Hello All ~ I was wondering, if any of you who have purchased the Wellred Duo Coronet from Australia also purchased and are using their CoroNase? Your thoughts and experience would be appreciated.
(The Brain's Way of Healing by Norman Doidge, M.D. talks about infrared light. It's a good read!)
Here's a link to it (which I hope works): wellred.com.au/duo-coronet/...
Thank you and have a fabulous day!
I am intrigued by the nasal attachment, but my coronet duo is so old that I would have to buy an entirely new unit. For now, I continue to use my old coronet.
Oh, bummer!! I’m so sorry! I wonder if they will be able to make some kind of an adapter (but probably not) or at least give you some kind of a discount?
I do think I am going to order it. To me it really makes a lot of sense to get the infrared light where it’s most needed.
Have a fabulous day!!
Let us know if you get one and if it helps at all. I've thought about getting one. I also like the idea of the nasal piece. I've often thought our nasal passages could have something to do with PD? 🥊
I definitely will keep you posted. However, I’m not expecting to see any noticeable effects since we haven’t noticed anything specific with the helmet. But then we don’t know what symptoms the helmet has kept away or at bay.
The helmet might be helping with something since most of the summer my HwP went from 2x daily to once. His tremor and anxiety kicked up so he went back to 2x daily. But! We also made some minor changes with his C/L ~ DooaBoost and he seems better.
I’m not good at the “try-one-thing-and-see”. When he is so miserable I am also extremely miserable so I try several things at once. I know ~ not good. But still after over 50 years he’s still the love of my life.
Same here. I
have been using it once a day for 2 years and like to think it is helping. I would buy iagain if the present one needed replacing and with the nasal add on.
Hi Jim ~ Do you think that you are receiving any benefit from the inferred light? I'm not sure if it's helping my husband or not but I think so since we just went back to twice a day and he seems to be better, so for us (my HwP) I think the CoroNase is a worthwhile purchase. And maybe it has helped with preventing other symptoms. Who knows?!
I think I am benefiting from it, but I concede that I could replace the word "think" with "hope." It's like everything else I am doing -- I am happy that my progression seems very slow, but I have no idea how I would be doing without the red light or any other particular supplement. Everything I have read suggests that the potential benefits exceed the cost. I might still buy the new coronase.
I agree 100%! I’m sure many of us fall into that lot ~ doing so many things who knows what is actually helping! And then, I suppose, that there are combinations of things working together that are helping.
It’s a perplexing and “try to stay on top of it” disease. I feel like I can never let my guard down which brings into the mix ~ my (old) brain function!! It isn’t as sharp as it was once upon a time! So I have been looking into Nootropics.
Well, Jim I hope you have a fabulous day!!!
Hi Jim. It’s probably online in their manual, but if not or if it would help, I’d be happy to take close-up pictures of the connection on the helmet . And the news piece. Possibly some thing that someone talented can do themselves? That would not be me of course :-).
Thank you so much!!!!
Hi Lizzy
I have been using the Coronet since December last year and have added the CoroNase a couple of months ago.
I find that the Coronet is stimulating my brain (I can « feel « it when I am meditating). The CoroNase might have increased this somewhat but this is less clear.
I have overall been doing rather well over the last year but this could be due to a number of things.
Hello Michel ~ Thank you for sharing your experience. I'm glad that you're doing rather well!! That is always good news. I'll be interested if my HwP will be able to feel anything when we get our CoroNase. Interesting!
I must say that my HwP is also doing good, but has had an increase in his tremor. Now he frequently has left hand/arm tremor, it isn't constant. I'm hoping the CoroNase will help.
Have a fabulous day!!!
Hi Lizzy,
You may be aware that I have had the opportunity of interviewing Catherine Hamilton who co-founded the company that produces the Coronet a year ago (youtu.be/RscgHLusImc). I will soon have the pleasure of talking to her again to ask her to update us on research on red light therapy as well as product developments on her side including the CoroNase. Please stay tuned for details.
Wishing you and your husband all the best.
Thank you very much!!!
The video above has an error message. Any chance of sending a new link?
Thank you, again!
And continue to have a fabulous day!
Very sorry for this. Hopefully this works better!
Yes, This one worked. Thank you.
After watching this I wonder how much of disease progression has stopped, even though his tremor is still very evident? I guess we won't know and I'm not about to try to find out!!
I'll watch for the next interview! I hope others watch this video since it is very informative.
Thank you again and have a lovely day!!
Hi Lizzy, my husband does have the new version of the coronet which he now uses once a day. It will take the Coronase but we haven’t added it yet.
Been using red lights for more than 2 years now. Hasn’t changed meds since he has had it and sometimes forgets to take them! I think it helps him with mood.
Added the Cue 1 device and been using it since August. It really helps with keeping up and improving the pace, length and stride when walking. This improvement in walking has been noticed not just by me but by others!
Hi Zella ~ Good to hear that your husband has improvement in walking!!! It's encouraging to hear of other's improvements!
I haven't heard of the Cue 1 device. Can you give me more information on that?
My husbands cognition is good. He seems to have "downs and ups" with his symptoms. When that happens I'm looking to see what we can add/take away to help him. So far when he's on a downshift I have been able to improve his symptoms. (PD is my new hobby).
Thank you for your information and have a fabulous day!
The cue1 device is only available in the U.K. at the moment. All the information is here on their website
charconeurotech.com
Two things.
I have the coronet, coronase and therapad since august. When i was using them twice a day i felt an overall sense of calm. Then my dog got very sick with cancer and had to have an operation and everything shifted from me to him. Now hes stabilising so ill go back to my twice daily sessions.
I sometimes use the therapad on my two senior dogs. They seems to really suck in the comfort.
About
I live in Ireland but sometimes i buy UK and USA products wwich are limited to UK or USA I do this with an Address pal from AnPost (Irish) it can be also done with Parcel motel or similar. They provide temporary addresses with the country in question that limits purchases. Maybe this will help.
I often use the Thera pad which seems to help my injured shoulder - I agree it’s very comforting.
The cue1 device is also only available when your name comes up on the company’s waiting list. My husbands name was on there for well over a year before it became available.
i used to use the helmet with the Vielight nasal unit but it is more convenient to use the dedicated nasal unit they have. It is not as well made but the same frequency as the Vielight one. I believe it has helped me with cognition
I use with the Coronase attachment for about 3 months . Hard to tell if there’s added improvement, I’m doing pretty well. it’s an easy add-on so I figured why not.
I agree to the why not and that’s why I finally got the CoroNase ordered today. I live in the hope that even if I don’t see improvements that there are some happening somewhere in the unseen and unknown places! I guess that’s called Hope.
Have a fabulous day!!!
Hi Lizzy
I added the nasal piece to the coronet. It’s not cheap. I haven’t noticed a difference yet but maybe if it’s not financially prohibitive it might be worth it for your husband. It’s hard to say because I haven’t had it for long. Plus some days I just totally forget to do it. Which is really dumb LOL.
The new piece certainly does shine light up there. One thing though it’s kind of delicate or at least mine is. The little panel across from the nose prongs kept falling out. So I emailed the very kind coronet lady and she suggested the high tech solution of rubber bands ha ha. So there are two rubber bands on it now and it’s perfect.
And apparently you can adjust the size of the prongs in terms of their width from each other. But that doesn’t work for me. So to keep the prongs from falling out of my nose I just hold it.
The entire system seems a little delicate so you just have to handle with care. If your husband has issues with his hands, You could probably set the nose piece up for him the first time and just very carefully set the whole thing back in the box — but don’t forget— don’t dangle the helmet by the nose piece connector.
I don’t know why am thinking you’re going to remember all this , but so be it ... there it is :-).
Hi Godiv ~ Thank you for the great intro/instructions. You’re right I probably won’t remember all of this but I’ll be able to come back to it when I do.
I watched a video that Michel2020 posted a few hours ago. After listening to Catherine I kind of wonder if there are symptoms that my husband does not have is because of the DuoCoronet. If you have the time I’d encourage you to watch it too. I found it encouraging and I’m thinking that a lot of PD symptoms he does not have is possibly, in part, because of the DuoCoronet. But who really knows?🤔
The CoroNase will be here in 5-10 days and he will definitely be using it. He’s quite faithful/ committed in using the DuoCoronet now.
Thank you again for the great info! Have a fabulous day!!!
Oh that sounds interesting. I’m going to watch it soon. I’m really curious now. And please don’t worry about all the info I loaded on you unless you need it. I’m going to try to track down the video now. Thank you so much for letting me know about that. I may be back to discuss.
Hi Godiv ~ I am glad for the ideas you gave me for using the nasal piece. We all need all the help we can get!!
You’re welcome about the video. I hope it helps and encourages you too.
Have a lovely day!!!
Thank you! It’s not working right now but I’ll find it on YouTube. And actually I should’ve mentioned that when I’m using the coronet consistently, I am much more creative and interested in painting. Nothing sophisticated really an artist plus it’s a problem right now because I’m not able to use my right hand very well. But with that effect, I’m pretty confident I’ll come up with something else. I’m sorry I didn’t mention it sooner. I’m sort of temporarily in a funk with my hand . I forgot about it. But that definitely bodes well for the brain and for your husband I hope!
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