What supplements are you finding that are most helpful?

[modetto]

What supplements are you finding that are most helpful?

[jillannf6]

i have psp a type of brain problem a bit like parkinsons but no meds for it only supplements - i take coq10/utrmeric not that i think they ar ending em any good but it si something to do with my cash i guess!

lol jill

[jillannf6]

i have psp a type of brain problem a bit like parkinsons but no meds for it only supplements - i take coq10/utrmeric not that i think they ar ending em any good but it si something to do with my cash i guess!

lol jill

[mistydog1]

I take a good multi vitamin (equate) brand name every morning. I can tell the difference when I forget to take it. I have a lot more energy during the day and I don't seem to get that feeling of wanting to take a nap by mid afternoon .

[JohnPepper]

Hi modetto. I have been taking chellated calcium and magnesium tablets for over 30 years. They could well have had a positive affect on my Pd, but only a proper trial would prove that. I have recently started to take vitamins B and C and omega 3 pills. I hope this is of interest to you,

John

[gmunsot in reply to JohnPepper]

Hola John.

I am very interesting in what you said about alcium and magnesium, vitamis C and Omega. ¿Thats all? Do you had no taken any medicine for Parkinson in 30 years?

Could you describe to me how is your parkinson sympthoms.

My PD, I think is very light but I take Sinemed and Sifrol.

Thank you very much.

It is important for me.

Guadalupe

[JohnPepper in reply to gmunsot]

Hi gmunsot. I only gave a list of the supplements I take. I took eldepryl for 10 years after diagnosis and have not taken any Pd medication for the past 12 years. I continue to do fast walking 3 times a week for one hour each time and I stay away from stress. That is imprortant!

John

[gmunsot in reply to JohnPepper]

Hola John:

Thank you for the notice, you are very lucky without medication.

Actually I am swiming 2 or 3 times a week, 2 yoga and 2 therapy. I am must better but I affraid without sinamesd and sifrol. About the stress I think in my personal and familiar situation it's impossible. I have and I trying to recover peace after 40 years.

I got a little.

Thank you again.

Regards.

Guadalupe

[JohnPepper in reply to gmunsot]

Hi Gmunsot; I know I sound like an idealist, when it comes to exercise and stress management. My feelings are that we do not have to put up with harmful stress if it is causing us to have health problems. When you think about it; if you were to die, as a result of this harmful stress, would your death be beneficial to the person causing your stress or would the actual cause of the stress still be present? The chances are that the person causing your harmful stress is merely passing the responsibility for that stress onto you. You cannot take away that person's stress, he/she has to do that themselves. Yes! you can provide money to temporarily solve that person's problems but the problem remains and only they can solve that problem. For instance, if the person involved is out of work and you are paying that person's living expenses, it will continue until either he/she gets a job or you run out of money. You can help solve the problem by removing the financial support and forcing that person to get off his/her backside and get a job, albeit something he/she does not want to do. This is just an example of TOUGH LOVE!

Kind regards

John

[Norton1 in reply to JohnPepper]

Good advice John. Guadalupe, if you can get a copy, read any book by Dr. Phil McGraw. It will enlighten you.

Regards

Norton1

[JohnPepper in reply to Norton1]

Hi Norton. What is the subject matter of Guadalupe? What does Dr McGraw write about?

Kind regards

John

[Norton1 in reply to JohnPepper]

Hello John

Guadalupe wrote about stress in her life for many years. Your reply was excellant. There is one book Dr. Phil McGraw wrote that is brilliant, but it's title escapes me right now and I'm away on holiday, but I will email you it in a few days.

That book changed my outlook on life and how the world works.

In the meantime, keep up with what you are doing.

Regards

Norton1

[gmunsot in reply to Norton1]

Thank you Norton.

Please send to me the name and for sure I will look it.

I live in Mexico City, but can use The Amazon service or another.

Regards.

Guadalupe

[Norton1 in reply to gmunsot]

Guadalupe and John Pepper

The Dr. Phil McGraw book I mentioned is called 'Life Strategies: Doing what works, doing what matters'. USA members will know exactly who I am talking about.

Regards

Norton1

[gmunsot in reply to Norton1]

Hola Norton !

Very sorry but I am not a USA member, could you explain a little more about this or is a book to buy?

Regards.

Guadalupe

[Norton1 in reply to gmunsot]

Guadalupe

The book I mentioned by Dr. Phil McGraw is available from Amazon.

Regards

Norton1

[gmunsot in reply to Norton1]

Norton, thank you.

I know that Amazon shipping to Mexico.

Regards.

Guadalupe

[JohnPepper in reply to Norton1]

Thanks Norton.

John

[gmunsot in reply to JohnPepper]

Hola John:

Thank you for your time amd interest in write me. I want to tell you that my constant stress provide from my own family.

Health in my son, kwork for another, husband in control, all of this during forty years. You are right, this is thoug love, but are we sure that is love?

Regards.

Guadalupe

[JohnPepper in reply to gmunsot]

Hi Guadalupe. Tough love it tough to give and tough to receive. The point is that you MUST take action, before it kills you. Whoever is causing it, whether their fault or not, it is they who have to find a solution for it.

John

[gmunsot in reply to JohnPepper]

Hola John:

Thank you for tell me your opinion and I think you are right.

That is a proposal that made myself many times. It is time, I am decided, that my last years o wherever time that I have, stay well because I deserve it.

Any way I'm not permited also, the PD make my life unhappy.

Regards.

From Mexico city.

Guadalupe

[JohnPepper in reply to gmunsot]

Good luck Guadalupe. You do deserve to enjoy your life, and I hope you are able to do so.

Kind regards

John

[laglag in reply to JohnPepper]

John, What dosage of the chelated calcium & magnesium do you take? Is there a certain brand you can mention? My doctor told me to start taking magnesium, but I haven't bought it yet. Thanks!

[JohnPepper in reply to laglag]

Hi laglag. The pill bottle recommends three tablets a day, containing 300mg of calcium (Glycinate) and 150mg of magnesium (Glycinate). I have only taken one tablet a day, for well over 30 years. It is your choice. My wife takes 2 tablets a day, but she is taking no chances with osteoporosis.

Kind regards

John

[Park4me]

I take a number of supplements but feel the best are B complex, high doses of vitamin D, and magnesium, and calcium.

[Balderdash]

Medication is science ,taking PD meds is an art.Stress is part of life,we need to protect ourselves from ít,but for most of us it needs to be managed,dumping it doesnt ofload it.

Supplements whats your justification,there expensive unregulated and have side effects mostly to your wallet.I suggest you read Bernard M Patten e book about health and wellness.A leading expert and neurologist he was part of the team who discovered the treatment for PD.His book is a non promotional basic guide to living, a sensible healthy common sense no costs involved approach to life and wellness ,wherever you are in the world

[Norton1 in reply to Balderdash]

Hello Balderdash

I am intrigued with your reference to an e-book by Bernard E Patten regarding treating of PD. I looked up the name online, but could not find a connection with PD.May I ask you to give the title of the e-book so that I may obtain a copy?

Thank you

Norton1

[Balderdash]

amazon.co.uk/gp/product/B00...

amazon.co.uk/gp/product/B00...

Hi Norton the books are Ebooks Health is Wealth (small changes reap big benefits)

and The Great Crotzias

The author Bernard Patten

My association is entirley"interest reading"

[Kadie57]

I have been using a vitamin B Complex and it has help allot, I now sleep through the night. A rare feat for me! I have had years of not sleeping well, so when I did start sleeping so good I was pleased and waited for it to stop. Sure I still have a night or two that I m up a couple times, but since I very taken The Vitamin B Complex for 2 months it still works. YEAH!!

[laglag]

I was diagnosed with PD 11 yrs ago & most people can barely tell I have it. I take

Vitamin D3, Protandim, and 3 Tablespoons of Coconut Oil every day.

[laglag]

One thing I almost forgot & it's the most important. I've been doing Rock Steady Boxing for over 7 yrs. also. I was one of the "pioneers". It has definitely helped my PD. Check out the website & hopefully you can find an affiliate near you. rocksteadyboxing.org

[earthdweller in reply to laglag]

Hi, I'm new here, and in the early stages of Parkinson's symptoms. (No diagnosis yet, but I have all the typical things going on). Your post caught my eye because I've recently started boxing for exercise and stress relief. I just do it at my home, using an old mattress that's propped up in my room.

I know that stress is an important thing to try to reduce, but I really can't just offload mine, as it's all related to caring for my mum who's very ill. (She has Parkinson's as well as other things, so you see it's all kinds of stressful for me). Punching a mattress helps a lot with this! As does occasional tai chi and walking around the neighbourhood.

It's also helping me to feel a bit stronger. I'm going to look at your website to see how I can improve the boxing that I do. I'm grateful for your post.

[laglag in reply to earthdweller]

Hi earthdweller

I was reading a post from 2 yrs ago & was curious to know if you are still boxing & how you are feeling?

[earthdweller in reply to laglag]

Hi, it's still something that I do at home. I think it improves my strength still, both in my arms and core strength. I'm doing ok. Still not diagnosed but still having many PD symptoms, although mild I suppose. Doctors are saying it's stress, and I do have a lot of stress. Not too keen to get diagnosed still, so trying to work on the stress and keep exercising. Thanks for asking, I feel that it does really help. I'm trying to do tai chi again, which also used to help me. How are you doing?

[laglag in reply to earthdweller]

Hi. Good to hear from you & glad you're doing good. I'm doing fairly well. Still boxing, it's been 11 yrs now. Trying to eat better, as well as taking Vit D3, Krill oil, Protandim, 3 Tbl Coconut oil, 3 Xocai healthy dark chocolates, and Emergen C (has B vitamins, vit C, magnesium & electrolytes). I truly believe all these things (boxing & supplements) have helped me live a better life with PD.

[metacognito]

For the best, most comprehensive list of safe, natural alternatives to the often counter-productive 'Big Pharma' options (with descriptions of how they may help): raysahelian.com/parkinson.html

[shakyj]

metacognito,

WoW! I am more confused than ever, I don’t have enough cupboard space for storage nor the brain power to absorb these supplements. Dx 13 yrs ago with tremor intensive PD, I've had quit a roller coaster ride with Dopamine on and off (mostly off, as it was not helping). I have tried several supplements over the years with no noticeable difference. I eat plenty of berries and fruit and try to exercise as much as possible and am still on my own two feet. Started back on dopamine end of eleventh year. Now I usually take my first dose of Sinemet 150mg with 200mg comtan at around noon, then every three hours till 9pm. Sure feel much better in am’s than pm’s, my doc doesn’t like it but then it’s all about quality of life. I might try Selegiline and dump the Comtan as on-time is shortening, and getting strange uncontrolled movement in right foot into second dose, see what Doc thinks first.