"Breakthrough Therapy for PD" ... ???

[PDWarrior1900]

This video is 5 months old. And it will be YEARS before we actually have it.

But it doesn't stop us from.... HOPING.

youtu.be/6b-o82NBH1w(Not working as expected?)

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[Smittybear7]

Thanks for sharing and always having a positive attitude!

[PDWarrior1900]

welcome! You too! Hang in there!

From all my research (daily!) I am confident our

'MIRACLE CURE' is just around the corner!

Tens of thousands of VERY SMART PEOPLE WORLD-WIDE are working DAILY to find solutions!

[Boscoejean]

NYX

youtube.com/watch?v=6j_1j3e...(Not working as expected?)

michaeljfox.org/researcher/...

The research will be conducted by Professor Carolyn Sue AM, Kinghorn Chair, Neurodegeneration at Neuroscience Research Australia (NeuRA). The study will explore if the Nix protein restores mitophagy and mitochondrial function in people with the PINK1/PARKIN gene mutation. The team is now working on the theory that overexpressing the Nix protein using gene therapy could stop the progression of Parkinson’s.

shakeitup.org.au/new-gene-t...

[PDWarrior1900 in reply to Boscoejean]

good dig! thanks!

[crewmanwhite]

There are numerous ways to improve mitochondrial energy output (increased ATP) and we use some of these in complementary medicine.

The gene therapy proposed does not address the fundamental causes of PD so, at best, it will be another very expensive/profitable pharmaceutical monopoly that may relieve some symptoms and. perhaps, give the appearance of slowing the illness process while ignoring the actual illness process and the causes.

If 10% of the current research money was spent on reversing the actual causes of PD, we could see thousands of people recovering every year.

[PDWarrior1900 in reply to crewmanwhite]

well let me fill-in a big blank from your comment...

ONLY ONLY ONLY

FACT: 250 million dollars each year is spent by the feds for PD research ...

"At the National Institutes of Health (NIH), the NINDS is the primary institute supporting PD research: In fiscal year 2021, the NINDS funded approximately $129 million out of a total of $254 million in NIH-supported PD research."

FACT: But the feds spend 25 BILLION (yes with a 'B') each year to MANAGE our disease

"How much does the US spend on Parkinson's disease?

"The total burden of PD includes direct medical costs of $25.4 billion and $26.5 billion in indirect and non-medical costs, including an indirect cost of $14.2 billion (PWP and caregiver burden combined), non-medical costs of $7.5 billion, and $4.8 billion due to disability income received by PWPs.Jul 9, 2020"

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google.com/search?q=how+muc...

[crewmanwhite in reply to PDWarrior1900]

So if we used 10%, $25.4 million, to research prevention and reversal of the fundamental causes (which ARE known), many thousands of people would get well and up to half of that $25 billion would be saved.

[PDWarrior1900 in reply to crewmanwhite]

well $25.4 million for "research" is a pittance ... HIV was "cured" at a cost of about 3 BILLION dollars (1995 dollars)

[AGH_1966]

"If 10% of the current research money was spent on reversing the actual causes of PD, we could see thousands of people recovering every year."

Yes, I always remind myself not to build up any hope whatsoever when I see my neurologist. Every time I try and discuss alternative therapies, trials etc he just stares blankly at me, and I remember that if Parkinson's is cured, he is out of a job.

[PDWarrior1900 in reply to AGH_1966]

I wouldn't be that gloomy... doctors are 'never' out of job ... When "polio" was cured by Dr Jonas Salk's vaccine ... Those "polio docs" ... moved on to other areas of medicine ...

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STAY STRONG! I am 100% confident that a "MIRACLE CURE" is just around the corner!

Over 1,000 clinical trials ... RIGHT NOW ... around the world!

[gomelgo in reply to PDWarrior1900]

Polio was cured when most people in the medical profession were still able to stay honest. Sadly, that is no longer POSSIBLE. The funnel that is big pharma, and the bigger funnel that contains it, the money system itself, create a kind of pressure that is simply UNAVOIDABLE. This is the same for cancer research, and continues to be played out through the pandemic (created and "solved" by the exact same industry!!!). We need to focus on the vision of actual cure, not symptom relief.... with all disease, not just PD. And that is not at all what is happening IMHO.

[JohnPepper]

Why are we still looking for expensive medications, when we already know HOW TO REVERSE PD?

FAST WALKING is the ONLY KNIWN WAY TO REVERSE PD SYMPTOMS!!!

Check the Mayo Clinic Report on GDNF PRODUCTION!

The lack of GDNF is the cause of PD, so, more GDNF reverses PD!

John Pepper (Age 88, having had PD for over 30 years)

[PDWarrior1900 in reply to JohnPepper]

Very glad to hear of your success ... and we all wish that 'fast walking' was a universal cure or way to reverse our symptoms

[JohnPepper in reply to PDWarrior1900]

I have been all over the English-speaking world and have successfully demonstrated the walking to everybody and, there was not one person who was not IMMEDIATELY ABLE TO DO IT. NOT EVEN THOSE IN WHEEL-CHAIRS.

They quickly learned how to use their conscious brain to control their walking! Everybody can do it, even if they have been bed-ridden and are in hospital, waiting to die!

If I wasn't so-old I would continue to show people how to use their conscious brain to control their walking. If they were still able to stand, unaided, on their own two feet, which they all were, they immediately walked with me holding one arm and within a minute they were able to walk UNAIDED. You can see me doing this on You-tube

PD affects the subconscious brain, which controls all our walking. Jost by consciously thinking about each leg, they could immediately walk. They just had to learn how to consciously control their movements.

I have had literally hundreds of emails back from some of them, which I have included in my latest edition of my book, 'Reverse Parkinson's Disease' available from Amazon.

[PDWarrior1900 in reply to JohnPepper]

that's great John! But I'm sure you know that there are over 40 symptoms connected with PD ... and while 'fast walking' and 'intense exercise' (along with diet and good sleep) are at the TOP of all neuro/MDS recommendations...

BOTTOM LINE: It's not enough for an overwhelming number of us who are suffering from PD ...

All you have to do is read some of the comments here to know that to be true

best of luck to you!

[JohnPepper in reply to PDWarrior1900]

It is not universal because not everyone can still stand up unassisted!

[gomelgo in reply to JohnPepper]

John have you ever tried Smovey rings?

[JohnPepper in reply to gomelgo]

Never heard of them! What are they and what are they claimed to do for PD?

[kaypeeoh in reply to JohnPepper]

youtube.com/watch?v=Yj7TIXn...(Not working as expected?)

[PDWarrior1900 in reply to kaypeeoh]

thank you good post

here are smovey rings on amazon - clever idea for exercise!

p.s. I have a weighted hula-hoop that i can't do at all! LOL

amazon.com/s?k=smovey+rings...

[JohnPepper in reply to PDWarrior1900]

That was not fast walking! It is speed THAT PRODUCES GDNF, NOT MERE WALKING, WIRTH OR WITHOUT WEIGHTS!

[gomelgo in reply to JohnPepper]

zfitwellnessperformance.com...

[PDWarrior1900 in reply to gomelgo]

thanks! good link!

""Smovey Rings" Are A General Health And Wellness Tool That Combine Exercise And Vibration, Which Have Particular Beneficial Applications For Parkinson's Disease. Indeed, These Hand Held "Rings" Were Invented By Johann Salzwimmer, An Austrian Tennis Player And A Person With Parkinson’s, Who Actually Initially Designed Them Specifically To Help Himself. So It Is Not Hard To Understand Why These Are Proving Beneficial Now With Many Other People Who Also Have Neurological Conditions"

[gomelgo in reply to PDWarrior1900]

If only they were reasonably priced, and maybe refundable without having to pay return shipping ... I would already have a pair. If anyone here has them and thinks they are worth the trouble, please share your experience.

[JohnPepper in reply to gomelgo]

Why would I do that if my I have no uncontrollable movement symptoms? I do have maay other symptoms but, I take other medications to handle them.

[gomelgo in reply to JohnPepper]

Ok that's great John.. I'd be curious what other meds you take.

[JohnPepper in reply to gomelgo]

I take a laxative called Senakot, a sleeping pill called Zopivane, for my memory, Donepezil.

I take other medications for my prostate cancer and for blood-pressure etc.

[gomelgo in reply to JohnPepper]

Sorry to hear about the prostate John. Lost my dad to that when he was just shy of 75.

[JohnPepper in reply to gomelgo]

It Happens but, I was castrated and that will slow the process down. The big benefit of that is that I can now scratch my scrotum without hurting myself, it is opnderful!

[gomelgo in reply to JohnPepper]

It's kind of odd that I just literally came across this post on StuffThatWorks. I immediately thought of you. I'm not advocating anything. Just thought I would share because of the incredible serendipity of the post coming this morning. stuffthatworks.health/parki...

[JohnPepper in reply to gomelgo]

I have not taken any medication since 1997!

[gomelgo in reply to JohnPepper]

John do you know Janice Hadlock?

[JohnPepper in reply to gomelgo]

At 88 I cannot remmber knowing her.

[kaypeeoh]

If I type Carolyn Sue and Parkinson's into Pubmed two pages of abstracts come up. The most recent is from two years ago, studying mitophagy and PD. She seems to be a PD superstar 'down under'.

[JohnPepper in reply to kaypeeoh]

I tried that address but it does not say how she got er benefits and what they were>

[JohnPepper]

At 88 I can be forgiven for answering that I can't remember