Off then back on with out C/L : I take c/L... - Cure Parkinson's

Cure Parkinson's

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Off then back on with out C/L

bigl62 profile image
4 Replies

I take c/L at 8am 12noon and 4pm and occasionally at 8pm.

My symptoms remind me at noon and 4pm to take medication. Several times a week my off periods start at 3pm but I'm back ON at 4ish w/o taking meds and I'm good until 8pm. Any one else experience back On periods with out medication?

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bigl62 profile image
bigl62
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4 Replies
lisa103 profile image
lisa103

hi, my dad was experiencing on/off. It used to be 30 mins before his medication was due and then it was an hour before. It was disabling and frustrating. He then switched to mucuna from British supplements . Since then he forgets when his next dose is due. He slowly weaned himself off sinimet

figtree2 profile image
figtree2 in reply to lisa103

Would be so grateful information o n where he bought the mucuna and dosage. I’ve been on Sinemet alone 12 years can’t tolerate any of the other meds. Took Azilect for 9 years but have given that up. Extra Sinemet causing more Dystonia. Many thanks any suggestions

Experiencing masses of off time now!

Daisies22 profile image
Daisies22 in reply to figtree2

Hello,I think this is the place, though I've never used mucuna so I can't advise re the dose you need to take:

british-supplements.net/pro...

rebtar profile image
rebtar

I believe our natural dopamine cycle is at its highest point in the morning, and lowest at around 3pm. That's why mid aternoon is "siesta time".

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