is it true to say if a cure for PD was found, that I would still have the symptoms I have today since there is no hope for the neurotransmitters for those functions are dead?
His response:
It depends on the nature of the cure. If it halts disease progression, patients will either stay at their current level or experience slight improvement as the brain cells that are dysfunctional but still present recover function. If the treatment is also regenerative, we may see more significant improvement. It's possible we'll find that there's some combination of disease-halting treatment and regenerative therapy (like stem cells) that would be ideal, but it may take time to sort all of this out once each set of therapies is identified.
its a lot to hope for... I am so disheartened
Written by
Jmellano
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Well you know there are things that help and things that do not help. One of the things that do not help, as you might gather, is to engage in rank speculation and hypotheticals and then attach your emotional health and well-being to that process and to the answers, which will be uninspiring and worse proportion to the degree of speculation or hypothetical you have posed.
Think of it as a bad habit that hurts you, like a damaging substance or food that you get into the habit-track of craving but know you don't need it and shouldn't have it, and yet still voluntarily pursue.
Or think of it as the following conversation between a patient and physician:
Patient: "Doctor, when I do this (voluntary activity), it hurts."
Doctor: " Don't do that. (Pay the receptionist on your way out.)"
When I was older and knew more, including to read on my own, I encountered some classical philosophy that I had somehow missed in my college years. It turns out that this philosophy was easy to learn and not difficult to apply and very very helpful. It is called stoicism. It is really worth checking into and learning about and reading some and then thinking about applying it. Doing so can actually be rather heartening. An example of it is commonly called "the alcoholic's prayer."
MarionP, I am not sure I understand your response. I think because so many of us suffer the horrific symptoms of this disease, we are entitled to having a pity party, yesterday was my celebration
Sorry if I misunderstood your intent, read what you said again and maybe you'll see how it can be taken more ways than one. It sure looks like I'm not the only one to have seen it that way. 🙄
There are already ways to find the causes of your symptoms and reverse them. Many have done that. Check these free blogs - returntostillness.com.au/blog
Successful research and especially a cure, depends on a solution being affordable for everyone. Imagine stem cell treatments prove effective but the cost is $100k. Probably unaffordable for most and unfundable for state health services as well. In those circumstances, it would be as if the treatment didn’t exist
Don't be disheartened. They are always new things coming up that help your symptoms. They haven't found a cure yet but you never know. There are currently some things out there to take advantage of if you just try them. This website is a good place to start. There are foods that help, vitamins, exercise, meditation, DBS, FUS, stem cells, etc. You might try Laura Mischley's website. You can check out rocksteadyboxing.org for exercise. I've had PD for 21 years , I'm 67, and just had DBS. The things I just mentioned have helped me quite a bit. If you have any questions, let any of us know. Another thing, look in the mirror everyday and say" I have Parkinson's but it doesn't have me!"
Laglag37, I have done RSB, and it is the best thing out there for Fighting pd, also, I am a patient of dr mischley. Fatigue and ability to drive have prevented me from continuing with rsb. I have tried b1, red laser, mannitol, , ps128, ,cinnamon, plus traditional c/l therapy, all to no avail
Dear. , I am a Survivor and plod my way through life (cancer and , suicide loss survivor) This too shall pass and I will leave my pity party, but sometimes I just sink so deep into the pit of despair.. and pd is very good at making me sink..
thankyou DEAT. i really appreciate the feedback, As a writer, one very rarely sees or hear hears if they have impacted anyone with their articles, i used to write about Parkinson's from 2018-2022 on parkinsonsnewstoday.com my column name was'Slow is the New Fast' I no longer could be positive inmy writings about Parkinson's, so I stopped writing.
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