SEX. Yes, SEX, not a typo here. I think It's about time we start discussing more about PD and how it affects our own personal sex life [nothing graphic or in details ] but rather an intellectual and stimulating conversation about how we are dealing with our sex life, how has PD affected us sexually and perhaps emotionally, how has the use of dopaminergic medications changed our sexual behaviors, any questions or concerns imposed by our spouses or other loved ones, any unusual experiences both positive or negative as a result of PD and our sexual libido, do our treating phyicians asks pertinent questions, do you believe that your physician actually cares about and inquiers about any sexual dilemmas attributed to PD and have they taken appropriate measures to help and/or counsel us regarding any unusual sexual problems or concerns?
It appears that we are somewhat reluctant to discuss this personal and sensitive issue at hand out in the open or, rather, we just choose to avoid this issue for possible fears of personal disclosure, retribution or absolute shame in sharing with others; yet, sex remains to be a very important and fundamental aspect in our lives as natural human beings regardless if still active or inactive for whatever reasons. SEX, is a fundamental life given need and entity inherited in all of us and hopefully remains just as important, active, and healthy strong both emotionally and physiologically speaking.
So lets all lower our inhibitions and lets openly discuss our current active or inactive sexual situations as it relates to our PD and hopefully enlightened/educate others about our sexual triumfs or tribulations no matter how good, average or bad they may be. Just in case you are wondering why I haven't disclosed my sexual situation in this topic for starters, you may well find my side of this equation on another topic which I have replied previously. If interested I suggest you go back and find this topic from my profile somewhere as I cannot remember off hand whose topic I replied too. However if you just want to go ahead and take the initiative please feel free and discuss your sexual situation without reservations and help this topic take off on a good and interesting note for all interested parties.
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ma4PDcure
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Since about 1 and a half yrs b4 diagnosis, it has died totally. I had blamed it on excessive long term pain medication and major marital difficulties, but the marriage went down the pan big style when she got drunk (every night) and finally attacked me with a kitchen knife because 5 cans of strong beer was not enough, and I refused to go and buy her more. And the pills were changed a year ago. Many things have come back to "normal", but not everything yet. I live in hope, and there feels like light at the end of the tunnel.
Have tried to avoid giving offense to anybody, but sincere apologies if I did.
Sorry if I am blunt BUT- My husband has PD and suffered from ED for years before his diagnosis. We tried every pill , device and injectable on the market with 0 success. He finally had a penile implant 2 1/2 years ago. It has helped us both emotionally even though he is unable to climax, at least he has pleasurable sensations..My only complaint is that now he seems to be trying to make up for lost time and my libido is not as strong as his.
I nearly had to look it up in the dictionary it's been that many years since I asked ''And with whom am I having the pleasure''?
yes I agree, a healthy sex life in any relationship is important. But after years of marrage people get lazy, add on Parkinson's wow, PD & sex don't go together! But they can, if YOU want it too. At 60 next month , had PD for a good 10 years, I feel it is up to me to let my hubby know "When I'm in the mood". It helps with a good nights sleep & also remember when you were young a "Quickie" on a Saturday afternoon when the kids were out? Why not if your body works better in the day... go for it.
I had a great relationship the best of my life in my 60's after I was dx. Unfortunately he passed away suddenly from lymphoma. Happy we had that time together. I'll be 72 next week and interested but my libido has declined a little since my hernia operation. Wish my doctor would prescribe a "Work out partner"!
At just 47 and being married for 12 years I still have all the desire, function and passion for my wife I always have, thank God PD has not taken that from me. However since being diagnosed are sex life has become a non factor in our marriage. My wife has no desise or feelings of sexual needs whatsoever. Says that it is not me but our relationship at times seems more caregiver/patient. When I try to get romantic, I am hit with the " you are the only one getting anything from it". How do you answer that? Friends have advised her to got see a dr, could be hormonal changes but refuses. With PD taking so much from me already it seems this is just another to the list. So very sad.
I'm 54 when i had a partner we worked around my not being able to move like i use to but i wonder sometimes if my needs were fueled because of requip. I don't know before my boyfriend traded me in we found mornings with all meds working or to just roll with it whenever mood hit him as for me always in mood but alone now.
I have always had a high libido and have not had sex with a partner for six years. My PD diagnosis was one year ago at age 51, although I had been symptomatic for almost two years before that. A late bloomer, I am blessed with a sex-positive mindset, and I believe that the mind and spirit are as important as the body. I enjoy self-pleasuring, and my current combination of meds seems to make me hypersexual, which is not a real problem! I am currently in touch with an old lover who lives in another state, and he has been very encouraging about regaining my sexual confidence despite the changes in my gross motor skills, balance, body image, etc. I still have great orgasmic capacity, and I like to believe that the extra dopamine released in orgasm does me good! I know things can and will change as time marches on and this disease progress, but for now, I am grateful for what I can still enjoy, As author Susie Bright says, "No one suffers from poor self-esteem at the moment of orgasm.".
I guess I am different. I was ( forgive me for being blunt) horny, before and now I am more so with my pd. but my doctor says I have a more aggressive form of pd than he has ever seen from any of his other patient's. cannot explain my on reason. Anyone else strange as me?
Are you on any PD medications? As for me, yes, I too have become extremely horny since I've been taking dopamine replacement therapy. My wife has been unable to keep up with my heightened libido and as a result I have had to revert to online porn and self-gratification to fulfill my immediate sexual needs almost on a daily basis.Wow! I hope we are not the only ones here to make such an open minded self proclamation and hope that others will surface and openly discuss their sexual behavior changes bluntly if you wil.
Mirapex has done the same to me. 54 with the sex drive of an 18 year old. Wife can not take it as often as Mirapex wants it - which is about 2-3 times a day....you read right! A quickie for me is about an hour. I switched to Requip last week and so far no change at all except I am taking naps all the time...
We've been married 24 yrs this month, but this was by far the most difficult. I've had PD for about 6 yrs., diagnosed in the last three. My husband works away from home and we go about one to two weeks at a time without seeing each other. We held it together with mutual love for years. We were so happy. Then he just became angry at my disease, always being symptomatic. He said he wanted his old wife back. That's when we hit bottom. I just had DBS in July, and he stuck by me 100%, but the heat was gone, I thought for good, and we had had a lot of heat.
Since my DBS surgery I have reduced my daily drugs by about 1/2, and they predict that I will be working with even less.
Let's just say the temperature is up around here, and it seems our bond is repaired for now. My biggest fear is that when the disease starts to take over again, we know it will, will he be wanted that someone else I've lost again.
THank you all for sharing this very important part of our lives. I can;t imagine a greater function as a human being than sharing intimacy with another human being. IF one belives in God, what a gift HE gave us when he made us sexual beings. TO be rejected is earth shattering but to be desired is the peak of positive recognition. My husbnad and I were great lovers until he got diabetes and I got PD right around the same time. I used to be able to turn him on and we would enjoy each other. BUt lately he doesn't see me as a turn on. I have maintained a good weight, am fairly good looking but he looks the other way. I have even had offers from other men, but only want my husband, I think my meds have made me much more in "need";l of a good lay in the hay but i can't be sure.
Finally off the mirapex for the past 3-4 months. Now I can truly say that my impulses ( sexual urges ) have drastically subsided. Not 100% but more like 85-95%. The remaining small percentages could arguably be due to continual intake of carb/levodopa dosages and/or just having normal testosterone levels. But the main point I want to make here is that dopamine agonist medications did indeed played a huge role in developing ICB in my situation and that it can significantly diminish and eventually control your particular impulses once the dosage is reduced or discontinued all together.
I don't know what you are talking about, No problems with me
yea thats right, sure. No problems
just like I was still 18, no problems at all
yea thats the ticket
Why, what have you heard
other guys maybe, but not me, I am fine, wife is fine, we are all fine , fine yea
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23andme Trial - It's free to anyone dxd with Parkinsons. This will help with researching a cure for PD and provide info to you personally
UPDATE: Dad's Surgery on Broken Ankle Bone and Resulting PSYCHOSIS. QUESTION: How do you deal with Episodes of Hallucinations & Delusions?
Dr Espay - The missing ingredient for successful disease modification in PD - Recording available
Categorize Differences ? 
High stress and 1st freezing episode?
