Botox/ Medicare : Medicare does not pay... - Cure Parkinson's

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Botox/ Medicare

akgirlsrock profile image
11 Replies

Medicare does not pay for botox for Parkinson’s for this type of dystonia ANYMORE, I been getting botox in feet and calves since 2019. Cramps are unbearable . Any suggestions. Thank you, Maria

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akgirlsrock
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11 Replies
park_bear profile image
park_bear

Is your dystonia and its best or at its worst first thing in the morning when you wake up?

akgirlsrock profile image
akgirlsrock in reply topark_bear

My toes curled this morning, I'm sure it's from lack of dopamine, I usually take 25/100 1 and half every 2 and half hours , but I took 1 pill and fell back to sleep , and toes curled a bit this morning for an hour I had 1 pill at 7:00 took half at 8:19 since 1 pill didn't work or let me walk, at 9 am took 1 and a half and 1/ 10 mg baclofin muscle relaxant and which I try not to take , waited until 10 am until meds kicked in. Thank you.

park_bear profile image
park_bear in reply toakgirlsrock

In some cases dystonia has been caused by too much levodopa, but not here.

My toe curling/dystonia is improved by walking barefoot but that might not be so easy in Alaska this time of year.

Gcf51 profile image
Gcf51 in reply topark_bear

You say not here.

I take C/L 1-1/2 tab 4 times a day. I have no off time. I have toe curl. Not sure if I should try lowering since I am trying to zero in on my sweet spot with HDT. 1350mg Thiamine HCL seems very promising.

I walk bare foot too.

park_bear profile image
park_bear in reply toGcf51

Same question to you- Is your dystonia/ toe curl and its best or at its worst first thing in the morning when you wake up?

Gcf51 profile image
Gcf51 in reply topark_bear

Truthfully, I never notice a difference in time of day. And, lately toe curl pain only bothers me when purposely curl or spread my toes. I haven’t had an unprovoked attack in months, but when I did it was mostly evening as I recall.

akgirlsrock profile image
akgirlsrock

I walk barefoot in the house😀

SilentEchoes profile image
SilentEchoes

Magnesium oil, you can get it at Walmart. Gets magnesium into the muscles fast.

akgirlsrock profile image
akgirlsrock

My dr. sent another appeal letter, and they excepted 😀

rancsikanna profile image
rancsikanna

Do you get Botox against tremor? My husband has hand tremor during walking. Is it really working? Can you still use your muscles or haw to imagine? In which clinic is it available?

Sherry1960 profile image
Sherry1960

Ask your neurologist about Botox savings program.

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