Warning contains TMI! Will anyone here t... - Cure Parkinson's

Cure Parkinson's

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Warning contains TMI! Will anyone here talk about how their sex life affects their Parkinson's or how Parkinson's affects their sex life.

Bailey_Texas profile image
13 Replies

For me i am a open book.

I will answer anything i am asked.

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Bailey_Texas profile image
Bailey_Texas
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13 Replies
RickyTikki profile image
RickyTikki

Does your wife follow your POSTS!!!!!

Bailey_Texas profile image
Bailey_Texas in reply toRickyTikki

We share all. We have been together for 48 years. She was 15 and i was 17 when we got married. She came from a abusive household not sex but mental and physical. My father left when i was 4 and my mom i think hated me because i look like my dad. I have been on my own since i was 13. The first person that said i love you to me was my lovely wife. We where both running away from our past and grew to love each other more than life itself. There is nothing I would not tell her. She is the my rock and i hers. If you look back on my post i have talked about this before.

bassofspades profile image
bassofspades

Bailey whats your take on the subject?

Bailey_Texas profile image
Bailey_Texas in reply tobassofspades

We should not be timid about this subject. A good and satisfying sex life is just as necessary for good health as exercise and nutrition. I am 64 and up till 3 months ago it any time anywhere. I was good for at least once every day. In the last 3 months things have change. I see my doctor on monday and i will talk with her to see what we can do to get back to normal.

I have told this story here before. When i was 59 i was 7 years with pd and was taking Requip 18 mg a day. My wife was handling the pills when she would get them out for me. One day we were starting to "play" and i noticed her lady parts were larger. They where at least 2 times larger than they had been. Her libido and mine were off the chart. We went from 5 times a week to 3 to 5 times a day. Each time would be at least 30 minutes and up to a hour. She was in a constant state of arousal. This went on for almost 2 years until i started to reduce the Requip and started taking C/L. After i reduced the Requip every thing wehn back to normal. We went back to 3 to 5 times a week.

Sleeplessparki profile image
Sleeplessparki in reply toBailey_Texas

I had similar effects from 12mg per of requip per day. I was always horny........and my lovely wife would always oblige because she is naturally horny. My biggest issue in this department is that I can’t roll over in bed anymore, due to PD. I get exhausted trying to get on top that I lose my erection and game over! She is tired of always taking to top position which has become a bit boring for her......so now I stand up beside the bed and we do it that way..... it’s a blast! I’m sure I’m not telling you anything that you haven’t already tried. But unfortunately the party came to an end when the requip started causing other issues and the doc said to reduce the intake of requip to 6mg per day. It stopped the other issue but it has left me a lot less horny.

Hello, How long have you been on the amino acid therapy and what dosage are you taking? I was thinking of starting, I am only on 3 mg Neupro patch and .5 Azilect.

rhyspeace12 profile image
rhyspeace12

I pnce read a comment, it could have been on this site, that the patient went to the neurologist for diagnosis. The neurologist said, "Can you get it up?" He was embarrassed and said, "Yes." She said, "Then you don't have Parkinson's."

Coling profile image
Coling

Hi I think talking about sex is as normal as talking about cramps! I am 66 and until recently my erections and orgasms were normal and frequent- over the past few months all that has changed ... erections come and go , find it difficult to reach climax it takes ages (too long)luckily I have an understanding girlfriend. The doctor offered me Viagra which maintains erections but not so much feeling and doesn't Help with climax - I am happy to offer her alternative intimate modalities and touching is beautiful but if there is something else that can compensate for the Parkinson's affected parts I would like to hear about it - e.g. What's the amino acid therapy and dose ?

Ballerina335 profile image
Ballerina335

I am on sinemet and I dindnt notice a significant change in sex,However after being prescribed Sartraline 100mg I have little libido and can't orgasm .Its very frustrating.

Eliza-Jane profile image
Eliza-Jane in reply toBallerina335

Hi Ballerina. Assuming you are, nice to have a female on board on this subject. Life was great in this area until my anxiety took over and meds for that seemed to stop a lot of fun. I got off that medication and all was good again until recently. My anxiety is pretty much non existent now. I have the desire but can't orgasm. Well I am only talking 3 weeks but that's not good in my books. Frustrating more for my darling man than me. I am only taking Madopar and feel good, but I wish there was a girl's version of Viagra.

christymw profile image
christymw in reply toEliza-Jane

If you can tolerate them, a dopamine agonist may help (requip, mirapex). Also, you may be better served talking to a doctor or nurse practitioner in women's health.

Tato profile image
Tato

Could you please explain more about the amino acid, I thought every thing was wasted. Please be as explicit as you can Never heard of it. We have been in the dark.

jupiterjane profile image
jupiterjane

With Mirapex there was enjoyable and frequent sex. It was wonderful!! Off the Mirapex my sex drive is almost non existent. Now it all seems to center around my pain. I just can't be very active when the pain is overwhelming. I miss the closeness and the playfulness of sex. I want back on the Mirapex please!

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