I was diagnosed with PD and Fibromyalgia at the age of 34 (i am 39yrs old now). For the past month I have been in chronic pain... my muscles are sooo tight and constricted in both legs... always cramping or having muscle spasm, burning sensation /tingling. My feet are frozen even with socks on .. I have to stay in a heating blanket or my legs get frozen as well. My back and arms are just really sore and I am very sensitive to the touch... I went to the hospital and when they put the blood pressure strap on my arm I thought I was going to die the pain was too much to bare . I know this is more my Fibromyalgia but wondering if anyone else is having these issue or maybe this is totally something else??? and we Parkies all know if you get sick with something else like a cold your PD goes into high gear.. so yeah been fighting the fibro, pd and now chronic pain.. I am a mess!
I have been having alot of trouble with my neurologist in helping me find out what is causing the problem... all they want to do is give me higher dosage of my current medication (on both cymbalta and lyrica highest dosage) or change the pain pills( on baclofen and percocet), so feed up with how they are treating me my primary is referring me to the University of Denver hospital in April (earliest they could get me in) due to the chronic pain i've had to take a leave of absence from my job for 2 months... I really think this is more then fibromyalgia maybe a muscle disorder ... just want to stop hurting... all suggestion are appreciated!
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TaniaV
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Hi TaniaV, if it is PD it will be dystonia which is normally caused by the PD meds if you have been on them for at least 8/9 years (average). It is extremely painfall. Painkillers won't help. It usually subsides after about 1/2 hour. Heat pads help me but until you see the medical people you can't be certain. Bad circulation has nothing, as far as I am aware, to do with PD. Look up dystonia on Wikipedia. for further info. I wish you well
Hi Drew... I am only on mirapex for my PD... due to the side effects of the the stronger pd medication I am trying my best to hold off on taking them as long as I can due to my age. my problem is it doesn't subside for hours ... and not sure if that is normal?? I am just hoping that the specialist at University of Denver can help me
Hi CJ49 oh believe me if I didn't have the pain medication I couldn't walk either..i can't sit or stand for long periods since my muscles are constantly contracting... I am sorry about your cancer... hope all is well with you .. thanks for your response
Sounds dire, Pain is common in Pd. and of course it is pain in the muscles. I had a painful shoulder for 10 years which has gone with medication. I know it is not nearly what you describe but all the same I can't help but wonder if you are undermedicated. Best wishes.
I'm not taking any of the other stronger medication either. I've had PD for about 14 years. I've been taking Mirapex and Amanadine. My family doctor who is an MD also believes in alternative treatments . She suggested that I take fish oil, and a product called Corvalen. It really helped me with my muscle aches. I order it direct from JESorganics.com if you interested.
My neurologist keeps throwing medications at me also, so I'm looking for a new neurologist who is a Movement Disorder Specialist. [which I learned about on this site]
Does the corvalen really work, the back of my ankle is getting tight due to my foot turning in a bit and don't know how to get that tightness gone.. I'll try this product if it really helps you and I get lower back pain and neck pain.. Can you also get this at health food store?
I don't know for sure if it will work for you,but it works for me. I stopped using it for awhile and the pain came rushing back. It doesn't take all the pain away, but takes the edge off. I don't know if they sell it in a health food store. I think it may be worth a try. Let me know if you have anymore questions. Blessings..
I tried tumeric powder in a glass of juice the last three days. It really helped a lot .I got the powder at an India grocery store, but I think you can find it in a health food store. I just wanted to tell you because I know how painful it can be. Blessings.
I have had Parkinsons for at least 5 years, probably longer. I have tremors and am now experiencing cramps and pain in my right leg. These are worse on a 'bad' day when I find walking painful. Also have bad circulation and get a tingling feeling in my leg. Just assumed these came with the territory, maybe not. Could be meds. I am on Stalevo and Requip XL.
Horrible pain in legs and abdomen. I take Xanax and advil as needed. Try to keep moving. Rest and exercise. It keeps me up nights or wakes me early. Aggravated by bursitis in my knees. I spend time doing things that will take my mind off of it. i like to spend time with people, but always have to explain (while groaning and stretching) that I have PD and get 'twitchy'. Last night went to my granddaughter's high school concert and could not get comfortable. GOod luck, let us know how it goes!
I can't remember who posted the information below, however, I was telling my sister about it. She said she had read that when you have cramping, Charlie Horses, muscle tightness, etc. to eat a teaspoon of mustard. Mustard has Tumeric as an ingredient. I have tried it and it has helped my toe cramps. I plan to take a teaspoon a day; more if I need to. I figure if helps it's better than taking another pill.
"Curcumin has a great many anti-oxidant properties. Curcumin is used in curry. Curcumin, derived from the curry spice turmeric, has strong antioxidant and anti-inflammatory properties. Both oxidative damage — damage caused by oxygen — and inflammation have been implicated in nerve cell death associated with Parkinson's disease. Now, researchers at the Johns Hopkins University School of Medicine have shown in a laboratory model of Parkinson's disease that curcumin does protect cells from dying. This is why I take CoQ10 and Vitamins C and E, but I'm afraid my PD predates the time I started taking these supplements."
Thanks everyone for all your input in this matter... I am just happy its not in my head as sooo many doctors these days make you feel like when they don't know the answers. Its funny cuz when I went to see my neuro about this they totally put it off and said it was my fibromyalgia ... funny thing I didn't actually see my neuro it was once again the PA... who is new and had to nerve to ask who is the specialist I see for that?? I was like uggghhhhh your employer?? Ugh sometimes I feel like I am just a paycheck to them... hence reason my PRIMARY loves me and has actually taken care of me the last 14yrs and sending me to Denver University Hospital (kinda of like a Mayo clinic but in Colorado)... and that is another thing ... my right foot is turning in again but this time is soooo painful... thanks again and I will keep you all posted on what the new neuro says...
I do not suffer from fibromyalgia , however do experience painful cramping on my effected Side all the way from my glute to the bottom of my hamstring. I have found relief in massage(my husband has been a trooper to learn this technique) Also, I alternate heat & cold( ice bag, which helps with swelling).
I have been gently stretching & I do mean gently. I've found that this also helps & I gradually get more movement. Don't do this in a bouncy fashion, but gradually without pain. EVentually, you will have more flexibility. Just don't rush it
Oh, also, the same method works on my foot as I also experience inward foot turning. My hubby just finds the painful, knotted up place on my foot pas & pushes to release the knot. There is an instant reaction where my foot feels less tight. This doesn't last forever, but we make time for it every day
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