Anyone have info on using Pure Wave for Restless Leg? (or any other help for Restless Leg Syndrome?)

[Redginger]

Restless Leg keeps my husband awake much of the night. His neurologist suggested using Native Remedies Leg Calm, which he faithfully takes two per day and has been for a number of months, and it appeared to help at first but it isn't clear that the benefit has continued. I searched HU looking for posts about restless leg syndrome but was unable to find much. Has anyone any advice for something to try for this? A friend has suggested using the Pure Wave

purewave.com/purewave-gen-i...

[skiier1]

I have used ivory soap bar near feet, works for me

[Redginger in reply to skiier1]

Thanks for your reply. Mind telling me exactly how you use it?

[skiier1 in reply to Redginger]

Just put it near your feet at night

[Buckholt]

I haven’t used CBD oil myself but there seems to be anecdotal talk of helping. There’s lots of references from a basic google search - here’s one:

verywellhealth.com/restless...

[Redginger in reply to Buckholt]

Thanks for the link; I shall check it out.

[Xenos]

I have been prescribed ropinirole (2 mg, CR)

It worked

[Redginger in reply to Xenos]

Thank you for your reply. Mind sharing how long you have been taking it for restless legs? And how bad the situation was before you started on the med?

[Gigi_12]

I use Neupro which is a patch you change daily

[RonB1 in reply to Gigi_12]

Does the patch lose efficacy over time?

[Gigi_12 in reply to RonB1]

I've only been on it for a month and was hoping that it would help my off times. I've increased the dosage once but still no effect on muscle strength.

[RonB1 in reply to Gigi_12]

Does it help restless legs?

[Gigi_12 in reply to RonB1]

Yes

[Redginger]

Thanks for the info. How bad was your restless legs before you started with the patch? And how long have you been using it?

[Xenos in reply to Redginger]

I would wake up each night at around midnight or later and stay in bed with that urge to move my legs. I would finally have to go out of bed and walk in the apartment for a while (quarter of an hour, say) and try to sleep.

I later took half a 25 mg (12.5 mg) of alprazolam (xanax) and go back to bed. Success.

After a few month my neurologist prescribed me the ropinirole. It worked immediately.

One year ago , I tried to quit ropinirole. RLS did not come back.

Best

[Juliegrace in reply to Xenos]

Were you successful in quitting ropinirole?

[Xenos in reply to Juliegrace]

Yes Juliegrace, no problem at all.

[Bluebell2022]

I have been prescribed Neupro patch daily and a course of high dose iron x 3 months It has worked very well. I was having RSLevery night not having it at all now

[Redginger in reply to Bluebell2022]

Thanks. High dose iron...mind sharing how high that is and what your tests showed your iron levels were before starting it and how long you have been on this protocol?

[Bluebell2022 in reply to Redginger]

It’s 210mgs. Been on it since September. Iron is usually a 3 month course. My level was 11 before starting m. Have to have it checked again soon

[cgreg]

Just yesterday, my doctor prescribed low-dose Pramipexole (0.25) to be taken at bedtime for my RLS . It worked very well.

[Juliegrace]

I saw a new MDS today who we liked very much. I asked her about agonists (ropinirole, neupro, etc.) for wearing off dyskinesia which is much like restless leg. She said that for me she is afraid it would blow up my already extreme dyskinesia. So, no agonists for me.