What has PD taken from you that you miss the most and do you envision a way to get it back?

[Jerebet]

I miss my slow swaying womanly walk and I think big movement therapy will help regain some of it.

[Hidden]

EVERYTHING !

[Jerebet in reply to Hidden]

I'm sorry you've lost so much Anthony. We are getting closer to a cure everyday and new therapies and drugs are being developed/ Hang in there. The one thing PD can't take from us is hope.

[Hidden]

My sense of smell.

[chewexpert in reply to Hidden]

Some users of the Parkinson's Improvement Programme (PIP) have regained sense of smell but it does not work for everybody. It appears to be faulty connections to the nasal sensory cells rather than damage to the sensors themselves. PIP is non-commercial trial run by a charity see brainhelp.info

[wacodave]

my voice, especially since i spent 35 years on the air.

[jillannf6]

my abiltiy to swim, amd walk

cannot co ordinate arm and legs so cannot swim and cannot walk without a frame and tend to fo over fwds anyway so walking for pleasure i s out

jill

[LauraT]

My brother has lost his ability to work (IL tollway for 20 yrs), lost his ability to continue as a firefighter (20 yrs of volunteer firefighting service), lost his ability to scuba dive (recreational and underwater recovery....along with being an instructor for all the county firefighters to get certified to dive), he lost his wife to a divorce because she couldn't handle the pressure to dealing with the disease. He has lost his whole self and most of everything that ever meant anything to him. He's 49, and so, so lost. As a little sister trying to help him out, I'm lost too. I don't know where to turn to to try to help him, or get him back out there socially. He is moving into his own apartment Dec. 1 (since the ex got the house). He'll only be 12 miles away from me, but it's still 12 miles.

I think I feel as lost and scared as he does.

[Joealt]

My dexterity has diminished quite a bit. I love to paint, but it takes forever to put my brush to the canvas. I have a blank canvas leaning up against the wall defying me. Very frustrating.

Last summer I bought a guitar and was shocked to find out that I can no longer finger chords properly.

[Hidden]

My husband of 42 years...diagnoised at age 43 and passed away at 64

[Debfrmco]

My self......I miss the 'me' I used to be. I was very outgoing, loved to travel and was actively doing white water rafting in spring and ski trips in winter...none of which I can do now. I have been diagnosed for over 15 yrs and have no ambition, fatigue, no facial expression, low voice and mumbled words, can barely write my name and have on occasion forgot my name when trying to sign a check ..lol...i can deal with the aches and pains...and all the meds and side effects...I just miss the me I once was....

[Susie01]

What bothers me most are the cognitive losses. I always loved to play scrabble, now I find myself wondering if I have spelled common words correctly! Then there are also times that I cannot remember words.

In my job, I had to answer phones while typing on the computer, there were times that I would pick up the phone and not be able to get the words out of the department or my own name...Needless to say, I was asked to resign from my job.

I take B-complex and CoQ10. Example just now, I had to go look at the bottle, I was questioning myself if it was Q10 or 12! I do write everything down and stay organized with notebooks. In the past, I was the one with total recall so this is difficult.

I have not come across any information that I found helpful, if anyone has found something that has worked for them I would love to know about it!

[Hidden]

I miss my friend's happiness

[blackcat in reply to Hidden]

i understand what u are saying because i miss my happiness too. i do have people aaround me that lets me be me and help when i need it but let me ask for it at the same time. other people around try to make my decisons for me they think they always know best. do this don't do that no u can't drive feel more like a prisioner not an adult with pretty good head on my shoulders. i don't want to be made into an invalid i want to fight thihs with every fiber of my being, not told i cant do things for my self and treated lke i can't think even or carry on a conversation because i struggle w words and my worry group has to know why that is even

more frustrating i thank God daily or the friennds that try to keep me grounded and feeling like i use too yes i guess i do miss being just me and my hapiness

[Paul_Dineen]

> I do write everything down and stay organized with notebooks.

Sounds like Guy Pierce in "Momento".

[alanjaye57]

I haven't lost anything-perhaps just misplaced them. Either I'll find them, something like them, or the ability to deal with their absence. As I read what I just wrote it sounds like a crock; but I believe a positive attitude is very important,, and must be kept.

[shasha]

I MISS BEING ABLE TO WALK AROUND THE GROUNDS OF OUR HOUSE HERE INFRANCE AS WELL AS BEING ABLE TO HELP MY HUSBAND WITH THE WOOD CUTTING AND GARDENING

[PatV]

I miss being able to get on subway and be anywhere in a short time. I love the subway (in NYC) . I don't travel well alone and need an escort. I'm afraid of meds wearing off and being knocked over or not being able to get off train or bus. I missed my daughter's Christmas party last night.