Illness is a curious thing. We can die from it, or learn to live through it.
You may think me crazy, but I think we pick our illnesses. We choose to slowly exit, or stay and learn how to live well.
I am choosing how to live well. Some day I will be done with PD, I will declare I am well and say I was cured by this or that.
Belief is what cures us anyway. We may take the best supplements and medicines in the world, but if we do not believe we can be healed, we won't be. On the other hand, we may chant for 3 years off and on, decide we are cured and we are because we believe we are.
Or eat chocolate ants, and declare ourselves cured. Then we can write a book about it. People will eat chocolate ants and still be sick. Because of that they will declare you a fraud.
Look at how many people have gone after John Pepper!!
I was a New Thought minister for 24 years. Unity minister. I taught Science of mind and how to work it. It continues to be a fascinating study and experiment. I don't have any sculptures nor painting to show for my work, but I know I have touched people's hearts.
I am getting bored with having PD. I don't want to go to doctors anymore.I really don't want to take meds for it. But I am afraid to quit carb/leva 10/1000 x4 a day.
Peace, Eva
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Eva. I stand with you. You touched my heart. The more of us that stand together in this belief, the greater the momentum for recovery. I am convinced that I , too, will recover. Illness is an opportunity for personal growth so I welcome it but I'm ready to move on. I've changed my way of being and reinvented myself. I'm happy.
Thank you Eva. X I have learnt so much from having PD. I am grateful. I have learnt particularly to be more humble and patient. I have learnt a lot about myself which has helped me understand others better. I have found wonderful friends on a similar journey. I am getting better. Everyday I repeat how lucky I am. In the words of Henry Ford... 'Whether you think you can or whether you think you can't, you are right'.
Eva, thank you. Your message comports with my experience. I m just starting the medications process of trial and error. I feel different when medicated,even when the tremor subsides and l miss myself. I know I will have to get serious about it because the tremor will not go away except with alcohol and that's not a long term solution.
RacerCP, have you tried meditation? Are there any times when your tremor quiets itself other than when you sleep? My husband who has had tremor dominant PD for almost 12 years now and takes no PD meds can still quiet his tremor at will through a simple meditation (Whatever method works for you even simply focusing on the breath may give you the resp
ite you are looking for. ) The tremor will return but at a much lower level of intensity. His tremor will often stop also when he reads and when we watch TV together and hold hands. (We don't have the time to watch TV often but when we do the best thing about is the peaceful way he feels.
Thank you for your helpful advice. I tried it while on the subway and it worked. I am anxious to remain unmedicated, even though I currently take Selegilin 5mg once a day.
Definitely. Stress brings it on.and, unfortunately, any negative interaction with my family, especially my children, creates stress. Unfortunately, they have not modified their interactions with me, and I am probably too opinionated with them. I am working on it.
You sound a lot like me. I find that most PwP slow down. I sped up. Have you seen the video I posted on the non motor symptoms of P D ? My brain was constantly racing. I would flush just thinking about a situation, my face turned bright red. I would find myself getting defensive over nothing. I would get angry with people because they would look at me and say I know so and so and he has Parkinson's and he is way worse than you and not a total ass. I stopped driving because I felt overwhelmed. I would find myself jumping out of my skin when somebody tried to talk to me that I didn't know was there. I would scare multiple times a day.When my day was over Alcohol became an every evening occurrence. When I saw my PD Doctor my blood pressure would be as high as 163/132.
My Doctor thought it was white coat syndrome. I would exercise until I dropped and then I would hurt. Anxiety. Dopamine is not the only communication drug in the brain. I started Sertraline last October. Because you are changing your brain chemistry it takes months to zero you in. I am still being fine tuned but my family can tolerate me now. ( smile ) I feel much more in control, driving again and yesterday spent the day with my son at freshmen orientation at ASU and did not have any problems.
thank you eve for sharing this perspective. love the chocolate ants analogy think i like ur views of "the end" better than all the end-stage PD literature that is out there! some scary stuff! L) all good things, rk
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What PD has given me.
Hope or blind faith 
Help! How do you time your eating with taking Sinemet?
