hello, i have been reading about/ watching videos demonstrating a reduction in symptoms such a tremors & stiffness after using RSO. Does anyone have any experience with this to share? My husband is 53 diagnosed about 18 months ago. Primary symptom is right hand ( dominant) tremor & decreased dexterity. He did not try any medication until about a year ago but nothing seems to work. Ragastaline, Amantadine, Requip, and now dr ordered GoCovri- waiting for that to come. Nothing has worked at all so far & the side effects were terrible. Sleep was HORRIBLE on Requip- insomnia, worsened nightmares. His dr doesn’t seem to have any other answers other than… new medication. There has got to be something more.
he has changed his diet to gluten free and stopped drinking beer. I was looking into RSO as an option for him but there are so many variations. We are going to talk to a medical dispensary. Any thoughts suggestions welcomed. Thank you all for this great environment/community.
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Caa11
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I would suggest researching the "why" behind his diagnosis/symptoms. If there is an underlying toxin or infection causing the symptoms they will not go away with medication. Bartonella from a tick bite can cause Parkinsons symptoms. I have had it and have been treated. I'm getting a little better but that was not the whole answer for me.
I recently was tested for toxins and found I had high Manganese which can also cause Parkinsons symptoms. We are getting our well water tested. I am working with a doctor who understands alternative medicine and how to get to the root of the problem.
It's a long hard road to find answers but I'm almost there.
I have tried Mucuna (Natural Lavadopa) and Carbidopa with Mucuna with no results. If somethings not working you have to dig deeper because the Dr. won't do it for you.
I am doing the toxin testing through "Holistic Health International " right now. Its all through the mail. The Dr on site goes through all your tests and supplements and makes suggestions.
Thank you for that! Honestly, this has crossed my mind a few times. I am definitely trying to find the WHY- just SO many places to look , it can be overwhelming
when we first met with this doctor, he made it seem tremor was easy to control, now he says not so much. I do have him taking MP as well. Seems to be SOME mild relief but overall not huge relief of the tremors. Sleep was MUUCH better last night - first night in a long time, with the RSO use. He has been prescribed Trazodone, Xanax, ~ and both, no help with sleep. Insominia / crazy nightmares. He also takes Melatonin, Magnesium, Multivit. and a few other supplements/vitamins~ I don't know if they aren't helping b/c we haven't found the sweet spot of dosage or if it's not the right thing to use.
Thank you again- you gave another area to look into. I hope you continue to get better
Genetic - I used 23andMe which will report on genetic mutations causing Parkinson's. Probably other places will do such testing as well but I haven't checked. If any parents, siblings, aunts, uncles or ancestors had PD definitely worthwhile to test.
Toxic exposures - Household insecticide Permethrin (flea bombs,etc.) is one which I reported on here - healthunlocked.com/cure-par...
Since MP is helping his tremors if it is possible to increase his dosage without adverse effects that would be something to try. Levodopa does a pretty good job of controlling my tremor.
Your MD is negligent for failing to prescribe a levodopa-based medication, which is the mainstay treatment for Parkinson's. Once upon a time it was thought that dopamine agonists (Requip in this case) should be prescribed in preference to levodopa initially, but that has been shown to be wrong. 50% of dopamine agonist users develop impulse control disorder after 5 years, which can be devastating. Dopamine agonists have their place in the treatment of Parkinson's but not as an initial treatment in place of levodopa. If you're in a position to find a different MD for his treatment I strongly recommend doing so. If not I can provide medical references that support the foregoing, but that is unlikely to change your doctor's attitude.
Yes!! I thought the same & have questioned this. He tells us there are better medications out now. He even questioned the GoCovri b/c it is just an extended release Amantadine- he tried Amantadine last year with no improvement so he came off it.
We have an appt for a new dr but it's a few months out. We have to deal with what we have for now
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Has anyone with PD changed medication, when the initial one was not working? 
I am searching for alternatives to Levadopa for my Dad to take/do
Dr Espay - The missing ingredient for successful disease modification in PD - Recording available
I need to vent! Parkinson's has cost me my husband but it's been a long and hard journey to get anyone to listen to me!
