FOG and festination

[Bluebell2022]

My main problem is FOG and festination. I am taking 25/100 co careldopa X3 times daily. Should I be asking for a different drug? Any advice much appreciated

[Zella23]

I’m not sure where you live but in the U.K. there is a device called the Cue 1 which is gradually being made available. It has helped people with gait issues. My husband has one which does improve his walking, he doesn’t have freezing. It isn’t available in other countries yet but the plans are to take it to the USA and other countries,

charconeurotech.com

[enjoy2013 in reply to Zella23]

Hello Zella23,

I am interested by your husband experience. May I ask, how does it work? You press the button and you are doing better? Is the effect happening straight away? How much time does it last?

How does your husband manage throughout the day? Does he press thee Cue1 device everey few hours? Thank you

[Zella23 in reply to enjoy2013]

it’s a small wearable device it’s about 3 cms wide, circular and is charged up every night. He wears it after his morning shower and keeps it on all day. Currently wears it on his chest. There are a range of settings, it vibrates which you can hear as a low hum. It lasts till he goes to bed then charges it up over night. He walks around the house ok anyway but when we go out on daily walks usually between 2 -4 miles it seems to help put his foot properly on the ground and keep to a good walking rhythm. He s had it since the beginning of August and wears it every day. It sure of all the science behind it but there is a video on the website explaining it. Hope this helps.

[Bluebell2022 in reply to Zella23]

Thanks for replying. I live in the UK and have been on the waiting list for the CUE service for over a year now! How did you manage to get one?😊

[Zella23]

My husbands name was down for well over a year and suddenly we got an email saying was he still interested, to which we replied yes, and they sent all the information by return.

[Bluebell2022]

Right. I’ll just keep an eye on my mails then! Thanks