Parkinson’s - hope and frustration Breakt... - Cure Parkinson's

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Parkinson’s - hope and frustration Breakthroughs always seem five years away

Farooqji profile image
10 Replies

I have huge admiration for the top scientists pursuing new treatments for parkinsons and for ⁦ which is helping to fund them. But here I describe the frustration we Parkies feel about the fact a breakthrough is always 5 years away

Rory Cellan

rorycellanjones.substack.co...

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Farooqji profile image
Farooqji
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10 Replies
PDWarrior1900 profile image
PDWarrior1900

well you know why of course... it's more important to spend hundreds of BILLIONS of dollars protecting Ukraine's borders... than investing in a cure for AMERICANS suffering from PD (sorry if I'm getting "political" but I'm just as DISGUSTED as you are)

Farooqji profile image
Farooqji in reply toPDWarrior1900

100% agree. The same applies to other countries as well

PDWarrior1900 profile image
PDWarrior1900 in reply toFarooqji

here's another sad fact...

combine all federal and non-profits -- including university research, etc = ONLY 250 million spent yearly on researching treatments, cures for PD ... but but but.... Medicare spends .....

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from google:

The study also revealed that the federal government alone spends nearly $25 billion annually in caring for people with Parkinson's. About $2 billion of that is shouldered by Social Security, and the remaining $23 billion is in Medicare costs since an estimated 90 percent of people with PD receive Medicare benefits.Jun 13, 2019

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BOTTOM LINE;

for every dollar spent on 'research to cure PD' .... 250 dollars is being spent to treat those of us with PD.

If that isn't fricken stuuuuuuuuupid, i don't know what is...

dkdc profile image
dkdc in reply toPDWarrior1900

Cut wheelchairs and welfare for pwpd

jeffmayer profile image
jeffmayer

I hate to be negative but it sounds like a load of codswallop a reason to keep us all on drugs because it's more profitable

Todd-pw profile image
Todd-pw

yes this is big only interested in big profits not the true wellbeing of patients unfortunately, i gave up on researching cures and instead looked into alternative therapies meditation, exercise and finding the rite diet if that exists.

Todd-pw profile image
Todd-pw in reply toTodd-pw

big pharma

dkdc profile image
dkdc

Because the researchers are too invested in a-synuclean hypothesis?

Williemom profile image
Williemom

it’s certainly frustrating and aggravating for all PD patients and those of us who are caregivers. My husband and daughter have PD so I’m overwhelmed some days with the frustration of all the the bureaucracy that goes on in our country for PWP, and other health issues.

We just have to remain positive and hopeful and do the best we can and remember to vote when the time comes. God bless America!

Farooqji profile image
Farooqji in reply toWilliemom

I understand your frustration. Believe me we would have found cure if the governments are seriously interested. They considered COVID as emergency and addressed it overnight. PD is considered disease of old and providing funds for research is considered as wastage of money

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