The Link Between Vitamin B12 Deficiency a... - Cure Parkinson's

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The Link Between Vitamin B12 Deficiency and Parkinson's Disease

Dabaa profile image
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youtu.be/Z2vNFzMpbIA

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Dabaa
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PDGal4 profile image
PDGal4

This is very helpful. A reminder to supplement with B-12, which I had gotten away from.

Smokeypurple profile image
Smokeypurple

Laurie Mishley lectures on this a lot and gives very detailed advice on how to rectify it (along with connected issue of high homocysteine - Google homocysteine and Parkinson's for lots of entries plus prd-journal.com/article/S13... Info is in her PD school lecture collection pd-school.teachable.com/

You can sign up for a small monthly fee for a new seminar each month plus access to past seminars, support groups, a dietician and plenty more...inlcluding a partner support group. I recommend it highly - an imporatant bit of my PD jigsaw

JayPwP profile image
JayPwP

I believe there was a discussion that B12 should not be supplemented.

park_bear was it your post?

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park_bear in reply toJayPwP

No, not me. I do supplement B12. B12 is commonly deficient and if so can result in neurological problems.

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bookish in reply toJayPwP

Ideally one would not supplement oral B12 before full testing as it will skew the results without necessarily enabling repair of damage caused by lack, especially neurologically. The only way to know how much difference B12 can make is with injections - oral works for some, not at all for others and serum test alone cannot be relied on as it doesn't always correlate with symptoms. Treatment has to be symptom-led. Homocysteine and Methylmalonic acid can be helpful markers and can show treatment is working, if they were high in the first place, but they don't always rise and people can still get benefit from injections who have no tests which indicate deficiency at all (approx 25%). For the record I don't have PD, I have a B12 problem (multi-generation familial), and my serum was already top of range from oral/sublingual/patches, you name it I've tried it, as I could never get a diagnosis or any help and symptoms were progressive over many years. But I am now getting injections and it is a whole different game. So never assume that B12 cannot help until you've had a trial of injections and got no response. Full metabolism of B12 is still not fully understood so looking only at blood symptoms and blood deficiency is unhelpful. We need to be looking at cellular deficiency and we have no tests to rule that out, just some that may help rule it in. Cheers

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