Sure I have PD and it has been a real pain in the butt to say the least. All I have lost and gained nothing but more pills than all 4 of my grandparents combined ever took. I laugh it off all the time and try to stay as upbeat as possible but we are all human and I have my days does just as anyone.
I saw this segment when it was broadcast a couple of weeks ago and it really hit me in the stomach. Just another way to point out how good we got it. For somewhere out there is a person who is far worse off then we are. They need not be sick or have PD or cancer or any type of medical condition at all. My condition is so trivial compared to some in this world and I am almost ashamed to complain about mine. I pray for those like these.
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When I was diagnosed a few years ago my Dr. said I had the best neurological dysfunction you can have. Well now wasn't that a comfort. I've always said Pd is a very punishing disease. I really mean that still todaey.
I consider myself to be lucky that I got PD. If you take the small group of neurological diseases that are very similar in origin but so different in outcome, I am lucky I did not get MS. I would be sitting in a wheelchair now, watching my body shut itself down, and knowing that it is going to kill me. I am also lucky that I did not get Alzheimers, and spend the last years of my life watching my brain gradually dump all it's memory capability until it eventually kills you. (rather like F-disc on the computer, but not just as fast).
So, the third option was PD. I am lucky. there is plenty of successful research going on, the effects can be controlled to an extent, and it doesn't kill you.
Yes, I thank God that he chose PD for me. Yes, it is hard work, but that is God's normal attitude - work for what you need and I will give you the Manna from my table.
Yes, that is it. We sometimes forget in our bad times that we could really be a lot worse off if the chapter were written a little different. I will take PD any day over having the life of a 13 year old boy turning in his mother and brother to be shot for a full stomach. Or as you say Adrian about MS and Alzheimer's, no that is a far worse sentence. At least we have a light at the end of our tunnel, even if faint.
Life is a game of cards. Some people get a lucky hand, others get knocked out early, some of us play on with a dicey hand we never quite win, but we manage to finish the game.
I agree, if ever I'm feeling a little down or frustrated with PD I just tell myself "Hey! come on there are people out there much worse off than you, snap out of it!" then all of a sudden all is right with the world again.
Yes PD is a hideous invasive, progressive neurological condition but my god it could be a whole lot worse.......we were dealt a pretty good hand I say.
Hi Andy. I totally agree with what you say. Sometimes i feel a little bit depressed that i have PD and say to myself, hey there are people out there especially in this group that you can talk to so that i do not feel alone. Yes, there are others out there who are a lot worse off than us and that as long as i have both my legs i will get out there for a walk and as long as i have a tounge in my mouth i can talk about how i feel. Thank God i have an understanding family around me.
I am seventy and have dealt with PD for 5 years. I had six brothers. My oldest brother died at 52. He had MD. On my worst day I feel better then he did on his best. The next brother died at 23 of cancer. My next brother died at sixty after a twenty year battle with heart disease and leukemia. My next brother died at 42 of brain cancer. My surviving two brothers have the normal challenges commensurate with their age. I am not happy about having PD but I have witnessed much worse things.
I am fortunate not to have the movement challenges (yet?) that some of us have. I can and do still run. I have donated my medals to Medals4Mettle, whose slogan is "Someone is in a tougher race than you are today". That remains my philosophy. The blessings I have lost have helped me gain deeper appreciation for the ones that I continue to have. I do not know whether I am optimistic because I am not depressed, I am not depressed because I am optimistic, or perhaps just delusional. The last thing I would ever wish on my family is myself with PD, but I am trying to make the best of it.
"If all our misfortunes were laid in one common heap, whence every one must take an equal portion, most persons would be contented to take their own and depart." Socrates
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Can someone please tell me: How did I get here?
Sexually speaking can and will you discuss openly your sexual feelings and experiences during your tribulations with PD.
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Can I be fixed?
