Almost without exception sleeping difficulties are what results from contracting PD
THIS IS WELL ESTABLISHED,, OH YEH
After consultation with American medical journals on sleep , THE BELLS STARTED RINGIN
NORMAL SLEEP HAS 4 CYCLES , EACH CYCLE DIFFERENT THINGS HAPPEN IN THE BRAIN, PROVIDED THE CYCLES ARE COMPLETED
YOU COULD SLEEP 8 HOURS AND NOT COMPLETE THE 4 CYCLES,
I KNOW THE ONLY NATURAL RELIEF I GET IS BY GETTING A HIT FROM SLEEP
BUT I CANT MAKE SLEEP HAPPEN
THERE IS A REPAIR CYCLE, WHICH REPAIRS CELLS ding ding I DISCOVER
parkys dont sleep so the cycle never gets a chance to work RECOVERY NEVER HAPPENS
LIKE A CAR BATTERY THAT IS NOT BEING CHARGED, IT LOSES ITS ABILITY TO BE CHARGED AND HOLD THE CHARGE, AND THEN IT GETS WORSE
LIKE WE DO
I BELIEVE ONE REASON WE DEVELOP THE DISEASE,( OTHERS MAY ALSO EXIST)
PD RESULTS FROM THE SLEEP CYCLE NOT REFRESHING OUR ELECTROLYTE
OUR SPINAL FLUIDS, WHAT COULD BE CALLED THE BODY ENERGY SUPPLY COMPARING NORMAL PERSONS ENERGY STORE/ELECTROLYTE AFTER SLEEPING,,TO A PARKY WILL IDENTIFY SHORTFALL,,,,, YES A TEST TO PROVE
THE COCKTAIL OF ENZYMS PROTEINS HORMONES, WE NEED TO FEEL WELL
THE REASON COULD BE WHY FLUIDS ARE NOT BEING PRODUCED OR REFRESHED IS STRESS BEREVEMENT LIFESTYLE DIET . THE 4 CYCLE ROUTINE IS COMPRIMISED A BACKLOG OF CELL REPAIRS DEVELOP, SLEEP NEVER RECOVERS, YUR A PARKY
RECOVERY MAY NOW BE POSSSIBLE
THERE IS A MACHINE FROM USA AN ELECTROMAGNETIC PULSED SLEEP ENHANCER THAT IF IT DOES WHAT IT SAYS ON THE TIN MAKES YU SLEEP 4 CYCLES ON DEMAND , NO MEDS
IF YOUR BODY ENERGY SOURCE/ ELECTROLYTE CAN BE RESTARTED BY USING THIS RECOVERY WILL COMMENCE
AND I GENUINELY BELIEVE A MAJOR STEP HAS BEEN MADE HERE
IT MAKES S.ENSE AND I HOPE ITS THE END OF A LONG UNSOLVED MYSTERY
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professor
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Very cool, nutty professor. I don't sleep more than 2-3 hours a night in a broken pattern. I think the energy you refer to is qi< perhaps meditation can restore some balance to our broken lives..I go crazy if I take any sleeping pills!
I sleep very well thank you, unless I'm too warm or need to go to the loo. I sleep especially well if I have a daytime snooze.
Off topic but I was just wondering if you and some other folk on this website too are aware of the convention in various public forums, chatrooms and the like of using capital letters to indicate that you are shouting.
If you are aware then please don't be rude and if you are not aware or even if you are aware I wish you wouldn't because it makes it more difficult to read your postings. Sometimes with a post completely or mostly in upper case I can't be bothered to read it for that reason/
WELL PETE I AM SORRY THAT YOU THINK THAT I AM SHOUTING AT YOU - I AM NOT - BUT IT DOES HELP ME TO TYPE IN CAPS AS I CANT DO THE UPPER AND LOWER CASE SHIFT AS I TYPE WITH THE ONE FINGER ON MY RIGHT HAND THAT WORKS - SO SORRY IF YOU CANT BE BOTHERED TO READ THIS BUT I HOPE THAT THERE WILL BE SOME WHO CAN
If there is no intention to shout then you are not shouting, well only inadvertantly. I think you were probably unaware of this convention and it s only a convention and a short post such as your one above can be read before my eyes lose their focus. As well as finger trouble when typing that I have to constantly go back to correct also have PD affected eyesight that doesn't help when reading. There's just something about uppercase that makes it less easy. Presumably something to do with white space between lines. Anyway, I think you have an overriding reason to continue using uppercase.
It's a funny old business this sleep problem amongst some of us with Parkinson's. I have gone for three days without a wink of sleep on several occasions whilst trying to get off sleep medication, but I have achieved a modicum of decent sleep through cognitive behavioural therapy and I am now free of sleeping tablets. However, I still only get three to four hours each night and up to an hour in the afternoons which I am grateful for! I have read many times that insomnia is a feature of Parkinson's but I wonder why it is that some PwP can still get a full nights sleep whilst others of us can not! My insomnia preceded other symptoms of my Parkinson's and it makes me ask if the lack of sleep actually caused my PD. You mention hypnotherapy and I see that you are trained in this, but I have tried numerous CDs all to no avail.
Glad the CBT is having some effect Norton. Still early days I guess as changing years of a sleeplessness pattern wouldn't happen overnight but it seems hopeful.
I was interested that your insomnia was a very early symptom so could lack of sleep cause PD you ask. Alternatively could it suggest that the part of your brain that is most affected by PD is also the part connected with sleep. There are a variety of early and later symptoms and why do some get one symptom and others another. I imagine it is to do with where and to what degree exactly each individual brain is damaged.
It is certainly perplexing. All I can say is that I am in a better place now than when I started several weeks ago. If there are any other PwP on sleep medication who want to know how I managed to get off the tablets and actually feel tired when they go to bed, then please ask!
I did mention to you previously that I would consider writing a blog after a few weeks. I have never written one before, but since I know that you would be interested, I wil have a go within a couple of days. Thank you for your interest.
Hello DeParkiePoet, I have written a blog about my experience. If you go to blog and look for 'goodbye sleeping tablets, hello natural sleep' you can read all about it. May I suggest you read the thread in its entirety. Any questions you may have, please ask.
I would be interested in more info about this machine. I do not get more than 3-4 hours of sleep a night & even that is interrupted. I nod off at work & while driving & yawn almost constantly. I usually have no problem falling asleep, but just can't stay asleep.
Professor, what website did you get this info from. There is so many devices that are popping up when you Google "ELECTROMAGNETIC PULSED SLEEP ENHANCER" and brings up some other therapies like Static Magnetic Sleep Systems and Earthing... Does this machine help PWP.? What symptoms does it relieve? And for how long?
My hubby has only just been diagnosed and only been on meds for 1 month, but he sleeps loads.!!!!! Does this mean that he will catch up with you all at a later stage?? He gets about 8/9 hours at night and can have a small kip during the day. He has always been a good sleeper. I on the other hand have had years of terrible sleeps, maybe I am having the effects whilst he has the PD. That would be a good one for the Guiness book of records. Lol!!
to expand on whats written, i can sleep for say3 hours wake up completley knackered
or sleep ffor 5mins and feel refreshed, the time you sleep does not always mean aproper sleep,has your husba\nd had a stressfull job or experinced a trauma an unhealthy diet, or berevement or a shock to his system does he work in a job with a toxic environment, one of these possibilities is perhaps the trigger
He worked for 21 years in a factory making busses (Leyland Bus Co.) Then became an Insurance agent driving around in traffic but took early retirement and became a Gardener for the Elderly. But the only shock I can think of was to find his mother dead in her bed and having to try to resusitate her via phone call to the emergency services!! Could any of this be what you mean? Thanks
Percy P If you are looking for a cause you have the problem of proving any of the above ideas. As well there is his treatment. New drugs take a bit of getting used to and some can make us sleepy. Depression which often goes with Parkinsons also can also be a cause. Personally unless it is a problem, I don't think it matters why he sleeps so much, just enjoy it while it lasts!
Prof you write of the necessity of completing 4 sleep cycles so i was interested in reading about them but it appears eveyone has different ideas on it. I've seen articles describing three four and five cycles or stages so far. I wonder how much we really know about sleep?
alfa beta theta delta( see earth pulse website)we can by ( "hey maahn") xdrugs enter into regions of the brain, that are normally locked.we are just learning,about this
neuro chemistry will tell you the mechanics ,why not buy a sleep machine if it does not work return it for refund. the chemistry that goes on upstairs is complex but not faultless.PD develops due to diminishing neurotransmitter in brain region that coordinates motor control "substantia nigra "the neurons( nerve cells)synthesis this hormone that is like the pony express, , it provides
communications tx & rx,. dopamine the name,WHEN the dopaminergenic cells start to fail
the supply of dopamine diminishes, fine motor control goes, and the speed you go
for a peepee can get quite brisk. the dopamine supply the body produces from tyrosine
an amino acid, the body produces from food, you can increase te supply naturally by diet, quickly good stuff , vit d c b3 sunshine, bad stuff protein sugar..look it up, make your own personal PD diet, laughing and sleep the other main factors.
The cause of PD I will have soon, but
sleep can repair you along with diet , but takes time
look at american journals on sleep but sleep produces replenishes body hormones, enzyms and 22 letter medico techna labelled chemicals, ONLY A comedian would name,best treatment for quick recovery, is neuron grafts, which are ten years in trial,A sminky problem exists, SOME of the new cells get affected and die, but again the reason i will have soon. my SLEEP BLOG is pretty accurate but lacks finite chemical
descriptions, i hope this is useful to you,
my theories were initially LAUGHED AT ..but not now
i will come up with a proposal A THEORY based on whole system possibilities
WHAT REASONS WHAT CAUSES US TO contract the horrible life sentence it gives
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Don't keep fixating on dopamine to alleviate your lack of energy.
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