Dear Members?
Do you have experience or any information about NEST stem cell trial? Is there anyone participated in trial and can share experience. I have contacted them, it costs 16200 USD,
mdstemcells.com/neurologica...
The treatment is a transfer of active bone marrow derived adult stem cells to an area that has sustained cellular damage.
I'm not aware of any legit trials expecting people to pay.
It appears to be a legit trial. From their website:
"DISCLAIMER:
The stem cell studies available through MD Stem Cells are Institutional Review Board (IRB) approved and FDA compliant. They are open label, non-randomized efficacy studies and no guarantees of specific results or improvements to participating patients are being made. Any medical procedure carries risks as well as potential benefits. The studies have different treatment arms and our investigators assign patients to minimize risk and maximize potential benefit. Depending on the arm chosen the risk of potential complications has been calculated to be from approximately 0.0008% to 5%."
Did anyone do this
I have written to them.... Is this the best stem cell therapy in the world right now?
There is no legit stem cell therapy for PD at this point in time. I believe there are clinical trials underway in Japan IIRC.
There is also a (mesenchymal) stem cell Phase 2 trial underway at University of Texas. Results are expected at the end of this year.
clinicaltrials.gov/ct2/show...
Do you know anyone who would be invilved in texas trial?
No, but the following post contains a video featuring a female patient from the Phase 1 trial.
Good Evening,
My reply maybe a bit late to the topic, but have you looked at the therapy from Trinity Clinic Fukuoka in Japan involving 10 intravenously administered doses of 200 million autologous adipose tissue-derived Mesenchymal Stem Cells over two hours. This is repeated every fortnight until 10 treatments are completed. In order to reduce the risk of graft-versus-host disease, the patient’s own stem cells are used.
The stem cells are extracted from patients’ own (autologous) fat, or adipose, tissue. Following extraction, the cells are expanded in the laboratory until they reach high numbers, and injected back into patients’ blood.
This is the correct way to use stem cells, over several courses of treatment, not just one or two as most clinics use.
Maybe this the avenue you can take.
Any news about stem cell treatment for PD?
Phone call w/ Stem Cell Trial- Preclinical- 10 PWP ASAP. Participate in the preclinical to be first to have chance at phase 1 clinical. 
Stem Cell Treatment in the US
Aspen FINALLY Moving forward with Stem Cell Trials 
Some have suggested we add agenda items to our Zoom meetings. How do you feel about that & do you have any suggested items? 
