Acetyl-L-leucine follow-up: Just checking... - Cure Parkinson's

Cure Parkinson's

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Acetyl-L-leucine follow-up

WhyRBD profile image
12 Replies

Just checking to see how those are doing who have starting supplimenting ALL? I am collecting data and would like to know if having any effect and if so on what symptoms. It would be great to know if you suffer from iRBD. If so and using ALL to regulate night time events, what are you using to determine frequency and intensity of events: Camera, self, or partner? Any and all other information you might think would be helpful, please share .(dosing with weight and effects are great) I myself am just waiting for my DatScan and then I will be testiing in conjunction with my RBD Diet. Great possibilities when this compount is integrated into a holistic plan. (you can share publically or privately via DM if you prefer)

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WhyRBD profile image
WhyRBD
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12 Replies
PDinAZ2024 profile image
PDinAZ2024

I considered it but haven't yet. Saw one post about side effects and decided against

Fed1000 profile image
Fed1000 in reply toPDinAZ2024

Sorry, what post?

PDinAZ2024 profile image
PDinAZ2024 in reply toFed1000

healthunlocked.com/cure-par...

Alegna1 profile image
Alegna1

Hey, my husband supplements appr. 700 mg daily since about 2 month. There is novrecognizrd sideeffect, so far also no change in tremor symptom. 😊

Fed1000 profile image
Fed1000 in reply toAlegna1

Hi Alegna1, do you mean Acetylleucine supplements?

Fed1000 profile image
Fed1000

Well done WhyRBD! I taking Acetylleucine in the form of Tanganil 500mg. for 15 days. I don't think I have benefits related to Parkinson's, but neither do I have any side effects. It's probably still early. Speaking of side effects, consider that this product has been used in France for many years.

Fed1000 profile image
Fed1000 in reply toFed1000

I correct mysel: they have been using in France for many years.

nop9 profile image
nop9

i took tanganil for 6 weeks and improved a lot. zero side effects. for some parts could be placebo. but at the end i could walk 4km smoothly and without thinking about my legs much. before i had one stiff leg and got hip pain after 1-2km. the last two weeks i had replaced tanganil with acetyl -l-leucetin powder from china step by step. yesterday i waked and my leg was stiff again. so im back on tanganil only now. i will see how it goes..

PixelPaul profile image
PixelPaul in reply tonop9

How much are you taking?

nop9 profile image
nop9 in reply toPixelPaul

tanganil: 10x500mg/day

48y old, first PD diagnose 4 years ago. last year positive DatSCAN. i do not suffer from iRBD.

edit: i am on 300mg amantadin. (i was able to reduce from 400mg while taking tanganil) no levodopa

Fed1000 profile image
Fed1000 in reply tonop9

10 pills?

nop9 profile image
nop9 in reply toFed1000

yes 10 pills=on stripe i take spread out the day. now my walking seems to recover again.

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