Off-Time / Freezing: Can someone share any... - Cure Parkinson's

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Off-Time / Freezing

CV119 profile image
12 Replies

Can someone share any positive outcomes / improvements in this area?

Currently treating my uncle with

Redlight Therapy

Resistance Training

Transcranial Therapy

Supplements most of which you guys have mentioned here before

He seems to stay focused reading a label or just in awe looking at the floor

Has anyone been able to successfully deal with this?

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CV119 profile image
CV119
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12 Replies
LuckyLuke profile image
LuckyLuke

The Beech Band app helped me with freezing a lot, you can get more info here: beechband.com. The device is currently under development but you can run the app on Android watches now.

JayPwP profile image
JayPwP in reply toLuckyLuke

Are you in any way, affiliated to Beech Band?

LuckyLuke profile image
LuckyLuke in reply toJayPwP

No, I'm not. But for me worked, so if this can help someone else I'm just happy to share.

JayPwP profile image
JayPwP in reply toLuckyLuke

I was just curious... I have no problem even if you were affiliated...

LuckyLuke profile image
LuckyLuke in reply toJayPwP

And I really wouldn’t mind saying it ;) I’ve also been encouraging my neurologist and physiotherapist to let more patients know about the project. If there’s even a small benefit to be had, why not? After all, that’s what the forum is here for — to share helpful information.

ByeByeChocolate profile image
ByeByeChocolate in reply toLuckyLuke

Are there any plans that you might know of to develop the app for Apple Watch owners?

midnightwonder profile image
midnightwonder

I have been using APOKYN

for 5 years. It is for off times, & it is a miracle drug when i'm off I just take a shot and i'm back on in ten minutes . The FDA just approved a pump that delivers around the clock dose of APOKYN this would take the place of carbidopa / levodopa

Windermere1 profile image
Windermere1

I added Opicapone once daily 9 months ago and my On time has gone from 3/4 hours to 6/7 hours. Life changing

Puddi profile image
Puddi in reply toWindermere1

what dosage are you taking? Any diskenysia?

Windermere1 profile image
Windermere1 in reply toPuddi

Opicapone 1 x 50mg at 9pm daily. No diskenesea

Puddi profile image
Puddi in reply toWindermere1

great - thanks for that - much appreciated

midnightwonder profile image
midnightwonder

also, ABVIE THE MAKERS OF duopa JUST got FDA approval for a carbidopa levodopa pump for around the clock delivery of the drug

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