restless legs syndrome: anyone found... - Cure Parkinson's

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restless legs syndrome

alanrob profile image
22 Replies

anyone found anything that gives relief from this,i cant seem to relax my legs at all these days.

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alanrob profile image
alanrob
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22 Replies
alllowercase profile image
alllowercase

Officially, no, but maybe once in 5 or 6 months I take a single measure of brandy. Any more and it interferes with all my meds. The relief is only for one night, but even that is bliss.

It works for me, but might not work for anybody else.

alanrob profile image
alanrob

Thanks for that,i may not be able to stop at a single,lol.

JennyR profile image
JennyR

My foot and leg cramps were so severe, I had them day and night. My neurologist suggested taking Calcium Plus powder made by Ionic Fizz (Essence Labs). It is a perfect calcium/magnesium ratio with every co-factor needed for strong bones. and most importantly - it works with just minutes of taking it with 6 oz. of water. It is available in health food stores and is expensive: $29.98 for 7.41 oz, but worth the loss of pain. Good luck.

JennyR profile image
JennyR

I failed to mention the restless leg syndrome. Quiets that in less time. Sorry for the omission,

alanrob profile image
alanrob

thanks jenny i,ll check it out.

My husband messages my legs, most of the time that helps. I also found out I have very low iron. Iron supplements have helped a lot!

wifeofparky profile image
wifeofparky

I know this sounds weird but a pharmacist who writes a newsletter, said to but a bar of soap between the sheet and mattress in the lower third of the bed.. We tried it and it works. We haven't needed to do it again but if the cramps and pain come back I will replace the soap i our bed.

in reply towifeofparky

Didn't work for me. :)

frito1 profile image
frito1

I too have restless leg syndrome, I take pramipexole (generic for mirapex).1.5mg.I only have to take one @bedtime so I can sleep.

Pete-1 profile image
Pete-1 in reply tofrito1

I was originally given Pramipexoe as a treatment for PD. When trying to cut out this drug I found that I had RLS although the most restless part is my arms, mainly the left one. Sleep is practically impossible without the Pramipexole. To treat RLS only the dose can be the lowest dose tablet available i,e, 0,18mg, taken before bedtime. My dose is rather higher than that as I take it to treat my PD as well.

Jose profile image
Jose

exercise, stretch and keep the legs moving. Try acetaminophen extra strength,Oxycodone 5mg,Mentax, Carbi/Levodopa 50/200 and 25/100.Trazodone 50mg, Tramadol 50mg, Use the medicine as agreed upon with your pharmacist, primary care physician, and neurologist as to time frequency and amount. Keep on experimenting with drugs, etc., until something works.

Jupeter profile image
Jupeter

Ropinirole works for me. I take 1 8mg slow release in the morning, then 1mg at bedtime. If don't take the 1mg then it is a 50% chance that my thigh muscles start twitching.

shasha profile image
shasha

i used to get rls and my uk doctor prescribed quininee which worked but now i dont get it at all and take nothing - this was a long tme before i was dx with pd

Pete-1 profile image
Pete-1 in reply toshasha

Quinine must not be taken with some PD drug - can't think which one offhand. I also take Warfarin so it might be that instead. If I remember I'll check myself later.

Check the patient information leaflet - should specify such problems even if it doesn't say why

shasha profile image
shasha

that should be quinine

MGirardi profile image
MGirardi

I used ot take nightly extremely hot soaking baths for about 20 minutes. Now, I use RX

neurontin, or temazepam, or xanax to knock out the RLS and knock me out too.

alanrob profile image
alanrob

I take temazapam occasionally at night but cant take it too often as it gets addictive.

LJ123 profile image
LJ123

My husband suffers from RLS, too. He is on 300mg of gabapentin 3x daily and it really helps.

Loika profile image
Loika

Jose mentioned Tramadol. My Internest had prescribed Tramadol for pain & my Neurologist said no way was I to take that.Said it messes with your brain. I sure don't want that ! Guess we have to do some research on our own sometimes. I still use 400mgs.of vitamin E in the morning &400mgs. at night, plus Magnesium &Calcium for RLS. Maybe this would help someone . We're all different on what works.

If you buy supplements of any kind go to swansons.com! You can buy most that I have needed at half the price of a health food store and if you order a certain amount and some days they have half price items and free shipping! Just FYI! Check it out!

ivyanne profile image
ivyanne

.. it's funny but soap between the sheets works for me..

rainyat10 profile image
rainyat10

vitimun B1 yes know lots of people that have it

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