva

Thank you both so much for being there to help so many!

dubdiva profile image
dubdiva in reply to

Thank you for making me feel so welcome, much appreciated. God Bless you!

Gansbru profile image
Gansbru in reply todubdiva

Thank you, dub diva and DiCan. I am Buddhist and follow a path of loving-kindness to all.

I received the heaviest moments and had a near-squish when WTC 7 ‘collapsed’. I had inches of that grey-brown mystery powder all over me, as I was on the pile near the Greek Orthodox Church was crushed by the South Tower impact. There is where many are noticing odd and abnormally high amounts of neuromuscular degenerative illnesses. The Registry doesn’t inform us much about its findings.

With regard to PTSD the company I worked for helped immensely with the burden of costs for PTSD, and my current situation has seen little indications of it.

Having just met you I have held you in my prayers for healing for all of us that saw a beautiful morning turn ugly!

in reply toGansbru

Thank you!

dubdiva profile image
dubdiva in reply toGansbru

I was in the the WTC study that started this PD ball rolling, I asked them about my fatigue after talking to other in the waiting room. I must say Im dubious about the study as I know so many people coming down with health issues that they say are not WTC related..And your right about the findings. its hard to know what effect seeing those buildings fall had on the world. Like AIDS, I believe it will take a hundred years to be able to fully comprehend how it changed society, Feels sometimes as the whole world i going thru a mass PTSD. But it is a beautiful world regardless, in its essence, though I am often lost in my own little universe to see that..oh too be free from the cell of self. Your prayers are much appreciated. truly, Bless You my friend.

Gansbru profile image
Gansbru in reply todubdiva

And to you as well. We have seen the worst in humanity, and we look for peace, and through prayers and/or warmest wishes from gratitude found each other!

You are so right regarding the cover-up by the government regarding our health and safety.It was 6 years later that found myself ill, and I was stunned by the edits of information released. Shame on them!

Yes, very happy and blessed.

jazzfan53 profile image
jazzfan53

Some days yes, some days no, but that's life and that's ok !

PatV profile image
PatV

Yes, even when I'm p$**ed off.

Court profile image
Court

How do you define happy? I am content and sometimes almost feel as I did before PD. I make the most of the good days and know I am blessed to be me. But happy - I am not sure. I still miss the things I can no longer do, but am glad for the things I can do and especially for my family.

Suezqmsa profile image
Suezqmsa in reply toCourt

And that's to be expected...thx for sharing.

Gansbru profile image
Gansbru in reply toCourt

I agree with Suezqmsa . That’s to be expected. Thank you both for sharing.

srarndt profile image
srarndt

I am experiencing a huge Canadian Low which is not to be confused with a little Mexican High!

Tonight: mostly dark with scattered light towards morning. The weather will continue to change for a long, long, time.

"Al Sleet."

In short, I'm usually feeling happy and damned lucky but this is punctuated by moments of deep darkness.

Debfrmco profile image
Debfrmco

Not in the same way that I once was. I used to be happy because I loved my job, was able to run and play with my grandchildren, was very active, could clean house without being dizzy and falling over...I also had dreams of my future..retirement, travel, etc.

Happy now? Yes and No. I am happy to be alive after 15 + years w/PD...I am happy to have been able to see my grandchildren grow and bloom into the beautiful children they are. For this I am thankful...since at diagnoses time they said there would be a cure in 10 years...and I knew of several people that died after 3 to 6 yrs with PD...I watched my own father and his brother get diagnosed and each died within a short time. (they also suffered with dementia)

Happy now is....having a very unusual morning of waking up without stiffness and being able walk to room to take meds....happy is making it thru that day without a fall...there are few future dreams now...but I am happy when I am able to travel from Colorado to Texas to visit my youngest son...and I am happy each night that my best friend, carer/husband kisses me goodnight and says he loves me. After 30 years together, we are as happy as can be expected...

jsp3 profile image
jsp3

most of the time

ram927 profile image
ram927

As Forrest Gump said so elequiently "Happy is as Happy does"

Anemone profile image
Anemone

Happy. If only I knew the definition of "happy." As my son was growing up I told him over and over that "happiness is not a goal. It is a byproduct resulting from doing something else." In that context, my happiness scale floats much lower than it did when I was in my Prime (a la Jean Brodie).

But when I hold my grandchildren, son, husband, dog, and play cards with my friends, or paint by the window, I can say that, yes, I feel something akin to happiness. Not the same as I felt from time to time when younger, and healthier. But I don't believe in what others call happiness--and I don't mean to be flippant about this. It's a cause of mine. Content. Perhaps I can say that most of the time I am content. Others I rage--those are rare, thank goodness.

Give yourself a break. Stop the search for happiness. It will kiss you on the shoulder when you stop looking for it. Tears well up in these so-called content eyes as I wish you a good holiday. I just looked up and the sun is blazing. It's gonna be a good day. I feel some optimism.

Joealt profile image
Joealt in reply toAnemone

Thank you.

I am glad that I started coming to this site. It never fails to make me feel better.

Have a happy new year !

Suezqmsa profile image
Suezqmsa in reply toAnemone

beautifully articulated! Thx.

Hikoi profile image
Hikoi

And you too Joealt and all those on this site who give so much of themselves in their writing.

Suezqmsa profile image
Suezqmsa

I have so much to say but i wrote a dissertation response. I gotta find a place to post it and then give you all the link. I was kind of "happy" with it, despite it''s length. No, I am not happy. I am with Anemone and Court. In my former life I made psych tests, or I should say I made the statistical methods to make them more technically sound. We call Happiness a construct. Is the real question "are you depressed as part of your PD?" Depression is another construct, and most scales are highly confounded by health. Of course I dont do what I used to! Yeah, I sleep more. I am not happy. I am not depressed. I am working on contentment each day and embrace the normal range of human emotion that has become pathology. I am disappointed, not depressed. I am not WOO HOO happy, but I do laugh as much as I can. My goal is to be at peace with my feelings. That is contentment for me. I try to learn from loss and from suffering, which is a normal part of life. I try to stay in the middle lane but often have to float back there, cuz as my doc said after bad news, it is okay to cry sometimes. I am not less than i was as a big deal prof, although some may see me that way. I am so much more. Why? There is meaning to be found in what is, and my life unplanned. Fun is important, Connecting with others helps fun be meaningful not temporary gratification. Reaching out to those who walk with me on my journey,gives my adversity purpose. I dont have to be happy or depressed, Sadly, roughly 1/3 of the population is on antidepressants, according to pharmacists. It now has become pathological to feel. Sensitive is better than insensitive. PPl dont know what's disordered, clinical depression, grief, sad, disappointed, happy, fun, damaging highs, content, ok, angry, aggressive, or at peace with the continuum.Ok,that actually is the abridged version, My psychological orientation is highly influenced by Viktor Frankl and Pema Chodron (existential psych and mindfulness meditation). Their books are available on CD.

Joealt profile image
Joealt in reply toSuezqmsa

I don't think that being sad is such a bad thing, considering The State of The World. Being sad shows that we still have standards. Being happy shows that we can still find peace.

Suezqmsa profile image
Suezqmsa

sorry for the typos..hard to read in this window. some prof! Well, I cant work now. So, I am allowed to fail finally! Actually, I am a newbie and this thread caught my attn but I need help and will post my question after I rest.

CheriH profile image
CheriH

I don't know that I'm unhappy. Maybe I should say that I have days that I am down because of the PD....good days, bad days. I try to stay in a positive state of mind. I can always look around and see people worse off than I am. That gives me a swift kick in the rear end when I'm feeling sorry for myself! I try to be happy.

Jerebet profile image
Jerebet

Yes I am happy.Happiness is a choice and I choose to be happy. Anger and sadness saps energy and I want all the energy I can get.

Blondir profile image
Blondir

No.

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