The National Plan to End Parkinson’s Passes House & Senate!

[nednedned]

After the bill passed the U.S. House in December, it moved to the U.S. Senate this week, where it passed unanimously. The bill is now on its way to President Biden for approval. The Michael J. Fox Foundation, the PD Avengers, and thousands of members of the Parkinson's community led the three-year legislative effort.

pdavengers.com/national-pla...

[JayPwP]

Excellent!!! Congratulations to all ...

[Esperanto]

In this case the average age of members in the Senate could potentially have advantages! 😉

[parkie13 in reply to Esperanto]

Ha ha.

[parkie13 in reply to parkie13]

Still, not looking for miracles.

[Gymsack in reply to parkie13]

I am

I looked at the odds and it is going to take a miracle. Hey miracles happen .

[Boscoejean]

A question in my mind is how will we be able to find out what is being done to improve the release of treatments that have been shown to be somewhat helpful. It seems like now that any organization that has done clinical trials has to hire specialists to get the FDA to even consider treatments that have shown benefit which is likely expensive. How many treatments are never even considered by the FDA because of the cost of getting approval? How many treatments after going through this process end up being so prohibitively expensive that most people cannot afford them and insurance and medicare will never cover them due to the cost involved. It leaves me wondering if this new legislation will make any difference in this realm

[MBAnderson in reply to Boscoejean]

If the politicians were serious, they would have authorized X amount of $$, but, instead money wasn't mentioned by those bloviating.

[Boscoejean in reply to MBAnderson]

this thought definitely has crossed my mind

[Gymsack]

Thank you for this , I joined PD Avengers , we shall see what we an do.

maybe think about joining. They asked where I heard of them so I said Health Unlocked

[CuriousMe12]

congress.gov/bill/118th-con... part could be positive If it helps bring together disparate research, focus and accountability.

Among other components of the project, HHS must (1) implement and periodically update a national plan to coordinate and guide efforts to prevent, slow the progression of, and cure the disease

The Alzheimer's version is more meaty

aspe.hhs.gov/national-plan-...

[Boscoejean]

Our representative voted for this which totally surprised me but I kind of think that the fact that money was not involved was part of the reason she voted for it. I had received some emails urging me to write to my representative to get it passed. I wrote the sender back and said I did not think that our rep would vote for it based on her past actions but since the actual bill did not involve appropriating any money to help further research and networking and helping people access potential treatments I think maybe she thought it was a good PR move - at least we have Health Unlocked members and some facebook sites trying to help us find information but unless and until something that actually helps can be covered by health insurance and/or health insurance and medicare the challenges will continue

[MBAnderson in reply to Boscoejean]

true enough

[gl2238]

Big Pharma has not made quite enough $ yet. The way I see it, a cure is available now. Odd that many others think like I do.

[Eryl]

The easiest way to make a difference is to promote ketogenic diets but that wouldn't make 'Big Pharma' any money. sciencedirect.com/science/a...

[chartist]

Just to update this thread, President Biden did sign on the dotted line as discussed here :

parkinson.org/blog/awarenes...

Here is a relevant quote from the article :

' On July 2, President Biden signed the National Parkinson's Project into law. This is the first-ever federal legislation dedicated to ending Parkinson’s disease (PD).

Top five ways this monumental bill can make an impact:

Dramatically increase federal research funding

Develop more effective pathways for treatments and cures

Improve early diagnosis

Spark new and improved models for patient care

Address health disparities in diagnosis, treatment and clinical trial participation '

I think this could be a major step forward toward a cure!

Art