Retired....: I'm Paul, I live in Indonesia... - Cure Parkinson's

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Retired....

cookies61 profile image
10 Replies

I'm Paul, I live in Indonesia, originally from England. I was diagnosed with Parkinson's in 2005.

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cookies61
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10 Replies
Grumpy77 profile image
Grumpy77

Almost 20 years on since diagnosis, how are you coping?

Did you move to Indonesia before diagnosis or after? And how are availability of parkinson's meds, neurologists and treatment in Indonesia ?

cookies61 profile image
cookies61 in reply to Grumpy77

I moved to Indonesia in 2014, after my diagnosis. Sinemet CR has been difficult to find in Indonesia, mostly I use Madopar and levopar. I have only seen an Indonesian neurologist twice and both times I was pleased with the treatment advice given to me. I have no complaints about Indonesian healthcare system.

nednedned profile image
nednedned in reply to cookies61

I will note that. Using BPJS? Do you have to pay for the medicine or is it covered by BPJS?

cookies61 profile image
cookies61 in reply to nednedned

I pay for the medicine, it's not covered by BPJS.

park_bear profile image
park_bear

Welcome! How are you doing?

cookies61 profile image
cookies61 in reply to park_bear

I am doing fine thank you.

nednedned profile image
nednedned

I live in Bekasi :) just moved last year.

cookies61 profile image
cookies61 in reply to nednedned

I live between Cianjur and Bandung, there are no other foreigners here at all. The last time I saw someone who was not Indonesian was in October 2023 at Soekarno Hatta airport. Where did you move from?

nednedned profile image
nednedned in reply to cookies61

I moved from Bosnia. First I was in Bali from 2019 - 2021. Then visited Jakarta in 2022 and stayed in JKT until May 2023. My wedding organizer's husband is from Birmingham and they live around here. There are few bule around here in Bekasi. I do have a plan to make a gang.

nednedned profile image
nednedned in reply to cookies61

I visited Bandung once. I liked Orchid Forest. The city not that much.

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