Has anyone been on medication for a long while and successfully come off it to follow a natural route?

[Rafafan]

MY husband has been on Madapar for about 6 years blood test shows low in iron and low kidney function, (we had to make appointment with GP to ask for blod tests as neuroligist never suggested it (I think he should have) he has dizzy spells where he stares and shakes more and falls over and the side effects on leaflet mention cahnges to blood and the dizzy spells. We told neurologist who is waiting for Parkinsosn nurse to see him but he wants to give more drugs. My husband used to work spraying pesticides in the 1970's so I feel he is full of toxins that probably caused his Parkinsons and it seems counter intuitive to give more toxins via a drug. He sleeps all day and cant sleep at night. Now GP is asking for urine and stool samples, he has very low blood pressure and slow heartrate (also on side effects of leaflet) How many more side effects before they agree the drug is doing harm to him. When we have all test results we will be armed with info to tell Parkinsosn nurse we want to take another route. Has anyone else managed to do this after being on the drugs for so long? #comeoffdrugs #comeoffmedication

[park_bear]

I am not advising you to quit, however, if you and he decide to go off madopar, he must taper slowly and not quit all at once.

He needs to be evaluated for orthostatic hypertension - loss of blood pressure upon standing - or you and he can do it yourselves with a blood pressure cuff.

Medications are not toxins. Day night sleep reversal is a Parkinson's symptom. Given the low blood pressure situation, increasing his dopaminergic medication (madopar) is not appropriate until this is understood and being appropriately treated.

[Rafafan in reply to park_bear]

Thanks for your reply, he has been checked by GP and his blood pressure is low sitting and even lower when he stands up. On the Madapar side effects is says lowering the dose usually stops the dizziness on standing up so I don't see why the neurologist didn't say to lower it. I know it has to be done gradually (like when he 1st went on it) I called the medication a toxin because there are so many side effects and I think the body sees it as another toxin when thats occuring. You've confirmed my instinct that it's not wise to increase the madapar when he has all these things happening even though the neuroligist says he's undertreated. We'll have to wait for other test results and see what Parkinsons nurse says but appointment isnt till November and can't get one any sooner.

[park_bear in reply to Rafafan]

The blood pressure situation should be treated and this can be done with a home remedy. The first step is to obtain a blood pressure cuff so you can track the treatment effect on blood pressure and make sure his blood pressure does not get too high as a result.

[Rafafan in reply to park_bear]

Ok thanks I'll order one.