Parkinson vibration gloves.

[MBAnderson]

11:34 mIn

youtu.be/iLFuR8OmBbg(Not working as expected?)

Game-changing Parkinson's glove | 90 Seconds w/ Lisa Kim; interview with Peter Tass

2:46 min

youtu.be/GySCSlEBC6M(Not working as expected?)

[park_bear]

Report from creator of first video:

"I am using the gloves since February 2022. The biggest impact for myself was a big improvement in sleep quality - for me personally therefore already worth all the tinkering/building efforts. It seems for me to also switch off tremors when using the gloves and/or shortly afterwards. Furthermore, I also experienced what others reported (e.g. see link for Stanford magazine article in description) that it improves the general well-being, energy level, smell/taste, motoric,... It works in my experiences best when maintaining a good work/life balance and doing some sort of fitness. Using them directly during stressful moments has little effect in my opinion. I typically use them before getting up in the morning/before going to bed, while reading, watching online, etc..."

[Astrojupiter in reply to park_bear]

where did you get your pair?

[park_bear in reply to Astrojupiter]

Do not have. Was merely quoting report.

[WinnieThePoo in reply to park_bear]

interesting. Youtube date is 4 weeks ago? So at time of recording he has been using the gloves for over a year, and appwars to still be using them a lot. Whereas the Tass glove treatment typically drops to twice a week after 3 or 4 months

[brettnmi]

I asked my doctor about these and he maintains they don’t work

[MBAnderson in reply to brettnmi]

do you know the basis for his comment?

[brettnmi]

No. He was immediately dismissive. Annoying

[WinnieThePoo]

Whilst there is a ridiculously small amount of clinical experience in relation to the hype, and a great deal of the much-debated research relates to mathematical models, Stanford has a reputation to protect that is not trivial, and I am a shocking judge of character if Peter Tass is a cynical fraud.That said, for reasons discussed elsewhere recently, regarding pacinian corpuscles and perpendicular skin compression, whatever else they may be the gloves in the first video are not remotely the same idea as the ones on the 2nd video.

That's not to say they do nothing. This whole subject kicked off because Charcots patients over 100 years ago were shaken up in a bumpy train. As I mentioned in your Sunday group, for years, long before I knew I had PD I used to find a couple of hours bouncing round the paddocks on a tractor mower therapeutic.

But neither the ride on mower, train carriage or gloves using coin tactors, are providing the vCR modelled by Dr Tass

[Bolt_Upright in reply to WinnieThePoo]

It did seem that the motors in the video were moving left to right and not front to back.

[WinnieThePoo in reply to Bolt_Upright]

its not a question of front to back or left to right. its a question of side to side or in and out. the Tass glove has a tip which moves in and out like a jack-hammer. its like jabbing a page with a pencil tip. The vibrating disk is like rubbing out a pencil drawing with an eraser.

[WinnieThePoo in reply to Bolt_Upright]

think of it like your finger-tip skin is lots of garden trampolines. there are different sensor types built into the trampoline. some of the springs are strain-gauges s1. As the trampoline mat is moved those strain-gauges are activated and send a signal to the controller . there is another sensor under the middle of the mat. its like a key on a computer keyboard. when it is squashed it sends a signal. when it is unsquashed it stops. (s2)

s2 is faster and more precise than s1. it is the tool we would like to use for signalling our pattern to the brain. s2 sends a signal only when a trampolinist bounces up and down hard enough. s1 will also signal for that movement. Thats the movement Tass gloves make

but if our trampolinist lies down and rolls around the trampoline s1 will pick that up and send signals to the controller. s2 will not detect that movement and wont send a signal. thats the movement the gloves in the first video make

[PWPInnovate898 in reply to WinnieThePoo]

excellent comments. IMHO, Z-axis stimulation is key to proper effect. I’m not a neurologist but have tested enough tactors to feel the differences, as well as a PWP.

[CBailey11 in reply to PWPInnovate898]

By Z-Axis, do you mean a small pin that physically moves? Can you describe the differences you have felt between different tactors?

[PWPInnovate898 in reply to CBailey11]

with a z-axis LRA, a 5mm Plastic disk is simply glued to the top of the LRA to help focus vibration energy to the fingertip and corpuscles as described in the tactor target specs. The most similar tactor i’ve tested to those used in the original trial gloves is the Vybronics VLV1040A LRA.

[CBailey11 in reply to PWPInnovate898]

Thanks for the response! It looks like I'm in OK shape. I didn't think they vibrated very strong, but I had my wife try them and she reported they were surprisingly strong. I'm wondering about mounting still. The LRA's I got had a peel-off adhesive disc. I was going to silicone them to the velcro of the glove, but decided to just stick them on and worry about it if it was a problem. The fingertip comes in direct contact with the LRA, yet the vibrations, at least to me, feel stronger on the velcro fingertip cover. I tried finding some research or theory on concentrating the vibrations, but 90% was about sex toys and not helpful.

[Astrojupiter]

Does anyone know if they studied patients without tremor.

[Ethin in reply to Astrojupiter]

At least some of the patients that used the Tass gloves did not have a prominent tremor, e.g., see the videos by Pat Riddle.

[Bolt_Upright]

Thanks for sharing Marc!

[Furch]

I am trying to catch up on all I missed related to the gloves and other Neuro-modulation devices. I read some rather depressing where someone mentioned MAID which stirred my curiosity. So they let people end their lives with advanced PD?. Which is not the issue. But they will allow the extreme. However they won't assist you and let someone try a treatment, be it a drug or a device at the person will ? As with other diseases. Here in the US we have soor states that allow people to have end of life assistance. I hate to say this, since I spent 45 yrs as a Healthcare professional. But it's more money to be made in treatments than there is in cures.Thanks

[Router_]

case

glove

[Router_]

internals

internals

[Router_]

speakers

speakers

[Router_]

fingerbed

in action

[Router_]

only one side is ready so far, been using it for 2hours a day for 5 days now, too early to tell will update maybe after 2-3 weeks. need to finish the second side

[WinnieThePoo in reply to Router_]

Looking good! Do you fit a "tip" to the exciter? Do you have a measure of amplitude?