Botox/ Medicare

[akgirlsrock]

Medicare does not pay for botox for Parkinson’s for this type of dystonia ANYMORE, I been getting botox in feet and calves since 2019. Cramps are unbearable . Any suggestions. Thank you, Maria

[park_bear]

Is your dystonia and its best or at its worst first thing in the morning when you wake up?

[akgirlsrock in reply to park_bear]

My toes curled this morning, I'm sure it's from lack of dopamine, I usually take 25/100 1 and half every 2 and half hours , but I took 1 pill and fell back to sleep , and toes curled a bit this morning for an hour I had 1 pill at 7:00 took half at 8:19 since 1 pill didn't work or let me walk, at 9 am took 1 and a half and 1/ 10 mg baclofin muscle relaxant and which I try not to take , waited until 10 am until meds kicked in. Thank you.

[park_bear in reply to akgirlsrock]

In some cases dystonia has been caused by too much levodopa, but not here.

My toe curling/dystonia is improved by walking barefoot but that might not be so easy in Alaska this time of year.

[Gcf51 in reply to park_bear]

You say not here.

I take C/L 1-1/2 tab 4 times a day. I have no off time. I have toe curl. Not sure if I should try lowering since I am trying to zero in on my sweet spot with HDT. 1350mg Thiamine HCL seems very promising.

I walk bare foot too.

[park_bear in reply to Gcf51]

Same question to you- Is your dystonia/ toe curl and its best or at its worst first thing in the morning when you wake up?

[Gcf51 in reply to park_bear]

Truthfully, I never notice a difference in time of day. And, lately toe curl pain only bothers me when purposely curl or spread my toes. I haven’t had an unprovoked attack in months, but when I did it was mostly evening as I recall.

[akgirlsrock]

I walk barefoot in the house😀

[SilentEchoes]

Magnesium oil, you can get it at Walmart. Gets magnesium into the muscles fast.

[akgirlsrock]

My dr. sent another appeal letter, and they excepted 😀

[rancsikanna]

Do you get Botox against tremor? My husband has hand tremor during walking. Is it really working? Can you still use your muscles or haw to imagine? In which clinic is it available?

[Sherry1960]

Ask your neurologist about Botox savings program.