Best Foods and Worst Foods for PD

[Blue-hummingbird]

My husband was recently diagnosed with PD, so I’ve been doing a lot of research to figure out the best foods for him to eat. There’s so much conflicting information about what causes inflammation that might aggravate PD, especially with dairy, whole grains, legumes, meat. I’m in a quandary! Would you please share what foods work well for you, what you avoid and why? (It seems everyone agrees to eat veggies and avoid sugar and refined grains. How about diet soda?) Thanks in advance!

[Boscoejean]

Laurie Mischley did research

pubmed.ncbi.nlm.nih.gov/290...

[park_bear in reply to Boscoejean]

Video from Laurie Mischley on diet:

healthunlocked.com/cure-par...

[Buckholt in reply to park_bear]

The idea that people that each most fish, lean meat, veg and red wine have better outcomes that those that eat canned, fried and processed food, might say more about their education, health knowledge and income, and the affect that those things have on their illness. Higher income groups are more likely to have gym membership, insurance cover, take vacations and less likely to suffer financial stresses. So, is it the diet or these other differences? I am sure account must be taken of these elements in the results but I don’t know how.

[Blue-hummingbird in reply to Buckholt]

Great questions—thanks!!

[Blue-hummingbird in reply to Boscoejean]

She doesn’t talk about high dose thiamine therapy in this conversation. Do you know if she’s ever mentioned it?

[Boscoejean in reply to Blue-hummingbird]

ncbi.nlm.nih.gov/pmc/articl...

chart

[Nikosmom in reply to Blue-hummingbird]

i meet with her on a regular basis and for what I can tell she doesn’t endorse high B 1 dosages but she doesn’t discourage it either.

[Edge999]

remove sugars, reduce carbs to as low as possible . Eat like a diabetic

[lbrussell]

Here is Dr Laurie Mischley’s latest update on her food and lifestyle research on PD. Just published yesterday in PDActive’s web site. I have followed her plan since my diagnosis 5 years ago and I must say she is brilliant. youtube.com/watch?v=Jy7sJlY...(Not working as expected?)

[Blue-hummingbird in reply to lbrussell]

Dr Mischley’s presentation was really informative and helpful—thanks so much for sharing it!

[Blue-hummingbird in reply to lbrussell]

She doesn’t talk about high dose thiamine therapy in this conversation. Do you know if she’s ever mentioned it?

[JCRO in reply to Blue-hummingbird]

She’s not seen enough evidence either way yet.

[JCRO in reply to JCRO]

There’s a chart from her preso. Thiamine is on the list but in 15th place.

LKM research. Current June 2024.

[WhyRBD]

Has your husband been diagnosed with iRBD?

[Blue-hummingbird in reply to WhyRBD]

Yes. It was pretty bad last summer before he was diagnosed with Parkinson’s. Maybe I’ve gotten used to it, but it only wakes me up a couple of times a week now. Why do you ask?

[WhyRBD in reply to Blue-hummingbird]

Well if you believe the science that connects iRBD severity (frequency and intensity) with PD progression, what would you think about a diet that reduces such events and its possible effect on PD progression. I have (and a few others on this site) have developed a very specific diet that controls if no eliminates iRBD events. Prior to being diagnoised with iRBD, I was a vegan - yes it is what drove my iRBD. We have found a zero lectin diet is key. Following the lectin free diets online is not enough. We have tested for4 years different low and no lectin foods and have found a list of very specific healthy foods that eliminate iRBD and if this is the case, it could also effect PD. We don't know the effects on PD because we are in the prodromal phase. I was eating FOK diet and was ravaged by iRBD. Great for other health issues but could be excellerating iRBD and PD if done in the wrong way (controlling night time events). If you want more just let me know

[Blue-hummingbird in reply to WhyRBD]

Yes, I’d love to know more. Thank you!

[WhyRBD in reply to Blue-hummingbird]

This is all I eat - no exceptions. I drink water with vitamin C or Nicotine - no alcohol no soda. I eat one meal a day (2,000 to 3,000 calories). I always exercise fasted. I will be testing extended 5 day fast (monthly) very soon.

Sardines - wild caught*

Salmon - wild caught

Ground Beef - grass feed

Eggs - free range*

Lamb - grass feed

Pork Rinds

* most used

Veggies

Cabbage

Broccoli

Mushrooms

Cauliflower

Onions

Nuts (I make a fresh bread daily from the nut flours and psylium husk)

Blanched almond flour

Coconut Flour, flakes unsweetened

Ground Flaxseed

Oils

coconut oil

olive oil - no but will start testing soon

Prebiotic - Supplements

Inulin Powder* 5g

D-Ribose Powder* 5g*

L-Glutamine powder* 5g

L- Serine powder* 4g

Psyllium Husk Powder 20-40g

Acacia Senegal Powder** 25g

Note: * Powders used in food - not cooked ** still testing could be activator

very restricted diet but the benefits could far out weight the drawbacks. I hope this helps. If you try it you should see results the first night. I use motion activated camera to confirm my testing. I would be glad to assist you or anyone else looking too over come iRBD - just reach out via DM or in the chat here.

[Blue-hummingbird in reply to WhyRBD]

Thanks so much for the detailed reply!

[WhyRBD in reply to Blue-hummingbird]

I forgot on my list. Hearts of palm and artichokes. I use the hearts of palm pasta from Aldi to make quick meals.

[freefallmode in reply to WhyRBD]

Thanks for sharing these. Very interesting. I've had PD over 10 years and have identified a similar diet for myself to minimise symptoms.I'm curious about a few other points. Don't nuts have lectins? Do you have a rating system for lectin content in food? E.g. the top 10 worst offenders for people who want to try but can't start with zero lectins.

I guess rice, oats, corn etc are no goes? What about buckwheat, quinoa, amaranth, sweet potato..?

🙏

[WhyRBD in reply to freefallmode]

I do not have a rating system but events are definitely dose dependent. Nuts do have lectins but coconut is definitely lectin free. Almonds when they are blanched and processed have no effect. Regarding any other you have to test each one individually once you get a night free of events. I suspect everyone responds differently depending on the food and the amount. I have even discovered events depend on the ORIGIN of the food. This favoring why food that comes from the Mediterranean lowers the incidence of PD. Your first goal with my diet is to start with a few basic foods (think of it like fasting) and get a movement free night. I use a motion activated camera to do this. You can see what is normal tossing and turning vs dream engaged movements. Once accomplished add one ingredient at a time from list of no or low lectins. I once thought pistachios might be safe but they are not. Wal uts the sam even after soaking over night and pressure cooking. It's the process not the food that will stop iRBD.

[freefallmode in reply to WhyRBD]

Helpful, thanks 👍

[WhyRBD in reply to freefallmode]

worst food - high lectin foods. everyone reacts differently so you have to try one at a time and measure results - camera. I eat no grains. I even gave up my pressure cooked sweet potatoes (going to test again as they were my favorites) Millet could be an option but did not work the first time I tried it. Possibly with a healing gut food options can change.

[Gallowglass]

My doctor has prescribed the Firks Over Knives diet. Plus mandatory one cup of blueberries and 6 cups of dark leafy greens daily. I feel much better when I do this. There is a website on the FOK diet and a very motivating movie on prime called Forks Over knives. Try it for a week. I’ve lost 60 pounds, no more high blood pressure or acid reflux. Insulin resistance is gone!!!!

[MarkPrana]

Avoid dairy for sure, strong association between eating dairy and developing PD

[Stag10]

good morning I don’t know how true it is but p fresh passionfruit is meant to be very good. Maybe you should look into that. Kind regards, Dean.