This really made me think ...

[gomelgo]

And I am thinking there is definitely a cure, and it has been and is continuing to be kept from us all. What about you? We don't have to agree, because I am only aiming to start a conversation, and maybe get to an action plan for myself based on what I have learned so far in my nearly 2 years since diagnosis.

open.substack.com/pub/tracy...

[WinnieThePoo]

Einstein and me. We're neither of us sure the universe is infinite

[gomelgo in reply to WinnieThePoo]

hmmm, I'm not sure either

[bassofspades]

the first step to a cure is figuring out the cause and preventing it from doing further damage. The cause is dopaminergic cells dying, but there are many ways that this happens. Genetics, toxins, stress, stroke, sleep deprivation, trauma, tumors….the list is long. Once you stop the disease from progressing, how to undo the damage? Stem cells? Neuroplasticity? There’s a huge network of connections that would have to be rewired. Neuralink?

[JayPwP in reply to bassofspades]

Dopaminergic cells dying are the cadaveral findings. Not sure if that is the cause or the result of Parkinson's.

If it was only the dopamine deficiency, then replacing adequate amounts of dopamine should have been enough and other systems would not get impacted.

What say you?

[bassofspades in reply to JayPwP]

you can replace all th e dopamine you want, but you cant rewire the lost neuronal connections, which can number in the billions. A dopaminergic nerve cell in a healthy person could have axons that go on and on around the various parts of the brain. Also, too much dopamine causes problems like Schitzophrenia and dyskinesia as well as hallucinations of the various senses (sight and sound). Theres no known substitute for a healthy brain....yet!

Public Domain, Link

commons.wikimedia.org/wiki/...

[JayPwP in reply to bassofspades]

True...

[wriga in reply to bassofspades]

You are on the right track, bass...

Resolve Parkinson's

[wriga in reply to wriga]

..... so follow the sign..

[SilentEchoes in reply to bassofspades]

"the first step to a cure is figuring out the cause and preventing it from doing further damage"

What caused the dopaminergic cells to die?

You have to look further upstream. Genes load the gun, environment pulls the trigger. This means genes are a risk factor and risk is modifiable. If you know you have MTHFR mutations then you know you need to supplement appropriately. This mutation is a risk factor for PD. There are others. ncbi.nlm.nih.gov/pmc/articl...

PD is death by a thousand cuts - it's a result of multiple environmental factors such as diet, nutrition, exercise, injury and toxic exposures that culminate in disease.

Every cell and organ in the body has some capacity to heal. You have to identify your risk factors and address them. Expectations for recovery need to be reasonable. It took a long time to get where you are, it's going to take sustained effort and time to recover function. Will anyone fully recover? I don't know, but isn't some improvement better than none?

I've outlived my prognosis, it doesn't mean I'm well. But at least I'm not dead. Yet.

SE

[Hidden]

Google parkinsons disease reversal carnivore diet. Check Dr. Anthony Chaffee's YouTube video. Join a lion diet community and start reading their stories. Animal fat is the way to go. Ruminant animals maximize your chances by increasing nutrients density. Also check out the harvard carnivore diet study. Read the full thing, but concentrate on page 7, table 3 and the bloodwork below. There is also a person that runs some assistance homes in arizona that's been reversing alzheimers and parkinsons with the carnivore diet. You're brain is 60% fat, and your myelin sheath is 75%. I've been on doing carnivore, then lion diet since mid November. My doctors told me that I had the arthritis of someone 50 or above that's done manual labor all their life at 25 years old. I'm brain damaged and have many injuries from Baghdad. By day 3, my arthritis disappeared. I haven't had a migraines in months. My constant, daily nausea and vomiting, after 15 years, is gone. My ring size went from 8.25 to 6.5 because my knuckles shrank. I lost 37 pounds. Pre-diabetes is gone. Blood pressure was normal within 3 weeks. I'm getting stronger without working out. And I'm not even one of the extreme stories. Check out the Petersons, especially the daughter. Tons and tons of YouTube videos of the sick, geriatric, healthy bodybuilders, vegans gone carnivore, etc.

[JeanieBeanie in reply to Hidden]

This sounds good but how do you get round the fact that protein stops the PD drugs working, and it certainly does fort my HWP.

[JayPwP in reply to JeanieBeanie]

Time your meals accordingly and adjust till you find the best schedule

[bassofspades in reply to JeanieBeanie]

I dont think protein actual has any effect on the medicine. My neurologist says it doesnt and I havent experienced any diminished effects and I eat a diet that is very high protein (carnivore). I think what might slow down the medicine is the fact that if you take it with a meal, it h as to go through the stomach which takes longer when its full of food, even longer with a high protein meal that takes longer to break down in the stomach thereby delaying emptying.

That being said, if you experience the opposite with your husband, then not eating protein with the meds is the right thing for him. We are all different, thats rule number one

[kaypeeoh in reply to bassofspades]

The body absorbs amino acids. But the absorption is passive. As long as the concentration of LDopa is higher outside of the blood stream it gets absorbed. LDopa is an amino acid. If you weren't absorbing it you'd probably have diarrhea.

[Shlim in reply to JeanieBeanie]

Eventually you can get down to one meal a day...which helps. Once no sugar and carbs in your system you stop craving them. Husband is trying this again and doing well. Weight falls off. Totally worth a try.

[Mellaji in reply to Hidden]

Who is the person in Arizona?

[Hidden in reply to Mellaji]

Hal Cranmer youtu.be/8owAcO8lIwY?si=PZ3...(Not working as expected?)

[JayPwP in reply to Hidden]

Who became Hidden, and why?

[gomelgo in reply to Hidden]

I'm sure the intentions are honorable. But not interested because you literally are what you eat.

[Edge999]

im on an anti inflammatory diet and it’s helping alot. Things like sugar, fried foods and dairy really set me off.

I personally think chronic low grade inflammation causes an autoimmune response which priduces alot of alpha synucleon that for some reason doesn’t clear fast enough. This spreads up the central nervous system and damages the brain.

Put into chatgbt how to lower chronic low grade inflammation and all the same results as managing Parkinsons come back (diet, exercise, managing stress, sleep, etc). But as damage is already done doing these things doesn’t work straight away and takes time. As the inflammation reduces the brain has a chance to slowly start repairing (or at least stops getting further damaged).

Thats where i am at the moment.

[park_bear in reply to Edge999]

Large language model chatbots are not a research tool:

"Incorrect AI-generated answers are forming a feedback loop of misinformation online"

healthunlocked.com/cure-par...

"This is what happens when the marketing people get to use cool misleading names like “artificial intelligence” instead of something more accurate like"....Automatic Imitation

[Edge999 in reply to park_bear]

my point was i think inflammation is contributing to Parkinsons.

The point wasn’t that i used chatgbt…the point was in general lowering low grade chronic inflammation seems to correlate with the same suggestions across the web as reducing Parkinsons symptoms.

[PixelPaul]

Who do you think has the cure and where are they hiding it?

[SilentEchoes in reply to PixelPaul]

The EPA

[Jezq]

The researchers who discover a cure for parkinsons will garner career success - this translates into status, money, better jobs. So even if the cure can't be monitized by big pharma, the cure wil be published.

[pdpatient in reply to Jezq]

A Nobel Prize is guaranteed for the enterprising and successful scientist.

[cgreg in reply to Jezq]

I fully agree. An example would be Barry Marshall who discovered the cure for peptic ulcers and consequently received the Nobel Prize: en.wikipedia.org/wiki/Barry...