apomorphine pump

[puckylucky]

I was dx with idiopathic Parkinson's in April 2005 (18 years ago) I'm very sensitive to loads of different drugs. At my last Neurologist' appt it was decided that I would need to give up my rented accommodation (10 years in the RSA village and go Into a nursing home because I have been told that there is nothing else to try but the Apomorphine pump. I know that I am not safe enough to be on my own even though I have 2x carers coming in each day to help me. Is there anyone who has had experience with the pump who can give me the run-down on it? Thanks so much Barbs Davies

[Discogs_discogs]

I recall reading a comment by someone who had been using the apomorphine pump for 8 years quite successfully in the UK. I remember her writing that, after 8 years, her leg still did not perform the River Dance under the dinner table.. It sounded as though she was not taking any other medications, even though the apomorphine pump or its EpiPen-type of injector equivalent is only supposed to treat "off" times, according to the following publication:

ncbi.nlm.nih.gov/pmc/articl...

[glenandgerry]

My HWP who is 69 was also diagnosed in 2005. It has become real tough looking after him as his memory and speech are getting worse. I feel for you as it sounds as though you are coping alone (with the help of carers)I don't know anything about the apomorphine pump so cannot comment about that I'm afraid but wish you the best of luck with the next phase of this disease which 'keeps on giving'

[chartist in reply to glenandgerry]

I am very sorry to hear this news about Glen, Gerry. Does the doctor think this is Lewy body dementia or something else?

Art

[glenandgerry in reply to chartist]

Hi Art, Glen is only going for a dementia test next month - been waiting for an appointment for awhile (NHS). As his speech is affected ie he can't find the right words or gets them jumbled, I thought it may be the same type of dementia that Bruce Willis has.

[chartist in reply to glenandgerry]

Hi Gerry,

Can you update me when you know more?

Art

[glenandgerry in reply to chartist]

Yes, will do Art but it won't be for another month

[puckylucky in reply to glenandgerry]

thank you so much for caring

[puckylucky in reply to glenandgerry]

thank you so much for your lovely message. I have answered more in another post if you are Interested .

[glenandgerry in reply to puckylucky]

Hi puckylucky, I haven't sent you a message recently. What did it say? Hope I haven't been hacked 😟

[glenandgerry in reply to puckylucky]

Yes I am interested. Can you link to the other post please?

[puckylucky in reply to glenandgerry]

about 4 months ago to puckylucky