What would you do ?

[hollyb2]

I am having difficulty with my meds they keep my tremors at bay, but I turn into syco women. So here is the question. Stay on the meds for the tremorsand work longer provided my mouth won't get me fired . or no meds deal with tremors and work as long as the tremors will let me

[Hidden]

Keep your mouth shut and take your meds because it's no fun staying home all day .

[hollyb2 in reply to Hidden]

You try when you dont know whats going on in your head . One minute I am fine the next I am on another planet

[hollyb2 in reply to Hidden]

That sounds like a good idea but if you knew me even without PD i have a hard time keepimg my mouth shut LOL . But I am glad you said what you did about staying home I agree.

[srarndt]

Have you discussed this with your neurologist? Asking them might be the best first step...

Good luck!

Steve (Bisbee, AZ)

[hollyb2 in reply to srarndt]

I am headed there today I will let you know what he says. Thank you

[wordworks2001]

Zoloft

[WayneP]

Or Paxil.

[Jeni]

Taking or not taking meds is a tough and personal decision. I tried a couple, one made me sick, the other did to but worked great. I decided after lots of reading and research to go off of everything just for a while and then rethink things. My neuro only wants to see me when I am ready to go back on my meds. One day I will be ready, at 48yrs old, just not yet. I deal with what I have, the tremors, claw hand and rigidity and try to educate other people that see what is going on with me. I am not some monster, just a person with a difficult decision and a difficult disease. We are all in this together.

[bawford in reply to Jeni]

Have you looked into LSVT Big? Might help. lsvtglobal.com/

[mookiejo in reply to Jeni]

I have done the same thing. I just didn't feel like me anymore. Foggy headed all the time........sometimes totally unaware of what was going on around me, zombie like. It has been 6 days, and so far so good. The tremors have come back,but then again they are are there during my off period too. So no big deal. I am still taking my blood pressure meds. and pain med and anxiety med. plus supplements and vitamins. So my symptoms are returning, but I feel better mentally and I think that is just as important as the physical side of it! I really don't have any kind of support group, only some family members, but they are hundreds of miles away. My husband really isn't there for me emotionally. He's good about helping me around the house and he feels that is good enough. But I need him emotionally and spiritually. And for some reason he just can't do that. If try talking to him about it he blows up and gets real defensive towards me. So I just give up! I see my Neuro on wed. I'm going run all this by him but I don't think he'll be happy about it, but right now this is what I feel I need to do.

[rhougham]

DBS SUGERY.......MIGHT BE YOUR ANSWER

[hollyb2 in reply to rhougham]

I do not think I am ready for that, It scares me to death. I still have some med alternatives , but I have it in the back of my mind . I guess I'll know when that is thething to do. thank you.

[maryalice]

holly,

I had almost the same problem. When I was put on l-dopa the tremors got better, but I felt so depressed and irrational. I had to choose either to stay on the medication and feel crazy or go off it and put up with the problems of the disease. I went off the medication because I couldn't stand the mental anguish. There are a lot of alternative medications and therapies available as well as other medications you can try. Google "Parkinson's Recovery Radio" there are a lot of good speakers that may be able to help you. I would talk to your doctor if he'll listen. If he won't find one that will. I know right where you're at because I've been there. It will get better. I hope this helps. Blessings.

[hollyb2 in reply to maryalice]

It was the alternative meds to Ldopa that are making me loopie my Doc has been trying to keep me off Ldopa , keep it as a last result . Well here we are last result . But you are right my doc does listen he tells me all the time he doesn't have the disease I do, So just tell him when enough is enough or lets keep trying , you need to live your life with a true smile. Thank you so much, It's nice to know your not the only one . Blessings to you as well..

[bawford in reply to maryalice]

ditto

[hollyb2]

Well I went to my doc he said the meds he gave me were definately the cause of me becoming a fruit loop, he was trying them in order to keep me off l dopa,but he has always stated I have the disease he does not , I should live my life with a smile , it is always my choice!! We are now trying L dopa . But when I feel I have had enough all I have to do is say the word and my doc will let me know all options then LISTEN to my decision. Thank you for all the feed back you are all life savers !!!

[srarndt]

Holly,

Not to worry, there is not really much of a downside to start on your carbidopa-levodopa. There was a time when it seemed most neurologists thought waiting to be best, but most seem to be lightening up on that.

I hope it works very well for you!

Steve (Bisbee, AZ)

[hollyb2 in reply to srarndt]

Thank you for your support

[grammy004]

I quit my job applied for SS and have been ok but I know I can.t work any more...some of the meds make me sleepy, some make me bitchy and when I first found out about having PD my employer was'nt very nice to me knowing I had PD and the amount of meds I took...the schedule they gave me each week was a tough one...work 2 swings...2grave then go home that morning after working grave to be back to work at 2pm they did not give a shit about my health so I QUIT!!! Waiting for SS is a joke but I am not angry much anymore and don't have nosy co workers ask me "Why does your arm shake what is wrong" I miss working but my health is more important than all the stress created by my job, my family was supportive to a point money's tight but well worth the waiting for my SS I got a Lawyer many people of the SS Dept say I can work HA let them SHAKE for hours take 17 to 20 pills a day and work a full time job!!! I not only have PD Anxiety Depression (untreated till i go to Drs next month) HBP, Diabetes, HC and spinal stensois neck bone spurs and bulging dics in lower back and SS says I can work a full time job!!! Thanks Goverment..I was good enough for you to take my money every week but make me wait till I in the poorhouse for you to give me what is rightfully mine!!

[hollyb2 in reply to grammy004]

Hang in there I too have a very supportive family!! But I also have a wonderful doctor who listens and also knows the system . When I am ready to make the choice to go for ss he said to leave it to him he will do all paperwork and it will go through . and so far all his patients have when they made that choice got it the first round. My prayers are with you!! I am giving work a little more time and god willing I can stay healthy enough to see my last child graduate with little shaking in the stands.

[JennyR]

If your current neurologist has not dealt with you to your complete satisfaction, why "keep your mouth shut" any longer. I know there are problems with insurance, disability., unemployment, etc. My prayers are with you that even through this blog you will find a connection to better care and a longer, satisfying life. We are only given one you know, and it should be the best our Higher Power can make it. Hang in there and know that hundreds, if not thousands, are praying for you.

God Bless.

[honeycombe3]

Holly, I'm very tirympted at 5:13 GMT & I'm very slow typing but I have had similar symptoms & if you look me up in the directory & see all my posts you'll get the drift. To those who haven't experienced the very real horror of maybe losing your mind - believe me you'll put up with pain & other physical symptoms in preference.