Good News: Here is an article I found on... - Cure Parkinson's

Cure Parkinson's

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Good News

Brooke profile image
23 Replies

Here is an article I found on the Michael J. Fox Parkinson site. I think this could be good news for those of us that take our med every few hours.

blog.michaeljfox.org/2012/0...

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Brooke profile image
Brooke
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23 Replies
Beachdog profile image
Beachdog

Looks good ... except I am paranoid about using an agonist. I just "know" I would be in the 22% that experience compulsive behaviors :(

Brooke profile image
Brooke in reply toBeachdog

It sure would be nice not to have a lot of off time.I think it would be worth a try.If you get compulsive behavior you can always stop using it, Sometimes my meds make me feel like I am drunk but it sure is better than not being able to function.

PatV profile image
PatV in reply toBeachdog

I KNOW I am!

Carrigan profile image
Carrigan

It sounds worth well looking into, thanks for info

Brooke profile image
Brooke in reply toCarrigan

You are welcome. Lets hope this will be a blessing to a lot of people!

Moderator_1 profile image
Moderator_1

This is good news at last for the US.

The patches are already available in UK and Europe. You may find posters here who have been using them for a few years.

jimsey profile image
jimsey

I have being on the Nupro patch for 3 years and can only confirm that they work .Only snag is the patch can cause skin problems if you don't rotate the area of use.

Looks like something to get excited about. Helps PD and RLS, wow. :)

Will the patch be all that is needed, or will we still need to take other meds?

shasha profile image
shasha in reply to

IN ANSWER TO YIUR QESTION -IN THINK YOU STILL HAVE TO TAKE SOME OTHER MEDS TOO AS I AM ON STALEVO FROM TODAY/TOMORRIW AND MODOPAR

GTHE PHARMACY DID NOT HAVE THE DRUGS I NEEDED SO WILL HAVE TO WAIT YILL TOMORROW !!

in reply toshasha

We now order my Stalevo on line.

Last fall I had to wait 3 weeks to get my meds.

shasha profile image
shasha in reply to

WOW THAT AWFUL

shasha profile image
shasha

hi i have ben in them now for bout 6 months and have found that they do not have any undesirable effects at all - mind you i dont see any beneft either - i must be the only person who does not feel better .....

shasha profile image
shasha in reply toshasha

that reads really badly - i am at a loss as to why i dont feel any benefit from all the stuff i take

Brooke profile image
Brooke in reply toshasha

I pray most people can do well on this. We are all in this together.I like to think positive. I will pray for you Shasha.

shasha profile image
shasha in reply toBrooke

THANK YOU SO MUCH FOR YOUR KINDNESS AND PRAYERS IT MEANS SUCH A LOT TO ME TO BE PART OF THIS WONDERFUL GROUP ##

XXX

PatV profile image
PatV in reply toshasha

hmmm. I am tempted because of how horrible my legs feel at bedtime. I take other controlled substances that do not have the bad effects the agonists have. But I wish I didn't have to.

shasha profile image
shasha in reply toPatV

I USED TO HAVE RLS BEFORE I WAS DX WITH PD = MY DR IN UK USED TO PRESCRIBE QUININE

shasha profile image
shasha

GO FOR IT PAT V

CheriH profile image
CheriH

Thank you for the info, Brooke. This is encouraging! Maybe this is exactly what I need. I'm having a difficult time finding the right meds that do not wear off between dosages.

Thanks again!

Cheri :)

Brooke profile image
Brooke in reply toCheriH

Glad I was able to help with the info. I also have a problem with meds wearing off I am hopeful. God Bless. Keep a good thought.

Moderator_1 profile image
Moderator_1

.

Neupro patch is a dopamine agonist drug like ropinerole and Mirapexin. Unfortunately all dopamine agonists potentially have the same side effects.

The patch is used in the same way as other agonists. That means the patch may be used alone especially for early treatment then if symptoms are not controlled adequately other medication will be added, usually L-Dopa (Sinemet, Madopar or Stavelo).

Brooke profile image
Brooke in reply toModerator_1

Thank you Moderator,I will check with my MD I take Mirapex now with no side effects.

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