I wake up every day and ask : why?

[Joealt]

Why?

[PeggyT]

Why? Because it's called "LlFE," and life isn't always fair. It's indiscriminate. Some get rich, some get killed in car wrecks, some get Parkinson's. I think the bigger question is, "What?" What do I do with this? What can I learn? What will change it? What can be changed and what can't? And what do I do with that? I don't mean to trivialize your question. I, too, have stood in the shower and cried and wished it would go away. But it doesn't, and I don't want to stand in the shower all day, so I dry off and dry my tears and go to the next task.

[srarndt in reply to PeggyT]

Excellent comment...if you don't mind, and i'll gladly not share your name, I will share this with my PD support group!

Thanks in advance!!

[PeggyT in reply to srarndt]

Feel free to share! I'm flattered, and that's what these links and support groups are about, isn't it? Through our experiences, we help someone else find a way through. Thank you!

[Joealt in reply to PeggyT]

You are 100% right. I was in the middle of a Parkinson's Morning when i asked The Question. My day went on, as it always does, and i survived. The reason i came to this blog was to get my thoughts adjusted. Thank you for your insight.

[shasha]

I AGREE TOO - I MAY HAVE MSA AND WOULD BE VERY HAPPY TO HAVE PD - WG=HICH IS AT LEAST MORE TRETABLE AND MORE RESEARCH IS BENG DONE TOO

[Joealt in reply to shasha]

When I'm walking down the street and I see someone who might have a burden, such as Parkinson's, i care about them in a way that I didn't in The Past. I want to tell them that i understand.

[srarndt]

Me too!

Joealt, I like the way you describe your reason for coming to this blog....i will share that with my PD group also!

[PeggyT]

Yes, Joealt, I've had many Parkinson's Mornings, too. Also, many times, like you, I've seen someone having difficulty moving or accomplishing some task, and I've wanted to ask them, "You have it, too?" Would this be rude? Does anyone have any suggestions for how to approach someone who might--I like the way you put it-- "have a burden,"? Got any good pick-up lines? No, really, how do you open the conversation so that we can network?

[Joealt in reply to PeggyT]

Once time i saw somebody in a wheelchair and i came out and said "what's your affliction?". The person smiled a huge smile and proclaimed that they had cerebral palsy, like it was The Most Exciting Thing that ever happened to him. I'll never forget that.

I want to have a tee shirt made that just has the word Parkinson's

[PeggyT]

Cool idea! We should all proclaim boldly our condition: Parkinson's, bipolar, stupid...No offense, anybody. Just having fun.

[Ronald]

A unique and inspiring memoir that captures the resilience of the human spirit,memoirs of hope beyond illness and courage,beyound despair,came crashing down on what seemed a perfect life People alwayswant to read stories of triumph over tragedy.But there is no sugar coating parkinson ther is no sliver lining here.There is anger ,pain and frustration at being victimized by a disease that can to some extent be managed but cannot be cured

Acceptance is a key to defusing anger stress selfpity. If you measure the quality of my days today you will always find them wanting,your challenge now is to make the most of your days by a new standard to find new pleasure within whatever boundaries imposes You have a defender who knows your name who fights on your behalf He surrounds you with love fortifies you with with favor,keeps you in his care You are not alone as you face this battle

Many prayers and much love are with you