UK Neurologist who will prescribe exenati... - Cure Parkinson's

Cure Parkinson's

25,538 members26,859 posts

UK Neurologist who will prescribe exenatide or lixisenetide for Parkinson's?

ianpur profile image
6 Replies

Hi anybody have details of UK neurologist who will prescribe exenatide or lixisenetide for Parkinson's. I'm year 4Thank you

Written by
ianpur profile image
ianpur
To view profiles and participate in discussions please or .
Read more about...
6 Replies
amykp profile image
amykp

ugh it’s so frustrating, right? You might be able to find someone online. Another possibility is a GP—it doesn’t have to be a neurologist. Anyone who is sympathetic to a patient’s right to make their own choices might be willing.

It would help if you were overweight or had high blood sugar 😉

ianpur profile image
ianpur in reply to amykp

Hi. Dont worry I get your drift. I've already been taking liraglutide for eighteen months. Prescription obtained for 'weight loss'. Looking to save a few quid or try exanatide. Thanks for your reply Amy. Are you taking a glp1?

JCRO profile image
JCRO in reply to ianpur

Are you willing to go private in London?

ianpur profile image
ianpur in reply to JCRO

Yes if course. Have you s recommendation?

amykp profile image
amykp in reply to ianpur

Yes I take exenatide, but my husband's a Dr.

Also, my GP is incredibly flexible--I suspect she would write for it if he didn't. She knows I take it and orders blood tests for kidney function every few months to keep track. I am not overweight either--I'm actually too thin. She does worry about that and we talk about it.

Whatever doc wrote for the liraglutide might be willing to switch for you. I'd try the new one--the lixisenitide.

Seamus6 profile image
Seamus6

You might like to check out Ian Frizzel.He obtained Exenatide, after a lengthy process, from his GP.

He used to post some wonderfully informative and entertaining videos.

Haven't heard from him for a while - hope he's ok.

youtu.be/i42M2e9bi2k?si=WOC...

You may also like...

Science of Parkinson's - Exenatide

motor symptom scores after 1 year of treatment. Both groups appear to have improved slightly. It...

PKG smartwatch available to NHS Parkinson's patients UK

be grateful if PwP who have used the smartwatch share their experience. Thank you.

Neurologist says probably Parkinsons, no medication as yet, what to do now!!

Do most people have a Datscan to diagnose PD? I have noticed during the night I have really bad leg

Neurologist recommendation

had Parkinsons disease. All help would be appreciated as we would rather see a neurologist who has...

Official Letter to my neurologist

last appointment, you suggested that you do not know what more you can do for Parkinson's therapy....