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0k then 5k: It is simply strange and only... - Cure Parkinson's

Cure Parkinson's

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0k then 5k

blazyb profile image
5 Replies

It is simply strange and only people with PD or PSP etc could understand - how at night I can’t walk and have to be helped home and by morning can fast walk 5k with sticks….strange…but it is what it is….we fight on!!! fightingparkinsonss.com/202...

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blazyb profile image
blazyb
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5 Replies
Esperanto profile image
Esperanto

The mysterious phenomenon of motor fluctuations in PD is all too familiar to me. I often experience stiffness, especially after long periods of inactivity in the evening, such as when watching a movie. After walking an impressive 15,000 steps during the day, it’s hard to ignore my partner’s puzzled glance as I stumble to bed.

kaypeeoh profile image
kaypeeoh in reply toEsperanto

When I was diagnosed with PD they mentioned the "Sundowning effect" People are normal during the early part of the day but late in the evening they develop neurologic symptoms.

blazyb profile image
blazyb in reply tokaypeeoh

that’s really interesting thank you very much

kaypeeoh profile image
kaypeeoh in reply toblazyb

Ooops, I said PD but I meant MS. I first had MS then later developed PD.

AndyMu72 profile image
AndyMu72

Completely resonate with this. Early morning I can run a 5k (parkrun) in around 25 mins (used to do sub-20 back in the day😁). However if I try an evening run I get really bad toe curling, and have to stop to stretch out calf/achilles/foot several times. Similar for walking to/from work - morning is like I don't have PD, whereas hometime is a shuffle! Pretty sure it correlates to fatigue.

Keep the morning 5k's going my friend!

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