Does your tremor stop while you are sleeping? I especially would like to hear from anyone who is not taking meds, and has tremor.
For those of us with tremor ... - Cure Parkinson's
For those of us with tremor ...
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gomelgo
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sorry, but I don't really know if it stops, because (wait for it), I'm sleeping. I do know that my RBD is alive and well. Ended up on the floor a couple of days ago after (I think) fighting and kicking. Ah, PD, the disease that just keeps giving!
RBD? Is that REM Sleep disorder?
My understanding from folks I have asked before is that the tremor they DO have when trying to sleep does not allow them to GET to sleep. So therefore some of them surmise that the tremors continue during sleep but we just no longer notice them. Mine have so far been going away while I sleep, and even when I am on the verge of sleep. But they seem to be increasing lately, and I'm a bit scared.
Yes. RBD is REM behavior disorder. I no longer sleep in the same bed as my wife, as I have smacked, punched or kicked her several times. The other night was the third time I have fallen out of bed. In other news... I have been doing Yoga Nidra meditation for about 3 months now, and I find that my tremor actually stops during the meditation! so I assume it does also when I sleep. Unfortunately, it has not as yet had a lasting effect on my tremor. I hope as I continue to meditate, it will eventually kick into my non meditative state
Do you wake up when the movements happen?
My tremor sometimes gets worse when I do tai chi ,meditation and exercise. My last c/l is at 6pm.i sometimes have tremors and leg spasms about 10:30 for maybe a half hour then nothing until about 45 minutes after my 6am c/l. I also noticed that the Constipation issue makes things worse.
Michael J Fox calls it the gift that keeps on taking...
It depends on your perspective I guess. It IS taking away aspects of control over our lives of course. But it's also giving an opportunity to really tune in to our well being. In reflecting on my own life so far, I have certainly not put my health first. Certainly not nearly as much as I am now. And it's forcing me also to review my reactions to things. In addition to that, it's forcing me to see life and every day as a gift. I don't think I would have had this shift if not for something this drastic.
If you have Parkinson's, you may tremble all day, but usually the muscle tremors disappear when you sleep. Once you fall asleep, your whole body is actually in rest, so no “resting” tremor. However there is a condition where you move uncontrollably during sleep. This is called periodic limb movement disorder (PLMD) and is more common in PD, This usually involves you moving every 20 to 40 seconds in your sleep. These can be small movements in your toes, but also very violent and wild movements of your whole body. Such movements usually last from one second to five seconds. They can happen up to a hundred times an hour. You don't consciously experience them yourself, but the uncontrolled movements constantly bring you out of your deep sleep. As a result, you do not rest properly. As a result, you feel tired and sleepy during the day.
I have a question related to the above.Realistically, what improvement of their motor symptoms should a PwP expect when they first take anti-Parkinson's Medication? Would they feel completely normal or the medication will just partially suppress their tremor?
Thank you in advance.
When a PWP first takes anti-Parkinson’s medication, results may vary. Each individual with PD is unique and the response to medication can vary. In general, you can expect motor symptoms to improve somewhat after taking medication. Sometimes even with a significant reduction in tremors, stiffness and slowness of movement.
Although medication can suppress symptoms, this does not necessarily mean that you will feel completely normal. Some symptoms may still be present, but to a lesser extent. The aim of medication is to control symptoms and facilitate daily activities. I still cannot bring an espresso from the bar to my table without it flying through the air, but that is fine to live with.
Thank you for your comments. It's helpful to know what other PwP experience. My Neurologist keeps telling me that he's never seen a case like mine, but at the same time he is adamant that I have Parkinson's disease and not something else. I'm finding this slightly worrying.
Thank you Esperanto for your thorough and knowledgeable responses. How do you have access to such wisdom?
Merci. HU forces me to think about certain aspects of PD. Questions are asked that you sometimes haven't even thought about yourself. The combination of your own experience with yours and self-study, making connections, gives more insight into what happens to you and gives me guidance. If that also helps others, that's totally fine. 🍀
my husband's tremor does not stop when sleeping
I'm a relative newbie, less 2-3 years. I'm under medicated according to my new doctor, so my tremor is throughout the day. I been told it stops when you sleep. I believe when I get into a sleep state it does stop or at least slow down significantly because there's a pause from sleep before it comes back. While trying to fall asleep, it's distracting. I hold a rubber toy about an inch small, so when I squeeze the tremor stops. If I hold it while I'm falling asleep I can easily squeeze. I fall asleep with it in my hand and I wake up with it in my hand.
I've also have restless leg syndrome or something like it. My doctor discovered low iron stores for which he prescribed iron. That can slow the restless leg syndrome and that can activate while you're sleeping and disturb quality of sleep. I haven't talked to my doctor since doing the iron IV. But I've woken up with a deeper level of relaxation in my brain or happy in my brain a few times when I otherwise got decent sleep. I believe it's slowing down something disruptive while I'm sleeping. But not something that's consistent and overbearing. However I also seem to have a higher amplitude of shaking since. I don't know if it's from that or from increasing exercise. I'll have to see what my doctor's response is.
i record my tremor on Apple Watch using the strivepd app. It stops when sleeping. It is higher when sick. Lower when active and after sports. Looks to me like a link shortly after eating where it increases. Is less after 7pm. Also inderal (propranolol) definitely makes it less intense.
Hello,
Could you please let me know how much Propranolol you need to take in order to notice improvement in your motor symptoms?
Thank you for the information about the App, I didn't know about it. I've just installed it and am curious what trends it will detect.
Thanks!
This was super helpful. Thank you. Are you taking dopa as well?
I took it for 6 months 3 times a. day but it didn’t really help my 2 main symptoms of tremor and sleep distance. I stoped 4 months ago. I eat a vegan + fish diet (no sugars, no fried food, no bad fats) and my symptoms improved 70% after 4 weeks. Then weaned off levadopa but still take inderal occasionally as tremor remains. For more on my diet google laurie Mischley. Basically i noticed following a diabetic style diet had a big improvement, then saw Lauries videos, read about people like john Coleman , Bianca mohle and howard strifke all improving with diet and am trying it. It’s doing something good…
Fascinating. At some point I have to set myself up with a watch that gives me that much info.
My doctor said that any stress on the system will usually make the tremor worse such as running a fever, or a bunch of medication I took for something else that was stressful on the system.
Definitely my experience. And it doesn't generally seem to come completely back to "baseline". In other words with each stressor, the symptoms seem to increase and stay somewhat worse for me. 
Parkinson's, before being represented as a tremor, is intense endogenous fear that comes from transgenerational. This fear of "not being able to achieve" born from a trauma of helplessness in one of our ancestral family branches has been deposited in our cellular memory through mental processes that have facilitated the appearance of events of helplessness and stress. When we sleep we go to another mode of existence in which all physical ties disappear, since in the paradoxical sleep phase or REM phase we leave our body and therefore we do not tremble. I went 7 years without taking medication to get in deep contact with the disease and I didn't shake at night. Now I'm taking medication, the same thing is still happening.
I would be interested in hearing more about what results you got from this approach of clearing ancestral trauma? Parkinson's syndrome does seem to be an extraordinary mirror of what we know of the effects of trauma stored in the autonomic nervous system, specifically the freeze response, with sympathetic attempts at discharge (RBD, tremor, jerks) breaking through.
Science remains only in the symptom and the biochemical processes caused by a decrease in dopamine and others. It does not consider the possibility that there is information that can be mathematically assigned across the different generations according to dates, times of birth, astrological reality, emotions of the mother during the gestation period. You may probably think that this is not science, but all science is based on the observation of measurable evidence, even if you do not know how it was produced. The eminent doctor Anne Ancelin Schützenberger (see bibliography) and the father of family constellations Bert Hellinger together with the new Germanic medicine represented by Ryke Geerd Hamer know this. Parkinson's is the result of a trapped emotion that is in a vicious transgenerational degenerative cycle. Understanding this is the beginning of its evolution towards an improvement in the quality of life of those of us who are in this healing process. It is actually a "re-generative" disease, not a "de-generative one." The solution is always a collaboration between the chemical and the holistic.
When you discover the "true mechanism of the disease" then the opportunities begin to reverse it from another area. The first step is to "believe with certainty" that this disease has a biological sense of absolute "repair." In all likelihood, a high percentage of patients with Parkinson's have or had nightmares of "helplessness" in childhood represented by all kinds of terrifying situations. That is the evidence that indicates certain imbalances in the transgenerational. When we dream, our entire perception is affected when we wake up. In the dream realm of our dreams there is no space or time and the information from our unconscious moves freely as if we were "parasitized." To improve the quality of life, we must change the way we fall asleep and build a new perceptual paradigm about life, understanding what happens in sleep and its impact on the waking state.
Healing Parkinson's is possible as long as there is someone who believes in it. Let no one "rend their clothes." For something to materialize it is necessary that a minimum number of beings believe that it is possible and I join them. Our thoughts are not harmless. Parkinson's on the higher plane that defines biological processes is "the fear of situations that we cannot control." A fear installed in our subconscious and induced through our dreams that is replicated from generation to generation with an exponential expansion because few know its emotional origin or the mechanisms through which this pathology moves at an unconscious level. There are more and more cases since their "fundamental cause" is not resolved and the perception of the symptom revives the founding trauma, forming a vicious degenerative circle. Nocturnal parasitization causes us to experience events while awake whose result is more of the same, putting our ability to overcome stress to the limit and finally stopping the biochemical abilities to generate dopamine due to the inability to solve the reality that is presented to us at every moment. Yesterday I asked Pi (an artificial intelligence that knows the studies published in Pubmed) if there were cases of spontaneous remission of symptoms and he answered yes. He told me that there are several cases who woke up after one night without symptoms. This is more than significant (I leave it there for your reflection). I'm searching Pubmed to see if I can find them. I'll tell you more details.
You have put words to EXACTLY what I have been thinking about alll my symptoms and all that I have learned in the last year and a half since I was diagnosed. This morning before I was reading this thread, I woke up, thinking "what would happen if everybody started being told that this was not only curable but not a "disease"? What if the whole world was able to stop and see where this really comes from? What if we just changed the way that we think about it, and saw that it is actually a cosmic warning to take better care and see differently. I had five neurologists, diagnosed me, and every single one asked me if I was Jewish. Has anybody here considered why that might be?
I've heard that it's more common amongst Ashkenazi Jewish. I have no personal reason to believe that. And it's not genetic so what would that be from? But I did hear that from a doctor during a presentation.
I've never been asked. But I do check it off on my records, and I have non-Hodgkin's lymphoma which is more common amongst Ashkenazi Jewish. I don't know how much the neurologists look at this, but I have a slightly elevated colon cancer risk from the same genetic background... (I wanted to do ancestry.com, but after my genetic testing, those would-be results were obvious.)
Or were they just curious in the way you present yourself? But that seems highly highly unlikely.
Please be sure to let us know when you find those cases of spontaneous remission that an AI told you about.
Have you looked yourself? I have to admit, I have not found any, but I also am not sure I have made a real effort to look. In addition to that, I don't think there are places where such things can be truly recorded given that big pharma and industrial medicine machines would surely make certain that no one takes the accounts seriously. I mean how would they be ok with that kind of thing when it would literally kill their profits if any "scientific" credence were given to such accounts?
pubmed.ncbi.nlm.nih.gov/273...
Thanks. I've read this report.
I believe some people achieve significant recovery thru various regimes because of their unique combination of body chemistry and genes, that is, their regime does not produce the same results for anyone who tries it.
The case you site is claimed due to meditation which is not "spontaneous remission." I belief meditation is effective at reducing symptoms for many people.
My hooey comment was aimed at the claim of spontaneous remission, not your belief. I don't believe "spontaneous remission" has ever occurred.
PS. This case proves nothing, not even that the remission was due to meditation.
"We propose that the patient's long history of meditation practice may have been one contributing factor of this improvement as meditation has been shown to release dopamine in the striatum."
There is no exploration of what else he may have been doing.
"He told me that..." Your word choice is a little scary considering you are referring to a computer search engine (and a proven unreliable one at that) as tho it is a person.
That is indeed strange word choice. Perhaps the poster is not a native English speaker?
perhaps.
Also, note that the researchers are saying "may have been one contributing factor of this improvement". One factor. As I understand it, word choice is intended to be pretty precise in studies, no?
Could you please provide me with a link to a peer-reviewed paper or the above is just your personal opinion?
In October 1981 Ryke Geerd Hamer submitted a dissertation to the University of Tübingen, entitled 'Hamer's Syndrome and the Iron Law of Cancer', in which he claimed to have found 'a new system for [...] the origin, place and course of cancer'. This was rejected due to scientific deficiencies in the form and methodology of the work.
The Wiener Neustadt Public Prosecutor's Office had to admit that of the 6,500 Hamer patients (most of them with advanced cancer), whose addresses they seized in the search carried out at the Center for New Medicine in Burgau, 6,000 still survive, after 4 to 5 years, which means more than 90%. » This is evidence against the happy forms of a scientific method that is clearly outdated...
Hamer's license to practice medicine was revoked in 1986 by a court judgment, which was reconfirmed in 2003. As he continued to practice, Hamer was investigated several times over allegations of malpractice and causing the deaths of patients.[4] He was jailed for twelve months in Germany from 1997 to 1998, and served a prison term from September 2004 to February 2006 in Fleury-Mérogis, France, on counts of fraud and unlicensed practice of medicine.
Hamer's habilitation thesis about the GNM at the University of Tübingen was rejected after multiple examinations by several members of the medical faculty, who concluded that his work lacked scientific methods and reproductibility and his arguments did not support his theories.[5] Hamer claimed that his system was verifiable and that the University of Trnava in Slovakia had already confirmed some of his theories.[3] In fact, the University of Trnava has no real medical faculty and the documents which allegedly confirmed his view are not available and registered at the university.[6][7] That university also rejected his habilitation thesis.[8]
Hamer lived in voluntary exile in Spain until March 2007, when Spanish medical authorities held him responsible for dozens of preventable deaths.[9] By 1997, Hamer owned clinics in Germany, Belgium, Italy, Austria, and the Netherlands,[10] and resided in Norway until his death from a stroke on 2 July 2017, age 82.[3][11][12]
The Swiss Cancer League of the Swiss Society for Oncology, Swiss Society for Medical Oncology, and Swiss Institute for Applied Cancer Research say that no case of a cancer cure by Hamer has been published in the medical literature, nor any studies in specialised journals. Reports in his books "lack the additional data that are essential for medical assessment" and the presentations of his investigations, at medical conferences "are scientifically unconvincing."[2] Additionally, the German Cancer Research Center,[26] the German Cancer Society,[27] the German Medical Association and German Consumer Councils[28] strongly disagree with Hamer.
Proponents of alternative cancer treatments also regard Hamer's theory skeptically and argue for supportive evidence and proven patient cases.[29]
The Hamer foci that Hamer saw in the brain CTs are identified by radiologists as common ring artifacts.[30][31]
The medical establishment in Germany and the European Union warns of the threat posed to patients by Hamer's therapies. If effective treatment is neglected, the applying of Hamer's theories is punishable in some countries as malpractice.[2]
There are ongoing press reports of victims of Hamer's practice throughout Europe.[32][33][34][35][36][37][38][39][40][41][42][43] (source Wikipedia)
See my comment to MBAnderson above. Critical thinking tells me that anyone who discovers a way forward that does not involve chemistry or some kind of pill that cane be profitable, will have their reputation ruined by the "establishment" (ie peer reviews, and "scientific" methods questioning the validity of anything that threatens profits and the status quo. Even if money was not involved, group think is very real. Just take a look at what happened when the first performance of Rite of Spring was given! Humans doon't like our prevalent thinking and believing questioned. We burn other humans at the proverbial stake for such attempts to question norms.
Critical thinking also means facing the facts. That is that he has the death of many patients on his conscience and that even more had to be saved by traditional 'bad' science. Try not to end up in a black-white thinking. There is such a thing as a golden mean.
I had already shown below that I certainly also see positive elements in his views, but unfortunately we are not going to eliminate cancer and PD with it.
Nevertheless the current Centre for New Medicine in Burgau under the influence of Hamer have also developed interesting views, but in my opinion their therapies are of value only to complement the existing treatment methods.
Almost all of us, PD or not, have traumas to process and/or understand family relationships. In my circle of friends regardless of the health situation, this turned out to be the case with everyone in an discussion and therefore did not have to do with 2 accidental cancer cases. However researchers observed association between personality and the risk of PD, confounding by familial factors. Processing and understanding this and reducing its impact on health and well-being is always advisable!
Any slow death by crushing, drowning or dramatic situations where you have to do something quickly to get out of that situation but nothing works and you feel extreme helplessness creates an energetic contracture that will be repaired in later generations according to a mechanic that science is currently unknown. An earthquake will be enough for its trapped victims to sow egregores of helplessness. Through family constellation techniques, the origin of this disorder in the family tree is holistically reached. We do not know how it is possible for a simple assistant to the constellator to experience a blockage in his legs without knowing that the character he has decided to represent could not walk. You cannot explain how it happens, but you can observe the evidence and affirm that there is definitely information applied to beings with a specific objective: for someone to decipher what is happening to undo this cycle of stress translated into pure oxidative stress. Probably behind every PD patient there is a deceased person in their ancestors who had time to create with their thoughts the acceleration so that this helplessness lasts over time. This tragedy will project nocturnal dreams in the form of nightmares and more extreme situations until the patient recognizes the purpose of that repair.The cause of PD is not chemical. It's holistic. Chemistry comes next as an expression of the trauma to be repaired.
Thank you for your replies. I agree that ancestral trauma, and, in my map of the world, past life trauma, can affect our health greatly. It's an interesting thought to do a constellation on a disease. Is there a specific branch of constellation work that does ths?
I am also focusing on the quality of my sleep; especially via blocking blue light, and doing Eden Energy Medicine exercises for sleep before bed.
I was diagnosed 7 or 8 years ago but tremors at least 15 years earlier. I've never been on any PD meds and actually zero meds for anything. I'm tremor dominant. The tremors make it harder to fall asleep but they stop once I am asleep (per my husband).
I mirror your situation exactly, over the years it has spread to my left hand but not as bad. I actually was on meds for first 3 months after diagnosis before dumping them. wish we had something to calm them a bit but could be a lot worse .
I went on meds like you in the beginning. I use low dose mucuna now I’m pretty sure my tremor goes away during sleep.
Does high dose magnesium help at all, pehaps mag glycinate, plus mag threonate, which crossed the brain blood barrier?
Have you tried these?
Yes, although with ADHD I'm prone to running out of them. I think taking both is ideal; never done that. I am prone to early morning tremors but that seems mainly connected to late nights (ADHD again!). Never thought to track magnesium's effect on it until I wrote that to you.
As the wife of hwp I can confirm the tremors persist, often increasing during sleep. He refuses to take any medication.
I am med free, 74 and 7 yrs in, tremor dominant but it is generally understood that when asleep tremors stop, of course there is always the exception.
I am 8 years in with no meds ... my tremors and toe curling stop when asleep.
I’m not on meds and have tremors in right hand and foot. Yes, they stop when sleeping
Same here Pixelpixie. How long since you were diagnosed?
2.5 years but I was thinking I saw onset at least a year prior during COVID19
I got COVID inNovember 2019, and a few months later was when I started having tremors. I still believe that was the final straw that caused my PD.
Great question gomelgo! I have right side tremor, no PD meds but I do use a beta blocker when needed (works for some when anxiety and stress is a factor). Take supplements to try and keep my PD progression at bay.I am not aware of my tremor acting up during sleep, but I know if I turn/ roll over and use my right arm to move that it's there sometimes. Doesn't affect my sleep that I know.
What supplements do you take and do they help with tremors
Here's a post with my stack, doesn't really seem to help with tremor,
Have tremors in both my arm. Very annoying but won’t go on meds. They do stop when I am sleeping. Meditation makes them stop aswell. Unfortunately they come back once I am awake.
I'm just thinking there must be some mechanism that stops them, maybe serotonin? Or maybe just the restless mind stops, since meditation seems to work to some degree for me as well.
Also, it seems there are some whose tremors continue during sleep, though most seem to say theirs stop during sleep. Maybe this is part of the variations in symptoms. And I wonder if meds or other factors cause them to continue in some. I would so love to design a study on this. Anyone know of any already existing studies on whether there are known contributing factors to whether tremors continue during sleep?
I’ve read that there’s a kind of paralysis that happens during sleep which would account for no sleep tremor. Have to look for it
ncbi.nlm.nih.gov/pmc/articl....
Thank you. I have read about this. What I am wondering is whether the mechanism that causes the "paralysis" also depends on something internal and intrinsic like serotonin levels.
Agree. I’ve wondered same to understand if the mechanism can be triggered for daytime without becoming an octopus
Octopus? Say more please?
My sense of humor- if there’s a sort of paralysis that occurs, we don’t want to overdo it when we need muscular control
I am 48 and diagnosed with PD for over 2 years. My main symptom is right hand tremors. My tremors stops when I sleep. I noticed myself as soon as I am half sleep, my tremors stops. Also, my wife checked and confirmed that tremors completely gone when I am sleeping. Levedopa and Amantidine didn't work for my tremors. I don't take any medicine regularly. I take propananol when I go to social interaction. It reduces the tremors. Also, my neurologist asked me to try Artane. I am trying Artane and it seems to help a bit as well.
What is this Artane? I have not heard of it yet. I was diagnosed last May.
It is trihexyphenidyl hcl. I take 20 mg as required.
Thanks, and how often does your neuro recommend you taking it? Any side effects?
My neurologist prescribed 20 mg twice a day. The side affects are worse in the beginning but it becomes a norm after a few days. Side affects include dizziness and close reading vision problems. Due to these side affects I only takes it as required such as if I have to go out or go to work( I work mostly from home but one day a week I have to go to the office)
Thank you! Does it have a driving warning on it because of the dizziness?
No. Dizziness happens only when you start with it. And it is mostly when you get up after sitting a while. After taking it a week or so dizziness goes away.
My tremor definitely stops during sleep! I am not on any medications.
I’m only on 1mg of Rasagiline. I’ve had my tremor for over 7 1/2 years. As I relax and fall asleep, my tremor stops.
I only have a tremor when my dopamine level gets extremely low.(which can be stopped in about 10 minutes with fava tincture) Also have restless legs upon laying down if I haven't taken enough fava tincture
I did not know there was such a thing as fava tincture! Thank you for the tip! Do you happen to have a link to the one that you take and how much of it do you take?
I can't find info on this. Please share what you know.
Found this google.com/search?q=fava+be... but would still like to know dosage and outcomes.
Not sure if this is right area to mention this as I am new to this site - but saw the question about tremor. My concern is a recently acquired (year or so) head tremor "no-no" in my husband. I have tried to observe if this happens during sleep, and apparently it does not in his case, although sometimes fingers/hand will twitch, but then stop. Of course, there is concern for beginnings of PD - though hoping it's essential tremor that can be controlled and not progress. (?) Are awaiting consultation with a neurologist after having had a head MRI and lab. There seems to be no rhyme or reason as to when the tremor occurs - happens day, night, anywhere, off and on - but apparently not during sleep. (I know this because he can fall asleep within seconds of hitting the pillow, while I lay awake for hours :} . If anyone on this post has any comments about essential tremor, they would be appreciated. I am nervous about seeing the neuro as I think holistically and not desirous of conventional meds. Although am curious about GABA or maybe even propranolol for the calming effect.
Welcome! Holistic thinking and taking medicine can go very well together. Holistic means looking at the whole picture, including the physical, mental and emotional aspects of a person's well-being. In addition to lifestyle adjustments in PD, medications and supplements will eventually be an important part of your man's medical treatment and can help improve specific symptoms or conditions. 🍀
I agree that holistic means taking everything into account, including meds. My only concern is that certain meds once begun can actually damage the brain further and make one dependent on them, so then cannot be stopped very easily. I am so heartened to see how many folks are here saying they don't take meds, and some for nearly a decade! It's a relief to know this, and to know that so many are tremor free during sleep.
So I thought I would return here with something I found relevant and interesting about serotonin. scienceofparkinsons.com/tre... Sadly, the article quoted in this one is behind a paywall. Anyone have a membership with Neurology.org? n.neurology.org/content/60/...
My husband is totally disabled with Parkinsons & he is also totally natural & has been for decades. His tremors do stop while he's sleeping but otherwise they are quite intense. He gets the most relief from FULL SPECTRUM CBD oil, vaping low THC Cannabis & Valerian capsules right before sleeping have helped alot too. He does have some restless leg issues & snoring when he's in his best sleeping position in a lift recliner. He is unable to sleep in any kind of bed now, since he cannot get in & out of it by himself. He is barely able to walk but he can go short distances without assistance & still uses the toilet with a bidet by himself. I am so grateful for the bidet, I can't imagine life without it now. I hope this info is helpful to someone.
very helpful! Thank you so much! How many years exactly? And what does the bidet help with specifically? Also does he or did he do any kind of exercise?
He was diagnosed ~a decade ago, he has been extremely disabled for at least 3 yrs now. The bidet cleans his butt & even dries it with a fan that blows warm air while still seated on the toilet. He does some very basic exercises that he was taught during physical therapy. Not nearly enough though. He says that any vigorous exercise causes his tremors to become much worse, so he insists that he cannot do more than the very basics he does most days. He has tried CD/LD prescribed by his neurologist but it always makes him dizzy, which makes walking much too dangerous. We have also tried the natural version made with broad bean but as he increased the dosage the same dizziness becomes a hazard. It's been very frustrating & scary seeing him decline while nothing we've tried is helping much at all.
hearwrenching ... my heart goes out to you both
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