Tremor device: parkinsonsnewstoday.com/new... - Cure Parkinson's

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Tremor device

Astronomer90 profile image
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parkinsonsnewstoday.com/new...

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Astronomer90 profile image
Astronomer90
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park_bear profile image
park_bear

"Called the Cala kIQ System, the wearable device is the first to be cleared by the U.S. Food and Drug Administration (FDA) to help relieve action tremor — that is, tremor that occurs when a person makes an intentional movement — in Parkinson’s patients, according to Cala."

Parkinson's characterized by resting tremor.

Astronomer90 profile image
Astronomer90 in reply topark_bear

I am diagnosed with Parkinson. I have resting, postural and action tremors.

quiz0019 profile image
quiz0019 in reply toAstronomer90

I also have action, resting and postural tremors. The most debilitating for me are action tremors.

PDWarrior1900 profile image
PDWarrior1900

thank you for the great post! i took a quick look at their website:

calahealth.com/

As you can see from the image i posted from their website... their "results" do not look very appealing... You have to be on it for 40 minutes to ONLY get about 94 minutes of relief? ... I'm not sure if you can wear this thing 24/7 ... i have to do more research

tremor device results
quiz0019 profile image
quiz0019 in reply toPDWarrior1900

I'd love 94 minutes of respite! I have action, resting and postural tremors, but the most debilitating are the action tremors. It's getting harder and harder to shower, dress, hair and makeup. And cooking requires the help of my husband as I cannot measure ingredients, especially liquids, without shaking the contents all over the floor.

PDWarrior1900 profile image
PDWarrior1900 in reply toquiz0019

my apologies if my brief review of the value of this device didn't give it more credence...

i have only 'very very mild internal tremors' ... (plus other symptoms that are very minimal)

my heart goes out to you and everyone on this forum who are suffering ...

i don't want to get "political" ... but i will...

our gov't has given "Ukraine" over 100 ... billion ... dollars (while the European Union's contribution to their own defense is a pittance)

our government's total spending each year on PD research that would benefit one million suffering AMERICANS???

just 250 million

quiz0019 profile image
quiz0019 in reply toPDWarrior1900

No need to apologize. My primary symptom is tremor, so I consider myself "lucky." I was diagnosed 7 years ago, but had symptoms at least 15 years prior to diagnosis. I'm on no meds presently. It's amazing how different everyone experiences Parkinsons with such a diverse set of symptoms.

PDWarrior1900 profile image
PDWarrior1900 in reply toquiz0019

if it's not too personal, how long did it take before your tremors were 'visible'?

quiz0019 profile image
quiz0019 in reply toPDWarrior1900

I never had internal tremors. I had action tremors occasionally when reaching for things as far back as 20 years ago. My resting tremor became noticeable about 7 years ago. At the time I had been taking Clonazepam for 8 years for anxiety. I do think that med covered up the tremors and tremors started showing when I started tapering off Clonazepam.

gaga1958 profile image
gaga1958 in reply toquiz0019

what is the point of not being on meds?

quiz0019 profile image
quiz0019 in reply togaga1958

Side effects are not worth the benefits at this time.

Ep0522 profile image
Ep0522 in reply toquiz0019

Did Clonazapam affect your ability to walk?

quiz0019 profile image
quiz0019 in reply toEp0522

Not at all. It was a great med with minimal side effects. My doctor wanted me off it as I had been taking it about 8 years. It did take me 2 years to taper off.

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