anyone had a TURP procedure with PD - Cure Parkinson's

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anyone had a TURP procedure with PD

whiststev profile image
10 Replies

I was diagnosed with PD June last year and recently also been diagnosed with a prostatic obstruction and been advised to have a Turp procedure. I’m looking for anyone who’s had the procedure with pd and how it went.

Steve

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whiststev
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10 Replies
Mark000 profile image
Mark000

The concern in any operation with PD is the anesthesia. But, if you delay your procedure and live with BPE, it can eventually cause serious permanent urinary problems and possibly kidney problems. TURP is a very old procedure. There are several other alternatives you could consider with fewer complication risks that can be done with local anesthesia. There are also non-surgical alternatives you could consider if your BPE is not too severe.

whiststev profile image
whiststev in reply toMark000

Thank for the reply. Yeah due to the PD I will be having the spinal anesthetisia, and it has got serious because I have a catheter in at the moment until the procedure .

Mark000 profile image
Mark000 in reply towhiststev

You are fortunate that they provided you the option not to have general anesthesia.

Nitro53 profile image
Nitro53

I agree with Mark000

opera1968 profile image
opera1968

I had a Uro-Lift four years ago. It is a 15 minutes procedure for BPH with anesthesia similar to colonoscopy. The recovery takes about 2 weeks.

It is not perfect, but generally I need to use the restroom only once a night, sometimes not at all.

I will have to visit a urologist as it is slowly wearing off.

inovator profile image
inovator

Hi whiststev

i had TURP last year, with a goal to resolve my urinary frequency and control problems. It was done under local anestesia, completely uneventful, i was watching on the screen as the doctor was removing the obstruction. The bad news was that they did biopsy of the removed tissue and found it to be cancerous, but the good news is that TURP seem to had removed entire problem (obstruction and cancer). Doing PSA every 3 months and everything is clear.

Although the removal of obstruction seem to improve the flow, it did nothing for bladder control. As my urologist wisely put it "... TURP is solving mechanical problem, but you have electrical problem ... " and he cannot anything more for me.

in short, TURP is routine procedure, shouldn't worry about it.

i have PD only 3 years, but it appears that it is atypical Parkinson, which progresses much faster then the 'ordinary' PD, and among other things it comes with severe urinary (and BM) problems.

So, my urologist prescribed self-cathetering, which I do 3-4 times a day. It is very inconvenient, but it finally gives me a relief, because i can now completely empty my bladder.

Another thing you may want to consider, which was very helpful to me, is i take Desmopressin before sleep (after self-cathetering) and that makes me go through the night completely uninterrupted. And for a good measure, I also take one Melotonin, and sleep like a baby.

Not pretty, but effective. I wish i can find equally 'ugly', but effective solutions for other severe PD symptoms i'm experiencing. Oh, well ... i am grateful for this.

Happy to help if i can. Hope this was useful.

whiststev profile image
whiststev in reply toinovator

hello,

thanks for your reply . When you say it did nothing for your bladder control was you still able to empty your bladder and were not in retention . And regarding the local anaesthesia was spinal, and how was that?

thanks

steve

inovator profile image
inovator in reply towhiststev

right, it didn't help me controlling my bladder (either to hold or relieve), continuing to retain most of the urine. TURP is solving mechanical problem (blockage), but PD=induced urinary problems are neurological in nature (electrical, as my urologist says) and no surgery can help with that. yet.

it was a spinal anesthesia, I was completely awake and fully aware of what's going on, yet didn't feel a thing.

psyche100 profile image
psyche100

I had HoLEP two years ago. It was done under general anaesthetic and only involved an overnight stay in hospital. It remains effective at resolving all of my BPH symptoms which has made a big difference to the quality of my life. It also led to a big reduction in my PSA level.

psyche100 profile image
psyche100 in reply topsyche100

I wasn't made aware that general anaesthesia posed a greater risk for PD patients. My PD diagnosis was made in 2018. At the time of the operation my symptoms were mild, and I was taking 300 mg of Sinemet so perhaps I wasn't at much greater risk anyway.

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