Hi friends, my wife (62) was diagnosed with PD earlier this year. She has been experimenting with exercise, diet, meditation, supplements, etc and trying to see what works. She is putting off meds like levadopa for now, but if symptoms worsen in the future she may turn to those. Yes she is working with a doctor that specializes in PD.
With all the things she is doing and her symptoms changing day to day, it is hard to know what is doing what. Does anyone have a good technique for tracking/logging to help determine what is working and what is not?
Thanks
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PhinneySean
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Mischleys app is all inclusive of up to 36 symptoms self reporting. Strivepd i find only good for tremor monitoring. I do use both. Mischleys App for general status over time. Strivepd for tremor. Apple iwatch for sleep tracking.
Thanks everyone - great suggestions for symptom tracking. But I am also interested in tracking what she is eating, doing, etc. Anything good for tracking those?
Hi - I devised a spreadsheet that I print off daily to record my food, sleep, exercise, medications/supplements, and pain or body sensations. It’s been extremely helpful to determine what helps / hurts. On my sheet I have an outline of the body, and also hands & feet. If you’re interested perhaps I can find a way to get you a pdf of the sheet?
Hi. I and many others have had wonderful results for doing FAST WALKINGl Ordinay walking and running do almost NOTHING to reverse or even slow down the progression of PD.
FAST WALKING makes you use your conscious brain, which your normal walking does not. That causes the brain to produce a substance called G.D.N.F. which is Glial Derived Neurotrophic factor. Neurotrophic means NERVE REPAIR! That means that fast walking repairs the damaged nerve cells in the area of the brain which affects PD.
SO! ALL YOU HAVE TO DO IS TO WALK AS FAST AS YOU CAN FOR AS LONG AS YOU CAN, EVERY SECOND DAY, FOR THE REST OF YOUR LIFE. You may only be able to walk fast for a few minutes, at the beginning, but slowly you will buid that up to a maximum of 1 hour, every second day! Remember to always do some WARM-UP WALKING, before starting the FAST WALKING!
Within two months you will already feel better and you will continue to feel better, until your PD movement symptoms completely disappear.
There have been scienrtific studies done by the MAYO CLINIC, among others, which prove that FAST WALKING PRODUCES A HIGH VOLUME OF G.D.N.F.
Get wise and take control of your body and your healtth. If it is too hard for you to wlk, then you will continue to get worse. That is your personal choice!
If youcontact me I can give you a long list of people who have written to me to tell me how well they are doing. JOIN THE CLUB, THERE ARE NO FEES!
I used to fast walk daily before I was diagnosed with PD. Would love to continue walking but unfortunately I have bad arthritis in my knee and it gets a lot worse with fast walking. Just about ready for knee replacement. Not my choice!!
Hi Hikoi, I thought you must have left this planet. I assume you mean I keep repeating the same message. Bingo, you goit it in one The message is the perfect one. It is true and it works. It does what I have claimed and you cannot prove otherwise.
Nor can you prove it works. No one by your admission has reversed PD as you claim to have done. That must be very disappointing. Nor has any research shown fast walking reverses disease. (I dont accept vague claims about this or that clinic.) All exercise including fast walking is beneficial but not Disease modifying. .
I know people who have written to me to tell me they are getting better with the walking. Asit takes time to get to where I am, I don't expect anybody to write and tell me, but I do know some.
I use a spreadsheet chart with meds and therapies down the left and date of the month across the top. I print a new one every 2 weeks and keep them in a binder. I still reference info from years ago sometimes and highly recommend tracking somehow! The Mischley app looks interesting too..,I like the printed version because caregivers can also update it when they come to the house.
Almost all PD slowing factors have a long-term impact. So it is a guess which of the undoubtedly many means of struggle deployed have an effect and to what extent. It's more of a matter of intuition. Is it also wise to focus on 1 therapy? Gradually it is clear that it is more an integral all-inclusive package to improve your lifestyle. I myself constantly apply the simple finger tapping test to adjust my medication. At the same time, it also gives me an idea of what works negatively and positively in your daily life. But short-term effects are mainly stress-related.
I have been in the position where I was barely able to walk, not beccause I was crippled but because I had never done much exercise and I worked all the time.
I share you situatiation, not knowing anything about you. If you uanb;e to move in any way, then you have my deepest sympathy. If you can move at all then do whatever you can as hard as you can, every second day and see you r condition improve.
So you reckon you have had PD 32 years or is it 61 years measured from ‘first symptoms” And now you have no disability and no obvious symptoms.
I think you have been misdiagnosed. What’s more I think you were used by Doidge to sell his book. But maybe you got some royalties because he would have done very well from book sales.
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