This post is by Antonia Kotsiros, posted on FaceBook in the Parkinson's Alternative Healing group.

[MBAnderson]

"The deeper I go, the deeper the insights and gifts appear.

The most valued insight is the lesson about ‘Self responsibility’. This is very exciting and completely empowering, with endless opportunities to be able to heal ourself from most conditions.

In my experience, I went around and round in circles for many years, learning about ‘how to heal’, however, I did very little to actually commit to ‘doing the work’ in order to heal.

I have learnt that in order to get to the other side of this PD diagnosis, I needed to commit to changing my thought patterns and rectifying the chronic unhelpful habits that I had developed over time. This means actually committing to meditation, mind work, breathwork, intermittent fasting, spiritual practice, self-love, nutrition, hydration, stress reduction, nervous system regulation, sleep, environment, exercise and movement. These pillars are inter-connected and the combination of each part is where the growth and healing occurs.

Although there have been spontaneous remission of symptoms with various medical conditions, most people experience recoveries after committing to do the work, that has a culmitive effect towards healing. It took a long time to create un-wellness - It also takes time to create wellness. It is the consistency that is the driving force to achieving wellness.

I am so amazed by the clarity I am experiencing since I have committed to taking an active role in driving my intention to heal.

I also learnt that we are deeply unconsciously conditioned in everyday life in many ways - For example. We wake up to the usual routine of prioritizing to start the day with the news of the day, usually filled with negative stories for breakfast. Or, we watch movies with dark themes that tell our brain that we are in fight, flight or freeze mode. We actually choose to watch gruesome, violent thrillers. We have normalised these themes, and we welcome them as if they are they are a part of our culture. But, how would we feel if the scenes in the movie were happening within close proximity to our house? I’m sure we would feel very stressed and anxious.

I have also learnt that, like many others, I had been completely unconscious in my relationship with unhealthy eating habits. This was the combination of gluttony, eating 5 to 6 times a day, an addiction to sugar and rancid fats, and prioritizing eating for taste and entertainment, rather than providing my body with good nutrition it needs to function in optimal capacity.

Our mindset is paramount in the healing journey. The way we think, the way we speak, the way we eat, the way we act, the way we feel, the way we treat our self and others, all play a vital role in our intention to heal and live our best life.

The biggest lesson I have learnt from my research and observing others healing stories, is that the scientific evidence is strong and available on the subject of our lifestyle and environment determines our gene expression, rather than the genes determining our wellness status. We suffer unnecessarily when we choose to be reactive rather than proactive with our health.

Having good health is one of the most precious gifts that we have been given. We will be giving our self the greatest honor when we treat our mind, body and soul with awe, amazement, love, gratitude and good intentions to nurture our self as if we are a precious newborn baby.

Lots of love to you x🌟❤️🎁🚨💃🏿"

[LindaP50]

Great posting. Good topic for a PD Support Group as well.

[LAJ12345]

Thank you. I think you are exactly right.

I also think society has fed us the belief that everything should be made easier and everything should be fun. To the point that every piece of manual labour like preparing food, cleaning, washing dishes and clothes, getting form one place or another has been taken over by a time saving device or vehicle. And as you say eating as a hobby and for fun rather than nutrition.

The more you can retrain your body to do these tasks the more dexterity and strength you will reclaim. If it’s hard, practice it. This is what I have been trying to teach my hubby.

I am probably guilty at first for doing things for him to help him. Now I don’t watch and let him struggle on or ask “could you do that yourself “ if he asks me to do something he can do. Or say “I am busy at the moment, can it wait 10 minutes?” And he will do it himself as he is impatient.

And that is other other thing that needed to be worked on. Over-perfectionism and expecting it from our kids.

And impatience. He struggles to wait and has had to come up with strategies to take his mind off things if he has to wait for something. I have been with him to a restaurant where if they don’t serve him immediately he wants to leave.

We have driven 6 hours to visit our daughter and boyfriend, have been sitting in a cafe chatting with them for half an hour and he says “I need to leave now” and walks off expecting me to drive him. He has needed to come up with a strategy for that. Now if he is feeling like that he excuses himself and goes for a walk around the block and comes back and doesn’t ruin my visit with my daughter.

[pdpatient in reply to LAJ12345]

So true  LAJ12345 . I have also become like your husband after my wife took control of my meds and and everything else. I have become a baby like adult in a grown body albeit with an adult brain. I have to ask myself if I can do it myself every day and follow through if I can. Like your husband, patience and calmness isn't my virtues anymore but I wonder if they ever were 🤔😬

In the battle for supremacy over the symptoms of Parkinson's, caregivers, like you and my wife and countless others in this forum and elsewhere are the most important parts of the battle kit. It is amazing how we, Parkinson's patients become more and more dependent upon the people who help us navigate through life, once we give up trying It is eye-opening, revealing and sombering and a window to our own mortality and how much we take for granted.

The other aspect of such dependency is not talked about enough. Parkinson's symptoms when witnessed up close in the un-medicated form is terrifying to both the caregivers and the lay public. Caregivers are able to come to terms with the visual information overload and in time process and internalize the jarring aspects of our fight with the disease and it doesn't bother them that much. However, after seeing the patient's vulnerability with the disease, they won't be comfortable doing almost anything.

My wife and family won't let me drive anymore or let me go anywhere alone, even to the mailbox without someone accompanying me. It's become more critical after I had a few falls. I can't fathom doing anything that requires more than a few steps without first mustering up the mental courage to accomplish the task I intend to do beforehand.

It is a tenuous existence at best and I want to give a shout out to all caregivers, whether it is a spouse or a child or a parent or anyone else, including professional mobility enablers and assisters.

[MBAnderson in reply to pdpatient]

pd, Have you consider a 4 wheeled walker?

[pdpatient in reply to MBAnderson]

Yes, I am thinking about that as well as a wheelchair. Time for both.

[LindaP50 in reply to MBAnderson]

Hubby just got a U-Step walker which is very sturdy and doesn't start to move until you press the hand levers. Much bigger than standard metal walkers - some furniture had to be moved! Worth it because he is more confident in walking.

The U-Step has a laser (to assist going over thresholds) and sound cueing (for gait). Hubby loves it - more confident walking. Mostly he falls now because forgets he cannot walk backwards and goes boom.

We do use a wheelchair when going to doctor's appointments as the hallways are very long!

[Isthistheone in reply to pdpatient]

Hi pdpatient, yes it is sad that we have given up so much of our liberties so our care givers can manage us better. I was Dx in August 2010, my 4th neurologist thinks I came down with PD as early as 2005 or earlier. I fired the first 3 neurologists because I wasn't convinced they were on the same bus with me. I keep hearing PD isn't the same for everyo1ne. I wasn't going to be classified and put into a group and then medically managed as such. OK, I'm in my 15th year or even my 20th year .so nputting up a good fight with this illness that has never been beat. We all have seen articles saying that up to 80 % of PWP eventually develop dementia. Be careful what you read. 80% of PWP will develop dementia??? NO, UP TO 80% will develop dementia.. I voluntarily gave up driving 6 years ago. I know that hermit feeling well. I have a history of falling like you. Ialso have OH (Orthostatic Hypotension) or postural hypotention. This condition likely caused by my long-term PD meds, causes your blood pressure to suddenly plummet from a seated to a standing position. I went from nothing, to a cane, to a rollatotor, to a power wheelchair. I use my walker/ rollatotor 100% of the time!

My present neurologist is a very smart man who has given me tons of great advice. He has kept me perpendicular to the ground.e Pdpatient you recognize the score and what our over worked and under paid care givers bring to the table. I know I can never repay her. We both went from almost retiring to a PRISON OF NO ESCAPE!! I'm afraid I knsow very little about diabetes and it's impact on PD, I know it can't be good. Wh9enos I started my Parkinsons journey I was 59.9 years young and was obese weighing 259 lbs and 6*1. At my last appointment I weighed 182 lbs. Total loss of 77 llosbs. I've heard of people who lost weight and were cured of their diabetes.

Good luck PDPATIENT. ALWAYS SAID THAT PWP ARE SO MUCH STRONGER THAN THEY BELIEVE !!!

PWP stay engaged and as active as you can. I know there are days when that is difficult. Like you my meds wear off sooner and totally off by my 8pm bedtime. I know the feeling when you don't have the energy to take off your shoes and socks.

[Kwisatz]

bla bla bla

[KBGfightsback]

First, a thank you for continuing to share your story. I’ve seen videos documenting your transformation and it’s nothing short of inspiring. I’ve been slowly making my way on this path for the last 3 years and while being open to continuous learning, I’ve experienced great relief of my symptoms. It can be a struggle to maintain the dedication to the work needed for healing of the mind, body and soul, especially when our state is so easily influenced by life’s ups and downs involving who and what we are surrounded by. However, your inspiring success is much like that shared by other individuals such as, Howard Shifke, Bianca Molle, and John Pepper. All of whom have referenced, to some degree, the ancient Eastern medicine philosophy of maintaining health through practices that peacefully connect the mind, body and spirit.

Your strength, open mindedness and commitment have served you well and I’m grateful for the inspiration. Thank you.

[Spirulin]

Yes, I like very much that you mentioned mindset! It is really the most important part of healing process regardless of illness. Right mindset helps us to search for possible solutions unthinkable for many people. I follow medical advice and taking important supplements but my healing approach right now is primarily based on “block” therapy (kind of yoga ++ 😊) that includes exercise with wooden block, with focus on pain, breath and feedback correction which my body is giving to me. I am more and more convinced that this exercises makes me stronger. Even more important to me is that my chronic pain disappeared and rapid aging process slows.

[PalmSprings]

There is a lot of truth in this post. I have often said to my husband, “the only person I can change is myself and boy, am I a work in progress.” But it sure depends on how many bad habits you need to change.

[Mellaji]

Thank You, lots of love to you as well! 🙂

[Fava-1]

That was beautifully written and absolutely true. I will share it with our Parkinson Support group here in Tennessee USA. You share my thoughts and determination to stay well and be responsible for our own well-being Thank you,AuntBean

[Reetpetitio]

That is so encouraging. I will go and look in that group, but can you let me know whether she's saying she's actually experiencing healing, or is simply convinced that this is the way?

What she writes is so in accordance with the Dr Eliaz free one day Open Heart Medicine online meditation retreat I did yesterday.... I really appreciate the support as I was so inspired by him.

[MBAnderson in reply to Reetpetitio]

I believe she is saying she has recovered a lot of her health.

[Esperanto]

🕵️‍♂️

Interesting, the exact same email, yes indeed your email sussan111, was posted on October 7, 2020 under the name of Susan Thomson at gogetfunding.com/for-better.... You didn't even bother to change the age of your husband and the date of diagnosis. So it's pure fraud once again. Not from the big pharma, but from our alternative practitioners of the AKANNI HERBAL CENTRE. Shame on you, deeply, for enriching yourself at the expense of people who are seriously ill and grasp at every straw to improve their symptoms. I don't understand how you can live with this.

[MBAnderson in reply to Esperanto]

Esperanto,

Thank you, thank you.

We are all so lucky there are those of you who pay such close attention to what is said on this forum.

"... the disease is totally reversed!" Even I know that is a load of crap.

[JayPwP]

SPAM reported

[pattimanner78]

I’m a caregiver for my HWP. I wanted to inform PWP that there’s hope, the binehealthcenter. com has been of great help. the PD-5 treatment programme they offer has completely help with reversing my husband Parkinson's symptoms.

[davidcraven335]

My wife has seen an improvement in all her symptoms after using the PD-5 treatment suggested by uinehealthcentre. com,. Has started playing guitar again and signs her name like pre Parkinson’s days! Each person is different tho but good luck!

[davidcraven444]

My wife has Parkinson’s disease, adding PD-5 to her nighttime Parkinson’s meds has completely changed her sleep issues. she slept all day and up all night, we had to hire care nurses. Now using this PD-5 medicine for the last six months and a normal routine she sleeps almost completely through the night and may get up once to use the restroom. It’s improved so much we were able to let go of the night nurses. This medicine also helps a ton with memory. we got the treatment from uinehealthcentre . c om I am absolutely confident that this program offers a viable solution. I hope you find it helpful, and I wish you a full recovery!

[MBAnderson in reply to davidcraven444]

what, precisely, is PD-5?