PARKYS WITH SYMPTOMS THAT HAVE NOT CHANGED FOR YEARS ARE YOU SLEEPING 6-8 HRS, PLEASE COMMENT

[professor]

SOME PARKYS HAVE THEIR SYPTOMS UNCHANGED FOR YEARS

COULD THIS BE DUE TO NOW SLEEPING WELL

PARKYS WITH STATUS QUO SYMPTOMS

CAN YOU CONFIRM YOU HAVE NO SLEEPING DIFFICULTIES AND GET 6-8 HRS EVERY NIGHT

PROFESSOR

[wordworks2001]

My PD is very slow in progression and although my symptoms have gotten worse over the years, they aren't much worse than when I started except for balance problems which have been adequately addressed by using techniques discovered in physical therapy and an overactive bladder which makes me get up several times at night to use the bathroom. I have not slept more than three hours without waking up in years. I was diagnosed 15 years ago.

[CJ49]

I was diagnosed with PD in 2005. The progression is very slow. I started out with Amantadine and carbidopa-Levo.....then added Azilect.

Sleeeping is "not" one of my strong points....(usually not more than 3 hrs. a night....this runs for 3 days straight, then on the fourth day I sleep better...just because of "sheer exhaustion".

During my last visit to my PD doctor ( 2 days ago) he prescribed Trazodone 50MG tablet....I haven't tried it yet.....I hate to start another drug, but my "dark eyes" have to go!....may try it tonight.

[jjmoore]

my husband has had parkinsons for about 4 years now yet he can sleep for 8-10 hours no problem. Wish that I (as his carer) could say the same. Also has his movement is affected and he can't turn over in bed, he is still in the same position the next morning. Don't think thought that this is a good thing. Joan

[PatV]

I'm sleeping better thanks to clonopin, valerian and melatonin. PD progressed big time last year. I am fighting my way back with diet and exercise. But I'm not back where I was. When I can ride the subway alone, I'll know I'm back where I was.

[JerriB]

I was diagnosed in 2009, but my Neuro said I probably had PD for a couple of years so my best guess would be a total of 5 years with PD. My symptoms are slow in progression, with right side tremor of hand, leg and foot drag and no sleep. I also suffer from ocular tremors, pain, and cognitive problems.

I started with 50/250 Carbodopa/Levadopa ER and Tizanadine. I also was taking trazadone which helped me to sleep for about 4 hours, but it caused me to have extreme nightmares that I thought was real. I changed to Lunesta, but did not take it every night. I started Azilict in 2010 and everything changed. I was able to cut down my Carbodopa/Levadopa to 3 pills per day, from 4. I no longer need Lunesta, and I sleep about 6-7 hours per night. Once in a while I will have a night where I only get 4-5 hours sleep. But not very often. One thing I think helps is my activity level picked up when I started the Azitlect. I now can go most of the day, of course pacing myself, but I am getting to do more things.

[Norton1 in reply to JerriB]

That is an inspirational story JerriB. I was on Amitripyline to help me sleep and they helped me to get about four hours, but they caused me to sweat in bed so much. I stopped them. The fact that your sleep appeared to have improved when you started Azilect give me hope that I can improve my sleep via the same route. The extra energy would be a bonus.

Thank you

Norton

[maryalice]

I've had PD for about 14 years. I worked for 5 years after I was diagnosed and then retired. I really did pretty well until about 1 year ago. Now I'm having trouble doing just about everything. I'm not on l-dopa drugs, but I've used some alternative therapies. I've been taking mirapex and amanadine also. I've be blessed with not having trouble sleeping. I usually sleep through the night. Sometimes I may wake up to use the bathroom, but I'll fall right back to sleep.

I usually sleep more than 6 hours a night.