Dr. Laurie Mischley her contribution to P... - Cure Parkinson's

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Dr. Laurie Mischley her contribution to Parkinson’s treatment, my perspective. Second posting due to lack of technical expertise

Nikosmom profile image
24 Replies

I hear a lot of discussion about Dr. Laurie Mischley in this forum. She has been very helpful to me so I want to share my experience under her treatment.

I am paraphrasing a letter of thanks I sent Dr Mischley recently. I have communicated with her via zoom for the last 4 years. I follow her dietary recommendations for the most part. It’s a struggle but my scores have remained steady, quite a bit down from my initial terrible score but snowing slow progression in the last 2 years.

I was diagnosed in 2013 but didn’t need medication until 2020. When it hit me I was unprepared for the misery my desease brought me. I did extensive research and I what i found out brought me even more misery than the never ending list of symptoms.

My research led me dr Mischley who offered a ray of hope. She crossed my path when I was the most miserable. At that time, the prevailing framework for Parkinson’s disease was that it was incurable, progressive, and basically you were “doomed and done.”

I don’t think anything has changed. It still feels like the medical research has abandoned this disease. It seems ironic to me that while this disease is labeled incurable the medical research does not concentrate in ameliorating symptoms by creating a better way of dispensing medication, that is effective and less invasive. I am basically taking the same meds used when the disease was first discovered.

For reasons that are not totally clear to me after meeting dr Mischley, I became more optimistic and hopeful about my future. I’ve been trying to understand what was the magic. For me personally it has to do with a course of action that is believable even if it doesn’t offer 100 percent certainty.

Dr Mischley presented a scenario where personal choices could affect the path the progression the disease took. That was empowering. It was not a “snake oil “ offering a cure all solution. The power of her confidence comes from the data provided by people like me who every day continue to add believability to her assertion.

If we follow the path taken by the majority of those winning the battle of progression we will likely do the same. Conversely, if we follow the bad choices we will experience similar accelerated progression I believe adhering to second path is more crucial.

What I personally like is dr Mischley’s candid admission that she doesn’t know for certain if it one or multiple factors that made for good or bad choice but we need to trust the general pattern.

Time and participants will clarify this as she and her team team continues to look for patterns and relationships among the different variables. Maybe for some the defining cause is poverty and lack of expensive choices.

The second component of dr Mischley’s approach is unfailing optimism and a “can do”attitude. I can be distrustful of naive optimism, but I appreciate her perspective “This is a big battle why not use all the possible resources we can get— “Believing has a better chance than not. So why not?”

Another powerful tool that dr Mischley has pointed out to me is that she believes we should reframe Parkinson’s as the body lacking dopamine in much the same way as insulin for diabetes. This is a very useful way of looking at it. In my mind it takes away the stigma and inevitability of Parkinson’s and transforms it into another battle to fight. Fight and fight every day. But there’s hope. Believe! Happy Valentine’s Day to all!

Yvette

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Nikosmom profile image
Nikosmom
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24 Replies
Natajo profile image
Natajo

Thank you for sharing your experience Yvette !

May you find the courage to keep on fighting as you did these four last years.

Do you have a blood check list from doctor Mischley ?

Nathalie

Smittybear7 profile image
Smittybear7 in reply toNatajo

Following

DogsWoode profile image
DogsWoode

Thank you Yvette. Lovely to read. Can you share what you take now?

Nikosmom profile image
Nikosmom in reply toDogsWoode

Thanks for the affirmation. By, what I take… do mean meds or and supplements?

Meds, I only take Extended release 50/200. C/L every four hours.

I take a long list of supplements I will send it you once I return home tonight

I also follow (as much as I can) her dos donts list of foods

I will be in touch🐾

DogsWoode profile image
DogsWoode in reply toNikosmom

Thank you.

DogsWoode profile image
DogsWoode in reply toDogsWoode

Just following up as wee reminder, thank you nikosmom, re supplements you are taking.

Nikosmom profile image
Nikosmom in reply toDogsWoode

Sorry it took a while. Here’s a picture of my medicine cabinet. I have some of my supplements on list but I need to redo. Except for the top row, I take most of them daily. Not all of the supplements are a direct recommendation of Dr Mischley some of them I picked during my own research. I hope it helps.

Medicine cabinet with supplements
DogsWoode profile image
DogsWoode in reply toNikosmom

A picture tells a thousand words. Brilliant idea! Thank you so much for taking the time, and for sharing your post. It motivates me, one out of many, to find out more.

Grammy80 profile image
Grammy80 in reply toNikosmom

So neat!!! I'm taking a lesson from you and discarding a lot of never used items from my medicine cabinet and then 📯📯clearing off the vanity so that it does not look like a drug store!!!💞

Nikosmom profile image
Nikosmom in reply toGrammy80

Every once in a while, I give myself a pep talk also. It’s too easy to succumb to negativity and we all know that leads to terrible road of self fulfilling prophecies .

Although sometimes I purposely give myself a pity pass and indulge on a poor me party- usually with my dog Toby. We deserve one, don’t you think? You certainly do!

On a more cheerful topic. I am also a painter.. I paint mostly watercolor, and Chinese brush painting. But I have also done oil and acrylic. I like anything creative.. what kind of art do you do?

I’m in the US in Orlando, Florida.

Where are you?

it has been a hoot communicating with you. I like your style. ❤️

Grammy80 profile image
Grammy80 in reply toNikosmom

For sure, I think there are two components to maintaining a positive attitude and acknowledgement and a pity-party is phase one for me....acceptance and giving myself a hug...then move on to the pep-talk; that way it really resonates!! We need those hugs especiallly with a pet at hand....for me it is a big 11 year old marmalade cat named Gus!

I love to paint and started in the nineties with oils, then acrylics and it has been watercolors for about five years. For a while I got into photography heavily....I think because I just couldn't capture what I 'felt I saw' on paper.....but it has been the brush for me for quite a while. It is safer now for me to stay sitting down, my days of running around sand dunes at Lake Michigan are past; but my memory sharp. I live in Hobart, Indiana now. I have spent time in Bradenton when my parents retired in the sixties and ultimately bought there. It is still the Gulf of Mexico to me.

I think when folks have 'challenges', the often unmentioned added challenge is keeping our spirits up and finding strength from whatever resevoir works for you~! 💞

This was actually posted by another member, but I think it is a keeper.

youtube.com/watch?v=UotJsO7...

Very enjoyable~~

Smittybear7 profile image
Smittybear7

thanks for sharing

Nikosmom profile image
Nikosmom in reply toSmittybear7

Thanks to you for taking the time to read it. My kids often tell me my texts are too long. I should have said: BTW

😅

ktbooks77 profile image
ktbooks77

Thank you, Yvette for sharing your experience with Dr. Mischley. I agree with you wholeheartedly. I’ve been her patient for six years now and I’ve never looked back. She’s brilliant, Her science is sound and her protocol is achievable and works. Have you subscribed to her Parkinson’s school online? It is fantastic.

Nikosmom profile image
Nikosmom in reply toktbooks77

“She’s brilliant, Her science is sound and her protocol is achievable and works.” Excellently put. My thoughts exactly.

I haven’t participated in any of the online classes. I think I will soon.

I generally see her via zoom 1 or 2 times a year. She told me recently she hasn’t been adding any new patients for the last couple of years I guess i was lucky. However, she makes her ideas available through her videos and her classes She’s is boom to the Parkinson’s community

🙂

Dallmkr profile image
Dallmkr in reply toktbooks77

Do you have a link to her online school? If so, can you post? Can anyone participate? Thank you

Sydney75 profile image
Sydney75 in reply toDallmkr

parkinson-school.com/

Dallmkr profile image
Dallmkr in reply toSydney75

Thank you

Grammy80 profile image
Grammy80

Wonderfully written~I'm 84 and have five chronic diseases....Parkinson's, Giant Cell Arteritis(blind, left eye, partial vision in my right) stage 3 kidney disease, diabetes and epilepsy (great seizure control).....attitude is just about everything. She sounds amazing and though I'm sometimes a little tired.....I feel good~!

You shared a real pearl in my humble opinion!! Thank you💞

Nikosmom profile image
Nikosmom in reply toGrammy80

Well, aren’t you full of positive energy?!!! You have utilized your trying health experiences and squeezed the bitterness out of them. From that bunch of sour lemons you have received, you have made sweet lemonade to share . Keep up the good attitude and make it another 10 years, I want to follow in your footsteps. Yvette

Grammy80 profile image
Grammy80 in reply toNikosmom

Occasionally over the years, I sit and give myself a pep talk and realize that I am alive, can move(though not as gracefully as years ago), listen to books, paint ......I can just watch the news and realize how very fortunate I am. Come along, Yvette~~love the company.💞

gomelgo profile image
gomelgo

I was lucky enough to get an appointment with her in November. She had me do a hair test and it showed very high levels of heavy metals, especially manganese!! I am now working on putting together a detox program. Definitely renewed my hope. She is a true gift to us parlors. She thinks I have manganism. I'm just glad I don't live at the house with the high iron well any more.

Nikosmom profile image
Nikosmom in reply togomelgo

I also have heavy metals. A few years ago I found this recipe I use for a year and I felt it helped.

Disclaimer: the guy recommending this is a total quack. He has no qualifications t whatsoever However I studied the ingredients and his recipe is credible. At worst what re recommends is good for our health.

I am including a picture of the recipe but you can google medical medium heavy metal detox smoothie and find it.

I still take his recommended 20 ounces of celery juice most mornings I find it helps with constipation high blood pressure mood I buy Costco brand it is sweet enough to be tolerable

Good luck and keep fighting 😀

Recipe
gomelgo profile image
gomelgo in reply toNikosmom

Tried that for a year. Did nothing. Thanks though.

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